• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Finding my way - Healthcare and Medication

Ged

Member
Relationship to Diabetes
At risk of diabetes
I see a lot of concern on this thread about medication and seeking advice about side effects, etc, so my advice is please, please see your Doctor, have faith in your Doctor. i drove myself mad seeking advice on medical and drug-related issues online with the so-called medical and health online clinics. I'm sure some have benefited from this, but if we don't trust and use our Doctors, then the only advice and support you will get will be online and sitting and talking to a doctor will be a thing of the past
 
I read the patient information leaflet with any prescribed drugs so I have a good perspective of reported possible side effects. Fortunately I have not suffered any major side effects to date.
In an ideal world your doctor would have a good understanding of potential side effects but their knowledge seems to be lacking sometimes when you are taking a combination of several drugs. My husband had terrible side effects for several months with his medication. He was taking half a dozen different tablets. Despite talking to his doctor he wasn't explained that it would improve or he could take an alternative. He seriously considered not taking them at one point.
I agree your doctor is a better choice than on line consultation but doing your own research from reputable sources is always useful.
People here will share their own experiences which may help with some questions.
 
My doctor isn't involved in my diabetes care, even though she was the one who ordered a range of blood tests including HbA1c.

The "diabetes team" at my surgery poached the lot, and because the only thing they were interested in was HbA1c, I waited 8 weeks before querying why I hadn't had a call about the rest of the results. When they grabbed me for their little fiefdom, it automatically cancelled the GP's reminder to contact me about the other results, some (kidney and liver particularly) which were out of normal range.

So I can't just "have faith in my doctor", no matter how good she is, because she works within a system that is atrociously badly run.

I'm still waiting for the diabetes team to provide any useful input. I was diagnosed mid-April, and they don't want to see me until mid-July. That's 3 months with an HbA1c of 113, fasting BG of over 20, an initial prescription for meds without any advice on diet to keep me safe, and 8 weeks of only Metformin to keep me from DKA, eye and foot damage. Everything I've learned to manage my diabetes and keep my feet and eyes for a bit longer has HAD to come from the internet because in some areas of the UK, there's no-one else willing to supply it.
 
My experience is somewhat akin to that of @debs248. The system is atrocious. Individual HCPs generally want to do the right thing, but hindered by the administration.

We moved 30 miles to be closer to my daughter; her suggestion and very much our convenience. The Surgery we left was small and personal, but being forced by NHS England to amalgamate with 3 other small practices; we were increasingly frustrated by the increasingly poor service and mishaps from the shared processes from this phased joining up of 4 practices.

Our new facility is a large single Medical Centre, serving the whole town. I have a named Dr, but can never get an app't with her. So the suggestion from @Ged falls at the first hurdle: getting to see any Dr is a challenge, but I have twice been given an app't with Health Care Assistants who can't write prescriptions, without getting their decision signed off by someone else the next day. It's hard to see, never mind trust, your Doctors if you can't speak with your named GP or even see the same GP at successive appointments.

Our large Medical Centre seems to have a significant backlog of reports and letters that are delayed in their processing. Worse, once a report or external letter is finally processed it appears on my records as a 2 line "Docman" entry, registering its existence on their system on the date of registration, but absolutely no detail about why, who, what or when. I gather the GP's can see a link and read the detail, but I can't. A phone call asking something that needs an administrator to look at my records, attracts a further identical "Docman" entry. It's recording that my NHS records have been accessed, but I can't see why. So I now have to make a calendar entry that I called the MedCen and why, so I can explain to myself why I have some of the 37 Docman entries in the last 12 months. Some of those clerical Doccman records are purely internal MedCen paper or electronic processes.

I had a Urology Consult a week ago for a relatively minor but necessary matter. The Consultant I saw was difficult to understand, quietly spoken with a heavy accent. He was thorough and I felt he'd understood well that there were 2 problems, one relating to a Prostate procedure from 3 yrs ago in a Hospital from a different Trust, doing a procedure that his Trust didn't do. This procedure seemed to be failing and was now having a consequence for an otherwise unrelated Dermatology problem. He recommended I try to reach back to the other Hospital and see if they could do a corrective procedure and possibly resolve both issues. I choose to wait for the Urology Consult report, to be sure I'd correctly understood the Consult. It arrived 7 days later, I had understood and so I tried to get a phone app't with my named GP to discuss the practicalities of firstly whether a 2nd referral would get me back in front of the original Consultant and secondly whether the recent suggestion that both issues would be resolved together was a good strategy. It felt sensible: pause, reflect, understand where this might all take me - before trying to reach back and get 2 different procedures done simultaneously; or even whether I should defer the 2nd procedure before being sure the original problem was fixed!

