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Ranting again (sorry)

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Hang on in there Sam and don't loose sight of your dreams. Hope you get the medical and emotional support you need right now, you've done so well. Following in Bev's footsteps - keep an eye on the BSGs and go easy on the codeine!
 
Hang on in there Sam and don't loose sight of your dreams. Hope you get the medical and emotional support you need right now, you've done so well. Following in Bev's footsteps - keep an eye on the BSGs and go easy on the codeine!

I was on the full dose of codeine (co-codamol) for weeks when I broke my leg - it gave me terrible constipation! Sorry if that's TMI, but something to bear in mind!
 
Hope you're doing better today Sam, and hang in there.

Best wishes

Rossi
 
Hi everyone, just wanted to say thanks for all your kind words. Today has been slightly better, but I think it really is my work shoes thats making things a billion times worse!!!!!!! I'm sat here now with no shoes on and there's no tingling at all, no numbness just a sort of 'pain residue'. Earlier on at work things got well bad again, but again I actually think thats more to do with the job and the shoes they're providing. Lots of tingling, a few tears in private. Things seem a bit better today, but still feeling angry and down about the whole thing.
 
Hey honey,

Sorry to hear you are dealing with all this, sounds miserable. I really worry about you (which makes me worry about your parents being not being in the loop, I would imagine they would hate to think of you like this).

Im sorry to sounds 'nursey' I try not too, but have you made clear to your GP also the highs and lows in mood you have been having. I am sure it is very reactionary, and rightly so with your news I think that is absolutely fair. But I would consider raising in discussion with your GP whether they might think a routine thyroid function test is worth doing? Rollercoaster moods can go hand in hand with swinging BM's, and I know how bloody awful that can be, I just hope you feel better soon.

Dont even start me on Winchester hospital 😡 (many a dreadful experience but lets not go there!) but do they have a dedicated diabetes psychologist and can you be referred? I saw one, cried on her, cried on her again and managed to a few sentaces out the second time too, and then started the big heal (wow- I sound like a hippy!). I sooooooo needed those sessions.

NEVER let diabetes get in the way of your fantastic sounding ambitions. You are clearly an intelligent young woman. Let diabetes take something like this from you and you may relent time again. You are a brave person, you will find a way to accomplish your dreams, dont worry. One day at a time Sam.

ok, so lecture over....

......can you come to London for the meet up? I need to give you a hug 🙂

Lou x
 
Hey honey,

Sorry to hear you are dealing with all this, sounds miserable. I really worry about you (which makes me worry about your parents being not being in the loop, I would imagine they would hate to think of you like this).

Im sorry to sounds 'nursey' I try not too, but have you made clear to your GP also the highs and lows in mood you have been having. I am sure it is very reactionary, and rightly so with your news I think that is absolutely fair. But I would consider raising in discussion with your GP whether they might think a routine thyroid function test is worth doing? Rollercoaster moods can go hand in hand with swinging BM's, and I know how bloody awful that can be, I just hope you feel better soon.

Dont even start me on Winchester hospital 😡 (many a dreadful experience but lets not go there!) but do they have a dedicated diabetes psychologist and can you be referred? I saw one, cried on her, cried on her again and managed to a few sentaces out the second time too, and then started the big heal (wow- I sound like a hippy!). I sooooooo needed those sessions.

NEVER let diabetes get in the way of your fantastic sounding ambitions. You are clearly an intelligent young woman. Let diabetes take something like this from you and you may relent time again. You are a brave person, you will find a way to accomplish your dreams, dont worry. One day at a time Sam.

ok, so lecture over....

......can you come to London for the meet up? I need to give you a hug 🙂

Lou x

Thanks hun - GP doesn't know of the epic mood swings, but I mentioned it in passing to nursey. I'm gunna try and get another appointment to see her next week and have a good ole rant over this whole thing. I must admit, yesterday was horrific BG wise due to how upset I was getting and how stressed I was and worried. But I got it under control.

GAH winchester hospital. They are RUBBISH! Thankfully I'm being referred over to the RSH at southampton because their team is just brilliant. I've met the nurses once, and already love them to bits!!! I'm gunna see if I can talk to a pysch (even though the OH is one in training hehe)

As for london, I am seriously hoping to be able to get there. I'm gunna have a word with my boss tomorrow, see if I can get the day off 🙂 I think a nice relaxing day at the BM is in order! Even if I do have to pay full price to get there hehe!!!!!!

