It seems that every day is a constant battle and like you I really could do without the extra stress! I have to admit to sending a rather sarcastic email back to the doctors asking if they could advise me how to make the test strips last longer! I almost suggested that maybe a quick wash would make them reusable?!?!?!
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Screening for type 1 diabetes: We now have a new forum section which is for parents who, after having their child screened for type 1, have received a positive result that at some stage their child will be diagnosed with type 1 diabetes. Where possible, please do offer your support and experiences of having a child diagnosed. https://forum.diabetes.org.uk/boards/forums/screening-for-type-1-community-chat.59/
Just diagnosed
- Thread starter NatashaA
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It seems that every day is a constant battle and like you I really could do without the extra stress! I have to admit to sending a rather sarcastic email back to the doctors asking if they could advise me how to make the test strips last longer! I almost suggested that maybe a quick wash would make them reusable?!?!?!
elaine1969
Active Member
- Relationship to Diabetes
- Parent of person with diabetes
Its disgusting. It makes my blood boil ! It would be really dangerous if they allowed you to run out of strips. I always feel the need to have a couple of boxes for back up anyway, when Kate picks up a cold/virus and her blood sugar rises I end up doing much more frequent blood tests.
I remember clearly how difficult it is at the beginning. I used to lie in bed night after night with tears rolling down my cheeks. I remember having a feeling of falling backwards while I was lying there. Just try and take each day at a time and eventually you will realise it is starting to get easier. I think unless you have had a child diagnosed with a serious life long condition (or of course have one yourself) you simply cannot understand what it feels like. You are not only having to deal with the diagnosis but also the day to day difficulties of living with diabetes. It is such a lot to take in but eventually it becomes second nature. (though I still think it is bloody unfair!!)
I remember clearly how difficult it is at the beginning. I used to lie in bed night after night with tears rolling down my cheeks. I remember having a feeling of falling backwards while I was lying there. Just try and take each day at a time and eventually you will realise it is starting to get easier. I think unless you have had a child diagnosed with a serious life long condition (or of course have one yourself) you simply cannot understand what it feels like. You are not only having to deal with the diagnosis but also the day to day difficulties of living with diabetes. It is such a lot to take in but eventually it becomes second nature. (though I still think it is bloody unfair!!)
grahams mum
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- Parent of person with diabetes
I Was Always Running Out Of Strips Then I Followed Northerner Advice And Now We Have 250 Every Months
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
4 weeks in
I realised today that I haven't cried since Tuesday - that's 5 whole days!! PROGRESS, PROGRESS!😉
We have managed to have a friend for tea and almost a whole Rainbow meeting without me being there. Also four days without the school ringing me at work or Abigail's dad.
I realised today that I haven't cried since Tuesday - that's 5 whole days!! PROGRESS, PROGRESS!😉
We have managed to have a friend for tea and almost a whole Rainbow meeting without me being there. Also four days without the school ringing me at work or Abigail's dad.
Northerner
Admin (Retired)
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- Type 1
Pumper_Sue
Well-Known Member
- Relationship to Diabetes
- Type 1
Fantastic, so pleased to see you sounding more positive now 🙂
Take one day at a time and things will be fine.
Having a bad day? Ok scrap today there's always tomorrow and it will be better.
Obviously I have no idea how you feel as a parent with a young child with diabetes. But from the childs point of view (diagnosed @ 4 1/2) I just accepted things as I didn't know any different at that age. I suspect you have heard and read all the horror stories, so hope this good story will cheer you up. I'm starting year 47 on insulin soon, have no complications and nothing stops me doing what I want to do. 🙂
Well done, great to hear you are feeling brighter and more positive. Don't be surprised if it rears its ugly head again though sometime soon and bites you on the bum - it has the habit of doing that. There will still be heaps to learn, but knowledge is a good thing.
We are nearly a year down the line, though my son is much older (16), but it took me months to be able to sleep a whole night through without waking and worrying about him. He seemed to handle it so much better than us at the start.
It really does get easier though, you feel more confident with every passing week, and I guess you just come to terms with it. If you do have another low spell though, don't feel guilty, let it out. I do feel us parents, particularly mums, carry a huge burden with this, and sometimes we need to vent our feelings. This place is brilliant for that.
Keep smiling, and keep doing what you are doing, you are doing a great job between you.
