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Feeling odd/out of sorts ?!

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
ClaudiaKiwi

ClaudiaKiwi

Well-Known Member
Relationship to Diabetes
Type 1
Hi there
So I’m a few months out from diagnosis and am having some days where I am literally exhausted (I have a super crazy job) which isn’t unusual for the hours I work etc but I have this almost weird feeling and think I have only had since diagnosed where sometimes I feel almost a little prickly skinned, slightly light headed and nauseous. Not all the time, just sometimes but maybe a few times a week. My blood glucose levels are pretty steady and tend to range from 5-8 across the span of the day if you know what I mean. I eat well and mostly sleep well unless I get woken up by a hypo which has happened a few times but I seem to have this under control now. It hard to explain as I can carry on and do what I need to do but just have this slightly weird feeling that I don’t ever recall (or that I was aware of) having pre diagnosis. I just wondered if anyone else remembers feeling slightly odd / out of sorts and is this maybe body settling down as a pretty rubbish time when first diagnosed as I was so sick. Am I being too hasty expecting my body to be rocking along now ? I know you can’t give me medical advice but just wondering on others thoughts and experiences on this. Thanks !
 
Well - what's your BG when you come over weird? And your BP?

It could easily be the effects of exhaustion - who the hell employs you anyway to make you work that overmuch? If it is their fault - just pass out - they may get the hint then!
 
I work for the NHS!!!! Lol lol. I manage ENT contracts across the England. I don’t think they would notice if I passed out .... sad but true !
If I feel weird I always test and it’s 99% of the time ok. Had this happen today and have tested and it’s 6 so well within ok range. BP is good and get it checked regularly (I do it at work) and I’m always bang on norm. Maybe you are right - maybe I am just worn out. I also just looked on the calendar and I am 9 weeks post diagnosis today so it’s early days really eh.
 
Yes, it is early days. I was 'lucky' in some ways cos my eyes absolutely refused to focus for about 2 months so work was impossible - but so was leisure to a large degree, couldn't see the telly let alone read or write, even my signature on the back of a prescription was unreadable LOL

At least you aren't home alone and bored out of your brain LOL
 
My eyes have been horrific and I’ve struggled loads but thank goodness for some cheapie readers from Sainsbury’s! I would have been lost without them. Still getting there but slowly slowly making progress. I’m still on a huge size text and have enlarged all the settings on my laptop. I’m still doing the odd trip up lol. It’s sure been an adventure ! My work have been ok but really don’t get it which is hilarious given I work with consultants .... I have had some munter headaches but these are lessening also. So progress is good and I’ll take all the progress I can 🙂 it’s really yuk though this whole vision blurred world isn’t it !!
 
ClaudiaKiwi said:
My eyes have been horrific and I’ve struggled loads but thank goodness for some cheapie readers from Sainsbury’s! I would have been lost without them. Still getting there but slowly slowly making progress. I’m still on a huge size text and have enlarged all the settings on my laptop. I’m still doing the odd trip up lol. It’s sure been an adventure ! My work have been ok but really don’t get it which is hilarious given I work with consultants .... I have had some munter headaches but these are lessening also. So progress is good and I’ll take all the progress I can 🙂 it’s really yuk though this whole vision blurred world isn’t it !!
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Having worked in the NHS myself, I used to say we did not tend look after our own that brilliantly.
 
Lol if only I was a clinician and could heal myself that would be ammmmazingly wonderful but alas the docs I work with (asides from a couple who I don’t see that often) are pretty much not concerned with how we are .... sorry if that sounds negative but man oh man have I learned how self absorbed some of them are ! Different story when it’s then though !! Lol
 
