• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Newly diagnosed T1

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
T

Tommy B

New Member
Relationship to Diabetes
Type 1
Hi all,

I am newly diagnosed with type 1 as of yesterday and have been discharged from hospital today. I am looking for any advice/tips for starting out in this new lifestyle, anything will be warmly received!

I look forward to hearing back from anyone.

Tom
 
Tommy B said:
Hi all,

I am newly diagnosed with type 1 as of yesterday and have been discharged from hospital today. I am looking for any advice/tips for starting out in this new lifestyle, anything will be warmly received!

I look forward to hearing back from anyone.

Tom
Click to expand...
You'll be looked after here....start asking questions 🙂
 
Hiya Tommy

You might start by getting a book, and making sure you read it - but don't be put off by the title !

Type 1 diabetes in babies, children and teenagers by Ragnar Hanas

Make sure you get the latest edition cos they keep revising it to keep it up to date - and it applies whatever age we happen to be diagnosed at. Since it's actually designed for parents and not members of the medical profession, it's written in ordinary English and doesn't assume the reader knows anything to begin with - which is the same state everyone is in at first!
 
Excellent thanks for the recommendation Jenny I will be sure to have a read of that, I am very keen to get as clued up as possible.

I was planning on heading out for a walk into my local town tomorrow to get some fresh air. I'm curious/anxious to see how my body will react,

How have people found exercising with diabetes? I am a fairly active person being a PE teacher so would like to get back exercising quite soon, obviously not gonna start running before I can walk
 
Welcome Tommy

There is a lot to learn At the start, but you will have a lot of specialist support from the hospital team. You need to be patient as they will want to bring them down gradually. They will introduce new things to learn bit by bit and it will get easier. Someone likened it to learning to drive. Steering, changing gear, checking the mirror, checking the blind spot, ... all seemed a lot to do at once. After a while you don’t even have to think about the individual activities. It just becomes automatic, with some obstacles to negotiate but some simple rules to help you do this as well as a lot of help.

The best book I have come across is Type1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas. Ignore the age reference as it is relevant at any age. It is well written and explains things in clear terms. It is regularly updated and worth getting the latest edition. I wish I had had a copy earlier on.

There is plenty of other help on here as well so if there is anything you are unsure about just ask.
 
Hi and welcome.

It will take a while, don't try to run before you can walk. Take it steady and slow.
 
Exercise can continue to reduce our BG for up to 48 hours - so it's even more of a balancing act than normal if you didn't have that job!

I honestly think investing in a Libre would be helpful since it not only tells you easily what your BG is this second, it also indicates whether it's in the course of staying level, increasing or decreasing - ergo were your BG 4.5 and a downward arrow - it would be extremely foolish to start refereeing a football match without eating some carbs before you blow the whistle to kick off!
 
Hello and welcome Tommy 🙂

Glad you found us so soon after diagnosis sorry you had to find us though!

It is one steep learning curve but bit by bit things do start to fall into place. I'd recommend recording everything- blood sugar results, food eaten, exercise, etc there are some good apps such as mySugr or just in a notebook so you can look back at what happened when you did x or y.

Carry your meter and some quick acting glucose- jelly babies are good- with you if you go out for a walk in case your blood sugar starts to fall. There is amazing tech around to monitor blood glucose, as Jenny says the Libre is a fantastic bit of kit to get a quick update on where your blood sugar is.

Take it slowly at first. your body has been through turmoil struggling without an insulin supply and it takes a while to get back into equilibrium. I wish you well. 🙂
 
Hi All,

Thanks for all the replies and warm welcomes, its great to know so many supportive people out there.

Went for my walk in to town today and tracked my blood sugars before and after, it was interesting to see how I reacted. Few hours after my walk my bloods started to drop and i managed to feel that happening so adjusted accordingly with food and it seems to of worked although haven't checked my bloods since then but having dinner soon so will check before then. I took advice on board and have been tracking glucose levels, food and exercise to hopefully get a better picture.

Still feeling hungry all the time at but I will get use to it and adapt.

Tom
 
Welcome, Tommy.... We have a fair few T1 athletes of varying levels on this forum, I'm sure that they will be only too happy to give you advice....
 
Hi Tom and welcome to the forum. 🙂 Lots of good advice already and I'm sure you'll get the hang of things quickly. I second what Flower said regarding Runsweet as there is lots of useful information on there. Take a look on the exercise/sports part of the forum to see what people get up to and for tips and advice. The main thing is Type 1 shouldn't stop you doing any sport or exercise you did before (quite crucial being a PE teacher :D). There are a number of pro sportsmen and women all competing successfully with T1 including professional cyclists, footballers and rugby players. After I was diagnosed a real inspiration to me at that time was England and Spurs footballer Gary Mabbutt - competing at the highest level in his sport but also living with T1.
 
There was no-one at the time to inspire me - even later with Mari Wilson - beehives went out in about 1961 luv and haven't reappeared since! LOL
 
Tommy B said:
Hi all,

I am newly diagnosed with type 1 as of yesterday and have been discharged from hospital today. I am looking for any advice/tips for starting out in this new lifestyle, anything will be warmly received!

I look forward to hearing back from anyone.

Tom
Click to expand...
Hi Tom,
I'm just diagnosed too, all a bit unsettling at present but I'm sure we'll both get on fine. Lots to learn just now. Take care
 
Hi Tom and welcome, and welcome Dawn too 🙂

Tommy B said:
Still feeling hungry all the time at but I will get use to it and adapt.
Click to expand...

Feeling hungry all the time should ease off after a while, don't worry - I was always hungry too when I was first diagnosed, it's because your body hasn't been able to deal with food properly for a while, but now it has insulin again it can.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top