Control at any price and any age?

[Northerner]

What I have found is my endocrinologist is generally a bit too keen to drastically increase or reduce doses. When I was back last week for my review, she saw my HbA1C had gone from 137 to 37 and was considering just treating me with metformin.

What kind of endocrinologist suggests that a Type 1 can manage without insulin, just because they have a good HbA1c? 😱 My HbA1c has been in the low to mid-30s mmol/mol practically since diagnosis 8 years ago (106 at diagnosis, down to 51 at 3 months and 30s since), yet I know for certain that if I didn't inject I'd be on a diet of lard and drinking water only 😱 It's little wonder non-specialists find things difficult if experts seem to struggle with the basics How much insulin do you use @AaronH83 ?

Sorry, just read that your endo is questioning your diagnosis. My lowest daily requirements has been 12 units (65 at diagnosis), but without that 12+ units I'd struggle to eat anything, LCHF or anything.

 

[AaronH83]

What kind of endocrinologist suggests that a Type 1 can manage without insulin, just because they have a good HbA1c? 😱 My HbA1c has been in the low to mid-30s mmol/mol practically since diagnosis 8 years ago (106 at diagnosis, down to 51 at 3 months and 30s since), yet I know for certain that if I didn't inject I'd be on a diet of lard and drinking water only 😱 It's little wonder non-specialists find things difficult if experts seem to struggle with the basics

Her logic was that my HbA1C was normal therefore there was no way I could be diabetic, and she made me do yet another C Peptide test. Now she hasn't seen the work I've done, the struggles I've had, nor the contact with me that my DSN's have. I told her it's unfair of her to say what she did, after the adjustment and changes I've made to my life.

 

[AaronH83]

What kind of endocrinologist suggests that a Type 1 can manage without insulin, just because they have a good HbA1c? 😱 My HbA1c has been in the low to mid-30s mmol/mol practically since diagnosis 8 years ago (106 at diagnosis, down to 51 at 3 months and 30s since), yet I know for certain that if I didn't inject I'd be on a diet of lard and drinking water only 😱 It's little wonder non-specialists find things difficult if experts seem to struggle with the basics How much insulin do you use @AaronH83 ?

Sorry, just read that your endo is questioning your diagnosis. My lowest daily requirements has been 12 units (65 at diagnosis), but without that 12+ units I'd struggle to eat anything, LCHF or anything.

I'm on 16units of Lantus at the moment, which does me through the day until I get home. Then I usually need between 2 and 6 units of Novorapid in the evening depending on what I'm having for dinner. At the weekends I'll need Novorapid with each meal, so I'll be using about 16 to 20 units of Novorapid.

 

[Rosiecarmel]

Hospital food can be pretty terrible. When I was in hospital most recently in August there was a big sticker above my bed saying "think glucose!" At breakfast time, the house keeper handed me a bowl of cornflakes and white toast. She asked if I wanted sugar in my tea and I said one sweetener please. She laughed and went oh yes sweetener not sugar, you're diabetic.

No surprise that two hours later my blood sugars were 26!! (day before I was put on insulin)

However, I've worked with elderly people (I love working on dementia wards) and sometimes we just think eh, these people have so much physically and mentally wrong with them so at the very least let them enjoy their foods. We do, however, have a diabetic nurse that comes onto the wards to discuss treatment for the diabetic patients but we always get the "moderation" speech from them and the consultant ups their diabetic medication. On the dementia wards, though, they don't usually get to choose their food.

I'm not saying this is right or wrong. It's just my observation.