ClaudiaKiwi said:
Hi there
So I’m a few months out from diagnosis and am having some days where I am literally exhausted (I have a super crazy job) which isn’t unusual for the hours I work etc but I have this almost weird feeling and think I have only had since diagnosed where sometimes I feel almost a little prickly skinned, slightly light headed and nauseous. Not all the time, just sometimes but maybe a few times a week. My blood glucose levels are pretty steady and tend to range from 5-8 across the span of the day if you know what I mean. I eat well and mostly sleep well unless I get woken up by a hypo which has happened a few times but I seem to have this under control now. It hard to explain as I can carry on and do what I need to do but just have this slightly weird feeling that I don’t ever recall (or that I was aware of) having pre diagnosis. I just wondered if anyone else remembers feeling slightly odd / out of sorts and is this maybe body settling down as a pretty rubbish time when first diagnosed as I was so sick. Am I being too hasty expecting my body to be rocking along now ? I know you can’t give me medical advice but just wondering on others thoughts and experiences on this. Thanks !
Click to expand...
It's so good you can share here and first want to say how well you are doing! Right from the beginning you have worked so hard to be positive and have taken everything in your stride, sure it took me much longer to adjust and get such good numbers.
I think it is not surprising you sometimes feel slightly odd and out of sorts, could be a mixture of exhaustion, your body adjusting and the emotional adjustment too. I remember feeling odd at times for the first year and needing much more resting time. You could always ask your consultant, though if your is like my old one he wouldn't be able to help! Good luck with everything, you are doing so well
 
Not a diabetes-related feeling I recognise from your description @ClaudiaKiwi - though I think all of us feel a little weirded out from time to time and perhaps it is only natural that you are thinking it might be down to your fairly recent diagnosis.

Good to keep an eye on your BGs whenever you feel out of sorts though. 🙂
 
Thank you for your words of encouragement and support. I’ve been reflecting and am sure this is just because it’s such a big adjustment on different levels like you say. I’m seeing my consultant again in a month so will see what his thoughts are. I remember him sitting with me in hospital and he did say it would take a while to get back on my feet fully. I think he’s ok as far as consultants go and he seemed to have the right mix of knowledge and empathy but hmmmm I tend to think a lot of them aren’t so cool. My GP is shocking - absolutely useless and I literally avoid and do the tick box stuff I have too. I haven’t been discharged back to my GP yet so hopefully when I am I won’t have to have a huge amount to do with them other than repeat scripts and bloods lol. I think because I have such a big job also I have been mindful of getting back to work and one thing I think I could handle better is perhaps being more honest about what I need eg: working from home one day a week etc to break the week up but I haven’t as I have a real fear of being seen as weak and didn’t want them to think I could no longer meet the demands of the job. I’m a real advocate for others and just rubbish when it comes to myself ! I think a lot of that is my Kiwi culture as we are taught to not show weakness and to get back up and carry on strong etc. A bit of a flaw for us at times ! Anyways it’s a funny old journey this diabetes isn’t it !!!!! One step at a time and one day at a time and just think I need to quit being so hard on myself and go a little easier. Have good day everyone and thanks for letting me speak freely and for giving me a place to ask and be able to say how it really is 🙂
 
everydayupsanddowns said:
Not a diabetes-related feeling I recognise from your description @ClaudiaKiwi - though I think all of us feel a little weirded out from time to time and perhaps it is only natural that you are thinking it might be down to your fairly recent diagnosis.

Good to keep an eye on your BGs whenever you feel out of sorts though. 🙂
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Thank you - yes I sure do. I monitor closely and often. My fingers are getting used to it !! I’m really trying to work with my body so as I can work out how I am feeling to how my levels are and what I have eaten etc so as I am looking at the whole picture 🙂 I think it’s a combo of body and head and emotions all adjusting. It’s a lot to take in eh. Huge change and I’m a little rubbish at considering the reality of that all when it comes to me. One day at a time 🙂
 
Well done for keeping a check on levels when weirdness strikes. It may well be a combination of worrying about still a very recent diagnosis and exhaustion. It is still early days and you are indeed diong verywell with your levels. I struggled with my eyes at diagnosis and the optician wanted me to wait three months before checking again, so wait a while before expecting that to settle. Hooray for cheapo reading glasses. (It got me out of diong quite as much marking when I was teaching and had just been diagnosed!!)
 
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