But the MedCen administrator wouldn't take my request for a GP appointment without being able to connect it to the recent report that I'd received by post. Apparently they had not yet received this, even electronically. They wanted to connect my original Uroogy referral request, created then from a phone call with a duty GP, not my named GP. So no possibity of finding a date ahead of that referral report being on their system. I hand carried a copy of the report to the MedCen 15 mins later. But was told that once the report was logged onto the system, it would be passed to the duty GP who would automatically process the 2nd referral and I wouldn't need a GP appointment, nor would the duty GP contact me first! I appreciate that this might seem helpful and kept this moving forward - but it just isn't that simple. Meanwhile the Receptionist, who took a copy of the recent report for the administrator to put on their records, confirmed that his procedures could not include making a GP appointment booking - even though they now had a copy of the report provided by me; I had to phone in on Monday, or raise an e-consult request on Monday between 7-9am and I would be placed with whichever GP was available at the first possible date and time, after their triage process. You can't make these things up - they are so farcical. No concept of keeping the Patient involved, never mind even when the Patient is asking to speak with their named GP about the referral report.
 
I have not seen or spoken to a GP for about five years. Once COVID hit they all seemed to go into hiding and have never returned to previous surgery hours. Years ago the waiting room would be full of people, but now if I go up there for any reason, there's about two people there.

İf you want an appointment now, you have to speak to a "care coordinator" aka receptionist who decides whether you need an appointment, phone call, visit to the pharmacy etc. They used to do a weekly sit and wait session on a Monday afternoon, but that's been stopped too, due to over subscription (wonder why?)

A couple of years ago I had an excruciating bout of sciatica, I couldn't even get a phone call back for almost 48 hours, luckily one of my work colleagues had some zapain and brought it to my house, otherwise I don't know what I'd have done, as the slightest movement had me screaming in pain.

Supposedly they're too busy to see patients, but they all have time to do sessions at the private GP surgery in the village, where for the princely sum of £120 you can get a thirty minute appointment the same day.

I'm extremely lucky to have an absolutely brilliant practice nurse looking after my diabetes. She's a gem and I hope she never leaves!
 
I think @silver minion has got it right with her 'reputable sources' comment. There are too many quack sites out there peddling this, that or the other and often with contradictory statements.
 
I read the patient information leaflet with any prescribed drugs so I have a good perspective of reported possible side effects. Fortunately I have not suffered any major side effects to date.
In an ideal world your doctor would have a good understanding of potential side effects but their knowledge seems to be lacking sometimes when you are taking a combination of several drugs. My husband had terrible side effects for several months with his medication. He was taking half a dozen different tablets. Despite talking to his doctor he wasn't explained that it would improve or he could take an alternative. He seriously considered not taking them at one point.
I agree your doctor is a better choice than on line consultation but doing your own research from reputable sources is always useful.
People here will share their own experiences which may help with some questions.
I'm sorry for that and understand how damaging this is, but the rot in the NHS started a long time ago, good doctors are being poached by the private sector and the massive financial influence from the American pharmaceutical companies are slowly cripleing and I'm fear full that if we stop trusting and start criticizing the NHS it only gives feul to those who want to see the NHS fall into the private sector then goodbye to care and accountability and financial security just like American health care I have used the NHS and my Doctor for 25 years now ( central London) I have had surgery at UCL treatment at Queen Mary - phisio at st Charles and some great doctors at my surgery maybe I've just been lucky so it sadens me when I read story like yours
 
Last edited:
I see a lot of concern on this thread about medication and seeking advice about side effects, etc, so my advice is please, please see your Doctor, have faith in your Doctor. i drove myself mad seeking advice on medical and drug-related issues online with the so-called medical and health online clinics. I'm sure some have benefited from this, but if we don't trust and use our Doctors, then the only advice and support you will get will be online and sitting and talking to a doctor will be a thing of the past

Correct.

The possible side effects of the drugs Doctor's prescribe are usually available on the NHS website as well as the MHRA, BNF and drug manufacturers websites.

What medication has your Doctor prescribed? In the first instance prediabetics are generally advised to treat their condition by diet and exercise to achieve a target weight loss and HbA1c, such as less than 42 mmol/mol, agreed with their Doctor or diabetic nurse. This is a World Health Organisation protocol for most newly diagnosed prediabetics and T2 diabetics (TD).

Unfortunately guidance on diets, treatments and remission for prediabetes and T2D from the NHS and other official agencies available to Doctors, Diabetic Nurses and their patients is behind the times and even non-existent. Our surgery provides a information containing a questionable Heart UK Healthy Eating Guide and five Diabetes UK booklets.

