Having a Rant

[Mark T]

I've been somewhat away for so long that I ought to reintroduce myself as a newbie.

I've just received yet another letter from my consultant saying that my appointment next month is cancelled. Given that the appointment they have just cancelled was itself a replacement for a cancellation, I'm not impressed.

The last cancellation they forgot to send a letter out, so I suppose at least they did this time.

No doubt this cancellation is because the consultant is on holiday! Not that I would take away their holiday (but it would be nice for them to spread the love).

Of course, this will mean that it's likely to be 2 years between appointments.

Given that they are not actually adding much value for me, I do wonder if it's worth sending my care back to my GP (who are actually quite good).

 

[Amigo]

I've been somewhat away for so long that I ought to reintroduce myself as a newbie.

I've just received yet another letter from my consultant saying that my appointment next month is cancelled. Given that the appointment they have just cancelled was itself a replacement for a cancellation, I'm not impressed.

The last cancellation they forgot to send a letter out, so I suppose at least they did this time.

No doubt this cancellation is because the consultant is on holiday! Not that I would take away their holiday (but it would be nice for them to spread the love).

Of course, this will mean that it's likely to be 2 years between appointments.

Given that they are not actually adding much value for me, I do wonder if it's worth sending my care back to my GP (who are actually quite good).

It’s infuriating when this happens Mark. I had an orthopaedic surgeon cancel on me twice and then I ended up seeing a nurse who couldn’t provide the injection I needed. That was near Christmas too! 😡

If your GP Care is much better and you’ve got your levels down brilliantly from 85 to 50, do you really need a specialist clinic now?

 

[Mark T]

Well, due to my age and BMI at diagnosis they originally had me down as a T1. Given my family history, my consultant speculated on some kind of LADA or weird type. For some years they have been monitoring to see if I would have a transition, thus remaining in specialist care.

You say 50 is brilliant. Well, you might want to consider that my HbA1c was 37 mmol/mol (5.5%) at one point and I’ve been slowly creeping up from there. Of course, for those who have achieved 50 and struggled to do so, well done you! (we all have our personal targets)

The annoying thing is that I had a period of illness about a month back. I started doing some self-monitoring after that and was a bit shocked to find that I’m running mostly in the 7’s and 8’s (used to be 5’s and 6’s). I would of liked to have a medicine review soonish - it looks like the postprandial I'm having most problems with.

 

[trophywench]

Try ringing the clinic and speaking to a DSN and SAY that you think you need a medication review and don't really feel it will wait another 6 months? They cancel the ones which they don't think are urgent first, and you obviously agreed they haven't added that much in the past - but once you tell em it is more important, hopefully they'll respond accordingly.

 

[Mark T]

Well, I have got the option of having my GP do the medicine review. I guess it depends who is likely to be most pliable 😉

Last time I saw them, one of the DSNs at the hospital reckoned that I was perfectly in range as long as I was below 58 mmol/mol (7.5%). I pretty much told her to RTFM (in a polite way) as the NICE spec say's different.

Given that it looks like it's my post-meal is the problem (although I've had a couple of mornings where I've been in the high 7's on waking unexpectedly) I'm tempted to try suggesting that I could try meglitinide's to bring me back into line. The GP Nurse was fairly sure that increasing my Metformin dose would probably do nothing.