In a bit of a mess

[Lauras87]

I went to hospital last week & my hbA1c was 6.2%, I was told to relax my control as its too tight.

My doses got tweaked as well as my back ground, since then my work situation has got a lot worse

I've noticed in the night that my bloods are creeping up (up to 5 or 6mmol)

My body usually with stress drops me like a stone where was I'm going sky high now & my corrective ratio is all wrong I think due to the stress

To make matters worse, my body is now showing signs of stress big time

I want to do as the consultant says but I don't want to be sitting high at work, am thinking to put my background back & see how I go.

Would anyone do the same?

 

[Caroline]

Have you been told what your normal range should be? Most of us aim to have numbers between 4 & 7 when we test. A few people are ableto run a little higher and a few are able to run on the low side.

Can't make any suggestions for you, but it might pay you to talk to your consultant and ask him what you should be aiming for.

 

[Lauras87]

Have you been told what your normal range should be? Most of us aim to have numbers between 4 & 7 when we test. A few people are ableto run a little higher and a few are able to run on the low side.

Can't make any suggestions for you, but it might pay you to talk to your consultant and ask him what you should be aiming for.

He wants me out of the 4's & early 5's but am some times sitting at 9 due to what my ratios are now

Just want a break for a change & not to walk into work & be in tears

 

[Caroline]

As a general rule of thumb the lower you are the more likely you are to hypo. It may be that guiding your consultants advice? DO you hypo often? I hope you are able to work something out that you are comfortable with and the consultant is happy with.

 

[Phil65]

I went to hospital last week & my hbA1c was 6.2%, I was told to relax my control as its too tight.

My doses got tweaked as well as my back ground, since then my work situation has got a lot worse

I've noticed in the night that my bloods are creeping up (up to 5 or 6mmol)

My body usually with stress drops me like a stone where was I'm going sky high now & my corrective ratio is all wrong I think due to the stress

To make matters worse, my body is now showing signs of stress big time

I want to do as the consultant says but I don't want to be sitting high at work, am thinking to put my background back & see how I go.

Would anyone do the same?

Laura, the advice you've been given seems a little strange, an A1c of 6.2% is excellent.....as long as you're not having loads of hypos to bring it down from loads of highs. At the end of the day it is your diabetes and your body.....and you will know better than any D Team/Consultant what works for 'you'. Their other concern is probably with your tight control they fear that you may lose your hypo warning signs? Sometimes you feel you can't win!

 

[Lauras87]

Laura, the advice you've been given seems a little strange, an A1c of 6.2% is excellent.....as long as you're not having loads of hypos to bring it down from loads of highs. At the end of the day it is your diabetes and your body.....and you will know better than any D Team/Consultant what works for 'you'. Their other concern is probably with your tight control they fear that you may lose your hypo warning signs? Sometimes you feel you can't win!

I definitely feel like I can't win at the mo. especially with my gp now saying that 6.2% isn't proof I'm type 1 *steam comes out of ears*

I didn't have until I change my ratios etc last week have big highs (I class 8 or 9 as high), hypo wise I have them at night hence the pump next month.

 

[Abi]

If the concern is about hypo unawareness then IMHO 8 or 9 really isn't bad at all especially if it's temporary. In the ideal word we would all remain between 4 and 7.8 all the time even after meals and never hypo but personally I doubt this will ever happen
It is your diabetes at the end of the day and you should feel free to make decisions about your dose but it helps if you and the healthcare professionals are singing from the same hymn sheet and there is some mutual trust and respect

One thing to remember about adjusting lantus is that it often takes 2-3 days to reach "steady state" so if your blood glucose levels are not where you want them due to temporary stress or weather changes then correcting with quick acting may be a better option

I hope that whatever is causing the stress resolves- is this something for which you can seek help from anyone?

 

[Abi]

btw your GP is excelling his/ herself again
Are they going to stop your insulin?

 

[Lauras87]

btw your GP is excelling his/ herself again
Are they going to stop your insulin?

I had to go in to see them as they had refused insulin & testing strips.
Until a reminder that I work in law

 

[Abi]

I really think that the above warrants contacting the GMC

 

[AlisonM]

Have you told the consultant what your GP is saying? When Dr Idiot starts up on me I just refer her to my man at the clinic and she shuts up.

I've been told to try and stay between 5 and 9 in order to avoid hypos, but it's a real struggle some times as I'm often in the 4s, especially in the morning. I do rise a good bit during the day though and can hit 9 or more.

 

[bev]

I had to go in to see them as they had refused insulin & testing strips.
Until a reminder that I work in law

Hi Laura87,

I really cant believe this!😱Why would a GP refuse you life-saving medication? I am speechless. That you have a brilliant HBA1C isnt because your not Type 1 - its because you work hard at it and USE insulin - it doesnt happen by magic. Like Abi says - please do take this further - this GP sounds dangerous. Regarding your levels - I personally think its your decision - and if your not having a lot of hypo's then I am not sure why your team are advising running higher. Do you have hypo-awareness? Having said that - our team dont feel that you can gain it back just by running levels high anyway so not sure why your team have advised this.🙂Bev

 

[Lauras87]

I really think that the above warrants contacting the GMC

Abi I am considering going to the gmc

Have you told the consultant what your GP is saying? When Dr Idiot starts up on me I just refer her to my man at the clinic and she shuts up.

