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Erobins

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Hi All,

I'm new on here and would like to say Hi. I have a 4 year old nephew who was diagnosed with Type 1 at 18 months. It devastated the whole family and it is a day to day struggle. He is a faddy eater so not able to have a pump as yet. Any advice on helping with carb counting and working towards getting a pump would be much appreciated. thanks
 
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Hi Erobins, welcome to the forum 🙂 I'd recommend having a look at the INPUT website, they are really good for information about pumps and how to go about getting one: http://www.inputdiabetes.org.uk/

I'd also recommend getting a copy of Type 1 Diabetes in Children Adolescents by Ragnar Hanas - it's a terrific reference for all things Type 1 🙂 What insulin regime is he on? Does he mind the finger pricks and injections?
 
Northerner said:
Hi Erobins, welcome to the forum 🙂 I'd recommend having a look at the INPUT website, they are really good for information about pumps and how to go about getting one: http://www.inputdiabetes.org.uk/

I'd also recommend getting a copy of Type 1 Diabetes in Children Adolescents by Ragnar Hanas - it's a terrific reference for all things Type 1 🙂 What insulin regime is he on? Does he mind the finger pricks and injections?
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Hi Northerner,

Thank you very much for the recommendations, I have previewed the book and it looks a worthwhile buy. He is on a novopen at the moment. When he first started to have the finger pricks he used to cry but now he justs accepts them as part of his routine. He is amazing really.

He seems to be going through a growth spurt presently and we are having real troubles in keeping his readings down, it's a worry at the moment, as his school are finding it difficult to control.
 
Thank you so much, I have just ordered him a Rufus, I'm sure he will love it!

Yes it is a struggle at times and all we can do is hope that one day, he won't have to have his daily injections anymore.
 
Hi
Sorry to hear your nephew has to deal with all this at such a young age, it doesn't seem fair does it. Do you think his picky eating might be a control thing for him? Food can be a battle with youngsters anyway because the only real thing they can control is whether they open their mouths and swallow, but with diabetes there's a massive focus on food. I find the constant thinking about food very difficult and I have complete control over what I eat. I only mention it because your diabetes team should have psychologists who might be able to suggest some strategies to help with the food issue, and help your case for a pump. My Godson went through a stage of food refusal which his mum found very very stressful (complicated by the fact that she has Aspergers so his refusal to stick to a routine was very stressful), we eventually got a referral to a psychologist who was marvellous and introduced us to a method that worked wonders. In very simple terms the answer was don't give him food, just leave the food options on the table and let him get one. It was much more complicated than that in reality, but it worked and within a couple of weeks the food refusal had passed. Might be worth asking what help the team can provide, this can't be the first time picky eating has been an issue with a T1 child 🙂
 
Hi, thank you for your message, I hadn't actually thought of food being a control and you could well have something there. He is not very adventurous when it comes to trying new things so his diet is not that varied. This is not a massive problem but he seems to have days where he doesn't want anything much that's offered to him. It does make his parents very stressed and in turn that can upset him. I will speak to his mum to see if any help has been suggested for this issue. Definitely worth looking into, as he has highs quite a lot at the moment and that also worries us all too. Maybe a pump will help eventually? But that in itself is a big step. It does seem very unfair seeing as he's so small, it's a constant worry for all of us.
 
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