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My 3 year old just diagnosed!!

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
M

Megan3012

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Relationship to Diabetes
Parent of person with diabetes
Hi there. My 3 year old has just been diagnosed with type 1 diabetes last month. I was wondering if anyone would know any local support groups. We are from belfast. Thanks
 
Hello Megan, and welcome to the forum.
 
Welcome to the forum, Megan3012. Diabetes UK website has a search function for local support groups. I can't access on my phone, so if no one has supplied the link by tomorrow morning, when I can use laptop, I'll provide URL. Your hospital clinic may also have contact details for a support group, perhaps even a specialist group for parents of children with type 1 diabetes. If you would like any online support, please ask away in Parents section.
 
Thanks @trophywench for providing the URL.
@Megan3012 - there's so much to get your head round with a child's diagnosis, both technical and emotional aspects, so you're right to seek all the support you can find. However, be kind to yourself - you won't get everything all perfect immediately. In fact, diabetes can still catch adults who've had it for years by surprise. So, doing OK is actually really good.
 
There is also a separate group, called - believe it or not! LOL - Children with diabetes. It's not a forum exactly, but another type of group where parents gather by computer. Think they may also be on Facebook - but FB groups, you can't search for info anywhere near as well as a forum like this. Make sure you access the UK part of it - cos it started in the USA and obviously things are different there. http://www.childrenwithdiabetesuk.org/

Also - JDRF - https://jdrf.org.uk/ Send for a (free) starter pack for her (and you) which includes Rufus Bear !
https://jdrf.org.uk/living-with-typ...eaflets/kidsac-pack-children-type-1-diabetes/

Also there's a MEGA helpful book again with a really apt title - 'Type 1 diabetes in babies, children and young adults' (or teenagers or teens, it's changed over the years) by Ragnar Hanas. I'm not posting a Link for that cos it's been updated several times, not sure when the latest was published and don't want to send you to an earlier one. Anyway - either from a bookshop if you have one fairly near you or Amazon, just search on there.

You ain't alone, Megan - so if ever you get an attack of The Glums (and I'm 100% sure you will - I used to say I was having another little attack of the 'Why Me?s') - for Heavens sake, if you can't do it anywhere else - come on here and get it off your chest. Because we ALL 'get' it and there's no need to explain !

hey do get less - for an adult who has T1 themselves - but I daresay it's a lot worse for YOU. So - here are some {{{Hugs}}} to be going on with, we all need them !
 
Thank you very much for all the information given. Yes it is very hard for me to adapt to all these changes. My daughter is 3. I also have a 4 year old son. 2 year old daughtee and a 1 year old son so it hasnt just affected me but the whole family which makes it harder i guess. But we have done ok so far like sje was only diagnosed last month so hopefully we can get her on the pump soon x
 
Its awful isnt it i feel for you good luck im sure you will get through this, i hate it when kids get diagnosed i just dont know how i would cope if it was mine
 
It is hard. Trust me i would swap with her in a heartbeat but at least i have her home with us and shes still the wee girl that we all no and thats whats getting us through this
 
Welcome to the forum, Megan.🙂 Sorry to hear about your little girl's diabetes. You've come to the right place for support and info. 🙂 Questions - I had loads of them when I first joined - fire away!😛
 
Hello Megan, and welcome to the forum.
 
Ive stared to reduce the amount of insulin my daughter is getting as she has had 2 hypos per day for the past 5 days. Can any1 please give me advice on this. She is 3 year old. Her exercise is the same everyday. Even at dinner times im still rounding down her insluin and still a hypo.. please help
 
Bloden said:
Welcome to the forum, Megan.🙂 Sorry to hear about your little girl's diabetes. You've come to the right place for support and info. 🙂 Questions - I had loads of them when I first joined - fire away!😛
Click to expand...



Ive stared to reduce the amount of insulin my daughter is getting as she has had 2 hypos per day for the past 5 days. Can any1 please give me advice on this. She is 3 year old. Her exercise is the same everyday. Even at dinner times im still rounding down her insluin and still a hypo.. please help
 
trophywench said:
There is also a separate group, called - believe it or not! LOL - Children with diabetes. It's not a forum exactly, but another type of group where parents gather by computer. Think they may also be on Facebook - but FB groups, you can't search for info anywhere near as well as a forum like this. Make sure you access the UK part of it - cos it started in the USA and obviously things are different there. http://www.childrenwithdiabetesuk.org/

Also - JDRF - https://jdrf.org.uk/ Send for a (free) starter pack for her (and you) which includes Rufus Bear !
https://jdrf.org.uk/living-with-typ...eaflets/kidsac-pack-children-type-1-diabetes/

Also there's a MEGA helpful book again with a really apt title - 'Type 1 diabetes in babies, children and young adults' (or teenagers or teens, it's changed over the years) by Ragnar Hanas. I'm not posting a Link for that cos it's been updated several times, not sure when the latest was published and don't want to send you to an earlier one. Anyway - either from a bookshop if you have one fairly near you or Amazon, just search on there.

You ain't alone, Megan - so if ever you get an attack of The Glums (and I'm 100% sure you will - I used to say I was having another little attack of the 'Why Me?s') - for Heavens sake, if you can't do it anywhere else - come on here and get it off your chest. Because we ALL 'get' it and there's no need to explain !

hey do get less - for an adult who has T1 themselves - but I daresay it's a lot worse for YOU. So - here are some {{{Hugs}}} to be going on with, we all need them !
Click to expand...


Ive stared to reduce the amount of insulin my daughter is getting as she has had 2 hypos per day for the past 5 days. Can any1 please give me advice on this. She is 3 year old. Her exercise is the same everyday. Even at dinner times im still rounding down her insluin and still a hypo.. please help
 
Pumper_Sue said:
Hello Megan, and welcome to the forum.
Click to expand...

Ive stared to reduce the amount of insulin my daughter is getting as she has had 2 hypos per day for the past 5 days. Can any1 please give me advice on this. She is 3 year old. Her exercise is the same everyday. Even at dinner times im still rounding down her insluin and still a hypo.. please help
 
Are the hypos actually as a result of too much insulin for the food, or because her long-acting insulin dose is too great?

You need to contact your hospital team for specialist advice of course, but reducing the insulin is the way to go - so you've been doing the right thing, so don't worry about that. Sounds like you need to reduce it even more to me! Do you have half-unit pens - cos with a little child even more than for adults, because of the smaller doses anyway - it's an essential if you can't get a pump yet.
 
trophywench said:
Are the hypos actually as a result of too much insulin for the food, or because her long-acting insulin dose is too great?

You need to contact your hospital team for specialist advice of course, but reducing the insulin is the way to go - so you've been doing the right thing, so don't worry about that. Sounds like you need to reduce it even more to me! Do you have half-unit pens - cos with a little child even more than for adults, because of the smaller doses anyway - it's an essential if you can't get a pump yet.
Click to expand...

I think its maybe both that are too high. She used to get 3 units at breakfast and now im only giving her 1? Her long acting insulin she gets a dinner time and that is only 1 unit too. Im really confused and we always eat the same foods. Yes the pens she uses goes up in halves and im always rounding down anyway. ???
 
You definitely need to speak to her medical team, Megan. How are you all coping otherwise? 🙂
 
Your team will be used to this happening, and will be able to advise. Quite often someone newly diagnosed will go through what's known as the 'honeymoon period' where the pancreas stages a bit of a recovery, and produces some of its own insulin, before diminishing again.
 
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