My consultant & dsn is fed up of my doctors saying I'm not type 1 etc

The gp said they are my primary care so I don't need a consultant, yet they know naff all about T1

Hi Laura87,

I really cant believe this!😱Why would a GP refuse you life-saving medication? I am speechless. That you have a brilliant HBA1C isnt because your not Type 1 - its because you work hard at it and USE insulin - it doesnt happen by magic. Like Abi says - please do take this further - this GP sounds dangerous. Regarding your levels - I personally think its your decision - and if your not having a lot of hypo's then I am not sure why your team are advising running higher. Do you have hypo-awareness? Having said that - our team dont feel that you can gain it back just by running levels high anyway so not sure why your team have advised this.🙂Bev

I have hypo awareness but I don't sleep very well as I'm paranoid about going hypo in my sleep & not waking up
So when I'm up in the night, I test & depending on my levels I some times eat to prevent any drops

 

[AlisonM]

I think a letter to the practice manager and the local PCT/CCG whatever they're called down there now is called for. Copied to your consultant to make it absolutely clear that the consultant is the expert and his opinion is you ARE a T1. The GP has absolutely no justification for his/her assertion that you're not and their behaviour is not only unacceptable but could be detrimental to your health if they are allowed to mess with the treatment your consultant reccommends. Not to mention the unnecessary stress it's placing on you which also negatively impacts your health. When it comes to the diabetes and it's treatment your consultant has the first and last word, your GP should take the lead from them.

Just as a matter of interest, why does the GP think you're not a T1? Assuming the blood tests confirmed that diagnosis.

 

[LeeLee]

I think a letter to the practice manager and the local PCT/CCG whatever they're called down there now is called for. Copied to your consultant to make it absolutely clear that the consultant is the expert and his opinion is you ARE a T1. The GP has absolutely no justification for his/her assertion that you're not and their behaviour is not only unacceptable but could be detrimental to your health if they are allowed to mess with the treatment your consultant reccommends. Not to mention the unnecessary stress it's placing on you which also negatively impacts your health. When it comes to the diabetes and it's treatment your consultant has the first and last word, your GP should take the lead from them.

Just as a matter of interest, why does the GP think you're not a T1? Assuming the blood tests confirmed that diagnosis.

Here's a link to the post a while back about how to do this: http://www.diabetessupport.co.uk/boards/showthread.php?t=38428

 

[Lauras87]

I think a letter to the practice manager and the local PCT/CCG whatever they're called down there now is called for. Copied to your consultant to make it absolutely clear that the consultant is the expert and his opinion is you ARE a T1.

Just as a matter of interest, why does the GP think you're not a T1? Assuming the blood tests confirmed that diagnosis.

They've had the test results from 10 years ago confirming it.

They think I'm not T1 as I've put a bit of weight on, I am trying to diet but nothing is budging

Here's a link to the post a while back about how to do this: http://www.diabetessupport.co.uk/boards/showthread.php?t=38428

Thanks leelee.

I have complained to the practice manager til I'm blue in the face.
Am ringing the gmc tomorrow for help as I've discovered that the receptionists are the ones doing the prescriptions!!!

 

[AlisonM]

They think I'm not T1 as I've put a bit of weight on, I am trying to diet but nothing is budging

That's ridiculous! In fact it's bloody (sorry) ludicrous. My weight is and always has been an issue (I'm ginormous) but no-one used it to challenge the diagnosis of 1.5 after the blood tests confirmed it. And your weight doesn't affect your T1-ness, if it did, I'm thinking your HbA would be far higher. Do they think you're developing some insulin resistance, and if they are, on what evidence? Going by the HbA, that can't be the case, especially if your consultant wants it a bit higher. Write to the GMC by all means, but copy the letter to everyone including your local MP.

 

[Lauras87]

That's ridiculous! In fact it's bloody (sorry) ludicrous. My weight is and always has been an issue (I'm ginormous) but no-one used it to challenge the diagnosis of 1.5 after the blood tests confirmed it. And your weight doesn't affect your T1-ness, if it did, I'm thinking your HbA would be far higher. Do they think you're developing some insulin resistance, and if they are, on what evidence? Going by the HbA, that can't be the case, especially if your consultant wants it a bit higher. Write to the GMC by all means, but copy the letter to everyone including your local MP.

I know it is, I'm also 6 foot tall for crying out loud. As a child I was considered abnormal due to my height.
I think my hbA is very good all things considered

I'm going to write something over the weekend depending on what the gmc say tomorrow as enough is enough. Having to be summoned to the doctors to argue yes I'm diabetic & insulin dependant took the biscuit.

 

[LeeLee]

Are the GMC phones staffed at the weekend? Their website has a complaint reporting facility. Don't expect a fast resolution, however you do it... concerns raised by NHS Trusts about consultants take months so a patient complaint about a GP won't be any less!

 

[Lauras87]

Are the GMC phones staffed at the weekend? Their website has a complaint reporting facility. Don't expect a fast resolution, however you do it... concerns raised by NHS Trusts about consultants take months!

They are supposedly open Saturday 9am to 5pm

I think given the state of the surgery, something needs raising