My consultant lied to me

[caroleann]

I asked him about the c peptide test and he said he cant get funding for it but as soon as they get the funding i can have it but today i learnt they do have funding,how can i trust a doctor that lies.
I am now considering asking my gp to refer me to another hospital.

 

[Robster65]

Hi caroleann.

Could it have been a misunderstanding or the consultant had been misinformed ?

How did you find out the funding was in place ?🙂

Rob

 

[caroleann]

i was with the nurse today and it just came up in the conversation we were having about types and she told e there is definately funding and she said he probably didn't think i needed it,if thats the case why say i can have it if he got funding,it just feels like im being passed over all the time because apparently a gp i was with at the time of diagnosis did a blood test and said you are type 2 and put me on metformin so no one is prepared to look at it and say maybe we should do some more checks,i was diagnosed when i was in my 30's im now 47 i haven't responded well to diet metformin or any of the other drugs they have tried, im now carb counting on 42 units levemir split dose and novorapid and still im struggling to get in to single figures,sorry i know im moaning and i do realise these tests are expensive.

 

[Steff]

Carole that is terrible if thats the case, as you say theres supposed to be trust between a patceint and there doctor, if he has lied this way then I would be out the door like a shot

 

[Mark T]

...and i do realise these tests are expensive.

Yes, expensive, the urine c-peptide creatinine ratio (UCPCR) that can be used to diagnose Type 1 costs all of ?10.50

 

[caroleann]

He told me ?300+😡

 

[Northerner]

He told me ?300+😡

Even if it was ?300, it's still cheap if it means that you get appropriate treatment. Unfortunately, some HCPs still have the attitude that we are all stupid and should just accept what they say

 

[trophywench]

Ah, it's the blood test he is talking about, which is mega-expensive. So he was telling the truth.

Apparently the urine test is only accurate in certain cases, I just forget which cases! - but anyway, I think if you've been diagnosed for quite a while, you need the blood test for them to be able to tell.

Some consultants do not understand how WEARING it is, to not know exactly what 'Type' you are.

It may well make no difference to your actual treatment.

You might not actually care which type you are - but you just want to know, for a fact.

 

[mcdonagh47]

i was with the nurse today and it just came up in the conversation we were having about types and she told e there is definately funding and she said he probably didn't think i needed it,if thats the case why say i can have it if he got funding,it just feels like im being passed

so it could be the Nurse that is wrong not the Doc lying. Or they could be talking about different things or different funding programmes.
If you are already on insulin the regime isn't likely to change anyway but it would be nice to know what Type you are.

 

[everydayupsanddowns]

If it was the consultant just trying to excuse or avoid the tricky conversation it was handled badly. Since you are already on basal:bolus perhaps he sees no benefit (if it wasn't just a mixup/mistake of course) but its not really thinking through the patient's eyes is it. These days we are supposed to be treated/acknowledged as a partner in our own care...

 

[Vicsetter]

Whatever is the case T1 or T2 I can't think that there is anything better than the basal/bolus regime you are on.

If you are T2 then 42 units of levemir is on the low side, have you been adjusting it? If it was me I would be increasing it by 5 units every 3 days until it got down (do the morning one so as to avoid any chance of hypos).
Maybe some of our T1s on levemir can comment on the dosage from a T1 point of view.

 

[mcdonagh47]

Whatever is the case T1 or T2 I can't think that there is anything better than the basal/bolus regime you are on.

If you are T2 then 42 units of levemir is on the low side, have you been adjusting it? If it was me I would be increasing it by 5 units every 3 days until it got down (do the morning one so as to avoid any chance of hypos).
Maybe some of our T1s on levemir can comment on the dosage from a T1 point of view.

as a matter of interest hoe much Levemir are you on VS ?
I was led to believe that for a T2 the basal should be half their weight in kilograms e.g. 80kg = 40units.

 

[caroleann]

as a matter of interest hoe much Levemir are you on VS ?
I was led to believe that for a T2 the basal should be half their weight in kilograms e.g. 80kg = 40units.

At the moment 42 units but they are looking at raising it
Sorry just relealised this post wasn't for me.

 

[trophywench]

T1 - approx 56kg - 18u Levemir, Novorapid:carbs ratio 1u to 10g.

Now on pump - 10.13u TDD basal; bolus 1u to 13g carbs .......

 

[Vicsetter]

as a matter of interest hoe much Levemir are you on VS ?
I was led to believe that for a T2 the basal should be half their weight in kilograms e.g. 80kg = 40units.

Ha!, I think not. Before I switched to split Levemir and Victoza I was on 140 units (80/60). I think the 'half your body weight rule' is the starting point. Obviously if your insulin resistance is higher than normal then you will need more insulin.

If you look here:http://medweb.bham.ac.uk/easdec/prevention/lantusnotes.htm
it gives tables for how to adjust your dosage, I'm afraid I took control of my treatment and my GP was happy to go along with how I managed, so I got my readings down to a good level within a couple of months.

 

[sofaraway]

Might be there is funding for those they need to look into their diagnosis under specific circumstances. So the nurse is telling the truth that funding can be avaliable.

The consultant doesn't have funding to test everyone who requests it, or he might be interested in checking. He could have be saying that if he ever had the funding to check for everyone he would do it for you.

so both are telling the truth?