Hi everyone and thanks for the support.
Right. Where to start. Well, HbA1c now 12! So still creeping up from less than 3 weeks ago when it was 11.6. He did allow me and his sister to go in to the consultation with him.
He did admit he is using next to no Novorapid, saying initially it was due to feeling uncomfortable at school testing and injecting as he is in a new form (moved to 6th form) and with a new set of friends, and then said that as it became habit to 'forget' at school, that 'forgetting' has just spiralled out of control.
He was asked how he feels, he said he was fine on the whole. The consultant and nurse asked if he was tired, he replied no, but then she asked us if we had noticed any changes and as he had been asleep (again) on the sofa yesterday early evening, he couldn't really argue when we both pointed that out. We did say it had been quite a frequent occurence of late. He admitted to drinking lots more, but isn't going to the loo excessively.
Though she didn't point out any serious consequences, the consultant did get across that this can't continue and we have to find a way forward that suits him. She did ask if he gets support from family and of course he said yes, too much, but she did point out that it's only because we care. She pointed out that if he starts to bring things back in line I am bound to back off - which is so true.
She then gave him the choice of 3 ways forward - either sticking with the Lantus and Novorapid on MDI, twice a day mixed insulins, or the 3rd option which is what he has gone for, a mixed insulin at breakfast with an 8 hour timespan, with a view to not having to inject at school, then Novorapid for evening snacks/dinner, and to stick with the Lantus at bedtime. He is to stick with his 25u of Lantus, 1:10 ratio with Novorapid, and 20u of the new mixed one at breakfast time. Can't remember the name of that one, we have put a new prescription request in to the GP tonight, so hopefully Wednesday or Thursday we can pick it up.
His DSN came out for a chat with us, and my son was in and out going for blood tests and his retinopathy screening, and the DSN had two other families hovering around so she was telling us bits and giving us a new pen (as well as ordering one on prescription but said a spare one is always good to have) but was also answering other peoples' questions, so it was all a bit messy in the end. She is phoning us on 3rd Jan to see how things are going, and we have to go back and see just her on 24th Jan, but not sure when we will be back in clinic as no other appointment was made. We were told to get the prescription request in immediately and get him on it before Christmas.
I have since thought of questions, which I will contact her about but wonder what you all think. Could he at weekeneds if he wanted discard the new mixed insulin and revert to just Novorapid and Lantus, or is that a dangerous game to play? They didn't go too much into the timing issues with the new mixed one, but if he lies in bed until 11 on a Sat/Sun, that insulin would then take him up to 7pm when we would have already eaten our main meal. Obviously on a school day he would have it around 7.30 so by 3.30 it would be out of his system. He works afternoons at weekends, so I would feel a little uneasy about him perhaps going hypo at work (and she did say he will need to have a snack a couple of hours after lunch on this new insulin to avoid an afternoon hypo). I feel a little uneasy, just because it's new.
Of course, in the consultation he promised to do everything they are asking, once we got home and his dad asked how he got on he got all shirty again. He has calmed down again now, but we know not to mention anything. I will make sure I have all sorts of hypo food tucked away in our weekend bag over the Xmas holidays, but of course there is no guarantee yet that he will take the insulin - I just hope he does.
Is anyone else on this regime? Any advice please over the mixed insulin? I will get Ragnar Hanas out tomorrow for a quick read, but as I said, I can't remember what the new insulin is called.
Oh, and DSN hadn't got my emails. They have apparently changed one letter in the email address! Great! Well at least I know. When we had a chance to have a quiet whispered word we managed to tell her a little of what has been going on, but I guess they could work a lot of that out from his HbA1c result.
So......just got to wait and see what happens from here. I am sure I will be back in a few days with an update.
Thanks for listening again!
Tina
) I knew he would, he just needed to sound off at me at the time. I left the letter with instructions on his computer keyboard and the pots in the bathroom, pointedly putting one on the toilet lid each morning 
