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Newly diagnosed with T1

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Emma J Davis

New Member
Relationship to Diabetes
Type 1
Hi,
I was diagnosed with Type 1 on April 10th 2018. I was given NovoRapid and LeveMir to take. I have had so much support since being diagnosed from my friends, colleagues and family. I'm 18 and at college but have been coping well with that. It came as a bit of a shock to hear I had type 1 diabetes but I just live my life one day at a time and take on new challenges with positivity.
 
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Emma J Davis said:
Hi,
I was diagnosed with Ty[e 1 on April 10th 2018. I was given NovoRapid and LeveMir to take. I have had so much support since being diagnosed from my friends, colleagues and family. I'm 18 and at college but have been coping well with that. It came as a bit of a shock to hear I had type 1 diabetes but I just live my life one day at a time and take on new challenges with positivity.
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Good for you Emma, that's the best way of dealing with it. 🙂 I was also 18 when diagnosed (32 years ago now 😱) but Type 1 hasn't stopped me from doing anything.
 
Matt Cycle said:
Good for you Emma, that's the best way of dealing with it. 🙂 I was also 18 when diagnosed (32 years ago now 😱) but Type 1 hasn't stopped me from doing anything.
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Hi Matt,
What would you say has been the most difficult part of having Type 1?
 
Emma J Davis said:
Hi Matt,
What would you say has been the most difficult part of having Type 1?
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Probably trying to maintain reasonable blood glucose control whilst enjoying life. For the first 10 or so years I was using BM strips (a visual blood glucose strip) - not very accurate. Glucose meters for me made a massive difference and the newer insulins as well. Now we have CGM's, Libres and pumps. It's still not easy but certainly easier than it was.
 
Matt Cycle said:
Probably trying to maintain reasonable blood glucose control whilst enjoying life. For the first 10 or so years I was using BM strips (a visual blood glucose strip) - not very accurate. Glucose meters for me made a massive difference and the newer insulins as well. Now we have CGM's, Libres and pumps. It's still not easy but certainly easier than it was.
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Do you find that you can still eat whatever you want, within reason?
 
Emma J Davis said:
Do you find that you can still eat whatever you want, within reason?
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Yes and I do. Basal/bolus or MDI that you're on allows this. Do you count carbs and adjust your insulin doses yet? The Type 1 course is called DAFNE (Dose Adjustment For Normal Eating) or some regions have a variation of it but I think you need to have been diagnosed at least a year before you can go on it. Basic carb counting can be taught by your DSN.
 
Matt Cycle said:
Yes and I do. Basal/bolus or MDI that you're on allows this. Do you count carbs and adjust your insulin doses yet? The Type 1 course is called DAFNE (Dose Adjustment For Normal Eating) or some regions have a variation of it but I think you need to have been diagnosed at least a year before you can go on it. Basic carb counting can be taught by your DSN.
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No, I haven't started carb counting yet. I was told that I'll be put on the February DAFNE course, however, I am completing an online BERTIE course. I have completed one module so far
 
Emma J Davis said:
No, I haven't started carb counting yet. I was told that I'll be put on the February DAFNE course, however, I am completing an online BERTIE course. I have completed one module so far
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BERTIE is good. I only did a DAFNE type course a couple of years ago which was a requirement before going onto the pump. I think the courses were introduced in the late 90's and they probably assumed everyone already diagnosed knew what they were doing. 😱🙄 The basics are fairly simple but you'll learn a lot more with BERTIE and especially on the DAFNE course.
 
Matt Cycle said:
BERTIE is good. I only did a DAFNE type course a couple of years ago which was a requirement before going onto the pump. I think the courses were introduced in the late 90's and they probably assumed everyone already diagnosed knew what they were doing. 😱🙄 The basics are fairly simple but you'll learn a lot more with BERTIE and especially on the DAFNE course.
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Thank you for all that information, that has helped me a lot
 
Hi Emma

Welcome to the forum. What a great attitude and that will definitely help you to deal with your new challenge. Sounds like you have great people round you too, which obviously helps. I think @Matt Cycle has covered it all really. 🙂 Hasn't stopped me doing anything either, just that sometimes a little more thought or planning is needed.
 
Welcome to the forum Emma, glad you have lots of supportive people around you - it does make a difference 🙂 .I went on DAFNE and found it really useful. Loads of info and great to meet others with type 1.
 
Welcome Emma. Sorry to hear about your diagnosis but glad that you have found this forum.
I have learnt so much from people on here and it is great to be able to get such quick answers to questions.

Good to hear that you are on the Multiple Daily Injection (MDI) from the start, and taking it so much in your stride. Your Diabetes team sound good and it is good to hear that you have a place on DAFNE already. That is an excellent course and you get so much from just being with others who are dealing with T1 over an extended period. A chance to talk about day-to-day practicalities. Having T1 need not stop you diong anything. Things just take a bit more planning.

One book I would recommend is Type 1 Diabetes in Children, adolescents and young adults by Ragnar Hanas.
It is well written and I still dip into it after 10 years since diagnosis. The book is regularly updated so worth getting the latest edition.

Are you giong to be taking exams this summer? If so it will be important to make sure that you can take your test kit and hypo treatment into the exam room. You would need permission from this so you would need to talk to your exams officer.

Keep in touch and let us know how you are getting on.
 
Welcome to the forum, can't give you any advice as I am type 2, but you have come to the right place.
 
Hi and welcome 🙂
Great to hear you have lots of support and are doing well.
 
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