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Freestyle Libre 2 Question

R

RichardT1

New Member
Relationship to Diabetes
Type 1
Pronouns
He/Him
I’ll start by saying that I’m fairly new to diabetes—I was diagnosed with Type 1 about six weeks ago. I recently started using the Freestyle Libre 2, and I have a question: is the Libre known for being inaccurate with low readings? Sometimes it shows that I’m low, but when I check with a finger stick, my blood sugar is actually higher. It’s frustrating because those low readings get logged. Realistically, I’m not having that many lows where I actually need to treat for a hypo—it’s more that the sensor seems inaccurate at times. Is this normal?
 
Lucyr said:
Just add a comment with your fingerprick value on libre app
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I’ve been adding notes alongside the low readings with the numbers. This might be a silly question, but will my nurse actually see the notes I’m making? :DI know she can see the graphs and data, but I’m not sure about the notes.
 
RichardT1 said:
I’ve been adding notes alongside the low readings with the numbers. This might be a silly question, but will my nurse actually see the notes I’m making? :DI know she can see the graphs and data, but I’m not sure about the notes.
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Yes. Log into libreview yourself and you’ll see what she sees? What’s the time under 3.9%? If it’s 4% or less then even though it’s higher than reality it’s still in target anyway
 
Hi @RichardT1 and welcome to the forum - sorry to hear about your recent diagnosis -let us know if you need any help with anything - Sensors are very good but not so accurate at very high or low readings - lower ones show even lower, higher ones show even higher - and at night you can get "compression lows" if you lay on it - I look at the trend arrows more than the numbers themselves and yes pop a comment on the app with a "truer" reading - not sure whether the notes are visible to HCPs though - and if is only 3.9 for a short time it won't record as a low glucose event anyway
 
Thanks a lot for the help, everyone. I realized that lying on the sensor can make the readings drop, so I switched arms. I also didn’t realize there was a time log for when the lows get recorded. I’m still fairly new to all of this, but I’ll keep making notes when it happens so I can share them with my nurse.
 
 
All CGMs are designed to be most accurate at "normal" levels plus there is the "compression low" phenomenon.
Therefore, it is recommended to check all highs and lows (including hypo recovery) with a finger prick before making corrections. Unless you are obviously feeling hypo.

Have you seen the thread about CGM limitations? https://forum.diabetes.org.uk/boards/threads/cgm-limitations-and-precautions.108188/unread
As long term CGM users, we become familiar with these but, sadly, DSNs do not seem to mention any of them so leave us to work it out ourselves through experience of others. Which is the great thing about the forum .
 
RichardT1 said:
… but I’m not sure about the notes.
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Yep, the nurses, etc definitely can see the notes made. I recall a couple of months when things weren’t going too well diabetically and I made lots of notes swearing away. There was no judgement from the staff at my next clinic appointment, but a brief remark was made with a big smile about how they can read all my notes .
 
counsellorneil said:
Yep, the nurses, etc definitely can see the notes made. I recall a couple of months when things weren’t going too well diabetically and I made lots of notes swearing away. There was no judgement from the staff at my next clinic appointment, but a brief remark was made with a big smile about how they can read all my notes .
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Oops 😳
 
Thanks for the links and information! I’m going to check them out. I really appreciate all the guidance and words of wisdom. It’s definitely challenging, especially since I’m still new to diabetes
 
counsellorneil said:
Yep, the nurses, etc definitely can see the notes made. I recall a couple of months when things weren’t going too well diabetically and I made lots of notes swearing away. There was no judgement from the staff at my next clinic appointment, but a brief remark was made with a big smile about how they can read all my notes .
Click to expand...
I used to do this with the Contour app. After a high or low is resolved it asks “do you know the reason for this?” When it was a mystery or just one of those things, I would reply “no (expletive) idea!” No one ever saw it but it made me feel better!
 
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