We are nearly a year down the line, though my son is much older (16), but it took me months to be able to sleep a whole night through without waking and worrying about him. He seemed to handle it so much better than us at the start.
It really does get easier though, you feel more confident with every passing week, and I guess you just come to terms with it. If you do have another low spell though, don't feel guilty, let it out. I do feel us parents, particularly mums, carry a huge burden with this, and sometimes we need to vent our feelings. This place is brilliant for that.
Keep smiling, and keep doing what you are doing, you are doing a great job between you.
Hi
A belated hello from me....my daughter was diagnosed 12 weeks ago she is only 3... I am finding it very difficult to cope and continually think about the why factor..even photos around the house is upsetting...husband takes it in his stride but I'm finding things very difficult..life resolves around diabetes....Im sure over time it will get better but it doesn't stop how I feel. I have now asked for come counselling and doc thinks I have depression...I'm trying to turn myself around and take a day at a time. We are awaiting a pump so fingers crossed that will happen soon. Hypos and unknown blood levels scare me so much...anyway not on this too much but really its good to know to know sometimes other people are out there.
A belated hello from me....my daughter was diagnosed 12 weeks ago she is only 3... I am finding it very difficult to cope and continually think about the why factor..even photos around the house is upsetting...husband takes it in his stride but I'm finding things very difficult..life resolves around diabetes....Im sure over time it will get better but it doesn't stop how I feel. I have now asked for come counselling and doc thinks I have depression...I'm trying to turn myself around and take a day at a time. We are awaiting a pump so fingers crossed that will happen soon. Hypos and unknown blood levels scare me so much...anyway not on this too much but really its good to know to know sometimes other people are out there.
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
12 weeks is still a time when you are still coming to terms with things, and people adapt in different ways and at different times. I hope that the counselling helps and please do come here any time and let us know how you are feeling - it can help just to write your feelings down and there are lots of people here who will know just how you are feeling. {{{Cayers}}}
elaine1969
Active Member
- Relationship to Diabetes
- Parent of person with diabetes
Cayers, I think 12 weeks in I was a wreck, give it time, it does get easier. Hypos scare the hell out of me too - particuarly the bad ones, I hope you manage to get a pump sorted soon, it makes you feel much more in control. I would go for the counselling, it certainly can't do any harm, you are mourning for the healthy little girl you have lost and it so difficult. It must be incredibly tough to deal with at such a young age. My daughter was watching old family videos the other day and I found myself getting upset watching them, she was so happy and healthy with no cares in the world, I wonder if it was in her then just waiting like a time bomb. I think we all ask why us, why my child, it is so unfair but it honestly does get easier with time. I am so proud of my daughter, she has shown such maturity and strength, she has been through bad times but she has come out the other side smiling. Take care, sending hugs your way xx
elaine1969
Active Member
- Relationship to Diabetes
- Parent of person with diabetes
fencesitter
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
One of the best things we did when William was newly diagnosed was meet up with a lovely lad of 22, T1 since the age of 10, good friends with my nephew. He was really smashing, so supportive and encouraging to William. Your kids are a bit young to benefit from that sort of thing right now, but it did me the world of good too, seeing him managing so well (more than just managing - making a real go of life). If you could hook up with someone further down the line I think it would make you feel a bit better 🙂
As quite a quiet person, I am being extremely brave next week. Abigail and I are attending our first support group event. I would rather be sucked down a drain pipe than meet 19 other parents with children that I don't know but deep down I know that it is the right thing to do especially for Abs, who hasn't complained or moaned about anything......YET!!!
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
I hope everything goes well 🙂 I think you'll find it a big relief to be able to talk freely with other people who know just what you are going through - let us know how things go 🙂
Ellie Jones
Well-Known Member
- Relationship to Diabetes
- Type 1
You'll be fine and it's surprising how much an ice breaker diabetes can be, I'm not great going into new places meeting new people at all.. But over the years that I've gone to various diabetic meeting without knowing anybody or the place where the meeting being held, I've always found that within 5 minutes you'll all nattering like old school friends catching up with what's happened since you'll left...
Just got back from our first support group event. Well we survived and if I'm really honest it was quite a nice evening! Met a couple of other mums that kept me from being 'the new mum' and feeling like a gooseberry all evening, whilst Abs was straight in there with all the other children with no encouragement and she loved it all.🙂
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Steff
Little Miss Chatterbox
- Relationship to Diabetes
- Type 2
Nat so pleased it went well good to hear x
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