Petition to establish a nationally funded structured education programme

[Northerner]

The DAFNE User Action Group (DUAG) has submitted an e-petition to the Government to ask them to establish a nationally funded structured education programme for people with type 1.

The availability of structured education for people with type 1 varies across the country with many people never undergoing any form structured education. Programmes like DAFNE have been shown to improve the quality of life of people with type 1 by giving them the confidence to take more control of the condition.

DAFNE (Dose Adjustment for Normal Eating) is a structured education programme that provides people with type 1 with the skills to estimate the amount of carbohydrate in a meal and inject the correct dose of insulin.

Follow this link to sign the petition http://epetitions.direct.gov.uk/petitions/41345

If the DUAG e-petition gets at least 100,000 signatures, it will be considered for debate in the House of Commons. You can find more information about how the House of Commons deals with e-petitions on the Backbench Business Committee website.

 

[SimplesL]

I've signed up, the petition appearsa to be diabetes as a whole & not just Type 1 as I thought after reading Northerners post. Unless I've read it wrong of course always a possibility.

Education is very poor in this area with only a 4 hour overview available & no follow up. I only found out about the 4 hour workshop by "googling" Diabetes education in Oxford.

 

[Northerner]

I've signed up, the petition appearsa to be diabetes as a whole & not just Type 1 as I thought after reading Northerners post. Unless I've read it wrong of course always a possibility.

Education is very poor in this area with only a 4 hour overview available & no follow up. I only found out about the 4 hour workshop by "googling" Diabetes education in Oxford.

Interesting. No, you didn't read it wrong from looking at the petition itself, although this is the page that linked to it from JDRF:

https://www.jdrf.org.uk/news/latest...ionally-funded-structured-education-programme

...which presents it as a Type 1 petition!

 

[trophywench]

Interesting.

I think the main thing holding it back (all Types) is cash, so I think the wording is spot on.

Not the courses themselves in terms of money although obv they do cost - X man days for the HCPs, room costs as that probably has to come out of the Clinic budget and go to Estates, refreshments etc - the training of the HCPs is one of the main ones and the ongoing costs for DAFNE certainly - all the DAFNE specific materials cost a lot, ISTR ?254 being mentioned for a flipchart, ie a blank one but with the logo. Dunno for the BDEC accredited ones or any other types that may be at large.

Plus I presume but don't know ? that the people delivering it locally would need to be monitored/re-assessed - you'd hope so anyway.

No idea about the likes of DESMOND or X-pert personally but from reports I think the standard of the 'education' depends V much on which individuals deliver it and what their belief is - that we are all the same, or nobody already does anything right, everyone is of limited intelligence, HCPs unable to answer 'difficult' questions like Why can't I get test strips? or giving WRONG answers, assuming T2s would be universally horrified to have to administer jabs or test blood - whatever their partucular bag is.

There are still some people who come away from T1 courses believing they are peculiar because their carb ratio isn't 1:1 ........

So standardisation is a good thing IMHO - just as long as it's to the HIGHEST standard NOT the lowest!

 

[ch1ps]

I've signed, and posted to my facebook, twitter & linkedin.

I have got a place on a structured education course at the Royal Free in February, it's not DAFNE but along the same lines. 🙂

 

[PattiEvans]

I'd be happier to see BERTIE courses nationwide, but have signed the petition anyway - any education is better than none, which is what a lot of peeps get. I got half an hour with the dietitian and taught myself online.