I'm not gunna let this get in the way of what I want to do. I just can't. Archaeology has always been my dream and I'm really not happy if I'm not doing something to do with it!!!!! I WILL do it, I have to do it!!!!

*massive hugs*
 
sam did i see a mention of MSN?? i can do MSN and if anyone else is on it it would be great to speak to people??

yes my lovely, my addy is on my profile
 
Hey Sam, really sorry to hear about all this. I'm afraid there's nothing much I can add apart from apart from hoping you're doing ok. A chat with a DSN sounds like a good idea. Hugs xxx
 
I cried at work today. People kept asking me what was wrong. I snapped at them. And then I cried. I feel so angry over this whole thing, so angry. I'm 21 years old and there is a 90% possibility that I have a form of nueropathy. My career in archaeology could be up in smoke. I am 21 years old, with so much ahead of me, and there is a 90% possibility that I have this stupid diabetes complication. Yet, why the hell do I have it???. WHY IS THIS HAPPENING TO ME? It was bad enough when I got the letter about the background retinopathy but this?? This could ruin my chances of ever getting an archaeology job. I think the next time I talk to the DSN I might ask her about it. They think it will go away, that's its transient. If I get tighter control it will settle down and go away. I hope so because right now, I am so miserable.

I have no idea what to tell my parents. I'll know they'll say its my fault for not looking after myself. But the fact is, I hav been. I have been so good with just that one episode of not really caring.

People at work don't understand. I was told earlier to just 'get on with it'. Yeah, that's pretty mucH impossible to be honest with you. How can I get on with it when the job is likely what's making things worse?

They say it could take months to sort itself out, but they're not giving me any pain killers. I've had to go into boots and buy Paracetamol and Codeine just to prepare myself for a day at work. They sent me home early again today because of it. It's been two days, and it's affected my life already. I can't afford to work less hours, I just cannotdo it. Yet this is getting in the way of my life and my dreams. I will not give up my dreams of being an archaeologist because of me being the unluckiest diabetic in the world. I really think a proper chat with my DSN would go down a treat. I could do with someone to rant at, to moan at, to cry at. It's all well and good crying on Matt's shoulder, but he doesn't understand and oftentimes just gets frustrated with me because he doesn't really get it. I try and include him, I try and explain things. But when i'm upset about it all, there's not much he can say or do. He turned round to me the other day and told me this whole thing was my own fault. It probably is. But still the question remains, WHY HAVE I GOT IT?? WHY AM I SO UNLUCKY WITH IT??????? why not someone ELSE?????

I hate this. I hate this so much. I want them to sort it, but I'm waiting on an appointment to see the specialist and the podiatrist. It may not even be nueropathy. But the fact is, I still firmly believe that it is a type of nueropathy. And I am sO terrified. More so, I'm angry. I'm angry that my diabetes team could let this happen. I'm angry that the team in Winchester didn't listen to me when I said I was terrified that I had the onset of nueropathy. And more so, I'm angry that the possibility exists that my livelihood and dreams could be washed down the drain and all because of the lack of simple care that I am supposed to have, I have been working so hard at getting everything under control to stop this from happening. And it happens anyway. I'm so angry I could cry.

I just want to drink my way into oblivion, but the painkillers I am having to take off my own back mean I can't. I'm worried too that I'm sinking into depression over this whole thing. I haven't been able to stop crying since I found this whole thing out yesterday morning. I just want it to be over.
Hello Silent, my name is Sophie, i just read all your post and feel sorry for you, you know where that neuropathy comes from, its from diabete so you have to keep your diabete in norm with meds and aswell you may find some meds prescriptions for nueropathy, good luck dear!
 
Hello Silent, my name is Sophie, i just read all your post and feel sorry for you, you know where that neuropathy comes from, its from diabete so you have to keep your diabete in norm with meds and aswell you may find some meds prescriptions for nueropathy, good luck dear!
Hello Sophie, this post/thread is at least 8 years old so doubt any of it is relevant now.
 
Nice to see some old names on here though
 
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