My own treatment was based on advice from Dr Michael Mosley, Professor Roy Taylor (a medical doctor as well as an eminent scientist), and the doctor (radiologist) who diagnosed my fatty liver and advised me to 'diet', but not my GPs. Thanks to Prof Taylor's research fatty liver is now recognised as a condition underlying prediabetes and a precursor to T2D, not to mention cardiovascular disease, liver disease and other serious conditions.

You will be better off asking specific questions in this forum.
 
I'm sorry for that and understand how damaging this is, but the rot in the NHS started a long time ago, good doctors are being poached by the private sector and the massive financial influence from the American pharmaceutical companies are slowly cripleing and I'm fear full that if we stop trusting and start criticizing the NHS it only gives feul to those who want to see the NHS fall into the private sector then goodbye to care and accountability and financial security just like American health care I have used the NHS and my Doctor for 25 years now ( central London) I have had surgery at UCL treatment at Queen Mary - phisio at st Charles and some great doctors at my surgery maybe I've just been lucky so it sadens me when I read story like yours
I am going to be a bit controversial here. The alternative to the NHS, as it is currently financed, is not necessarily the American system. Part of the problem we face is that every time anyone mentions that we might want to relook at NHS funding, everybody screams, "US system" - other funding models are available (see some of the European models), and ours is failing fast. While we spend less than (% of GDP (OECD)) than other Western European systems, our outcomes are also worse (especially for preventive care, GP care and cancer), which suggests that we could or should be spending a bit more - but we live in a country that hates paying taxes. Nevertheless, the NHS is far from perfect, and we should, in fact, never stop challenging it, but we need to stop treating it like a religion and some sort of sacred institution, where doctors are gods and nurses are angels.

I have had some pretty depressing diabetes experiences with the NHS, which should not have happened. I got all of my information about diabetes from this site, not my doctor. I had an argument with an NHS dietitian about nutrition after I wanted advice on eating low-carb. She just gave me the eat-well plan, refusing to accept that there were any other options and calling me "silly" for suggesting there might be. I got my dietary advice from this site, not my doctor.

Just for clarity, I support universal healthcare and being free at the point of consumption.
 
im sorry but the US Pharmasutical companys are major funders of the NHS, and policies involving their supply of drugs and contracts in land purchases for private clinics and poching doctors from the NHS this is well documented ---the NHS is being deliberately underfunded so It collapses and then replaced with private health care which is what the American pharmasuticl companies want to have a major health care ( private) base I in the UK
 
Last edited:
I'm sorry you have had a horrible experience with your Doctor and the NHS, The Doctors and nurses are underfunded and underpaid, working long and unsociable hours, but do an amazing job and just like everyone with health challenges, they also need encouragement and support ---Thanks
 
That's 3 months
It is common to leave a gap of at 3 months between HbA1c tests, since this uses the blood cells from the previous 3 months to determine the result.
It is a pity that they did not give any information about diet, I hope that you have found that tapping into the wealth of experience on here has helped you and that this proves successful in the next test.
 
Everything I've learned to manage my diabetes and keep my feet and eyes for a bit longer has HAD to come from the internet because in some areas of the UK, there's no-one else willing to supply it.
How did you sort the 'wheat from the chaff'?
 
It is common to leave a gap of at 3 months between HbA1c tests, since this uses the blood cells from the previous 3 months to determine the result.
It is a pity that they did not give any information about diet, I hope that you have found that tapping into the wealth of experience on here has helped you and that this proves successful in the next test.
To clarify, I wasn't complaining about 3 months before a repeat HbA1c, I was complaining about 3 months before seeing a member of the diabetes team, without any guidance about how to try and bring down BGs from the 20s apart from a 5 week prescription for a drug that should not be taken without a meal containing carbs, which I only learned about from forum members.

I'm still waiting for  any NHS advice apart from "eat another meal per day so you can take this medicine". I am not exaggerating.
 
How did you sort the 'wheat from the chaff'?
By sticking to diabetes.co.uk, diabetes.org.uk and the nhs website. If they all agree on something I'll accept it. Anything less universally agreed I'll raise a question on the forum and if there's consensus from long-term members I'll tend to accept that advice.

I'm not a medic but I have a scientific background and a robust bull**** detector. Don't see what else I can do really.
 
I'm sorry you have had a horrible experience with your Doctor and the NHS, The Doctors and nurses are underfunded and underpaid, working long and unsociable hours, but do an amazing job and just like everyone with health challenges, they also need encouragement and support ---Thanks
im sorry but the US Pharmasutical companys are major funders of the NHS, and policies involving their supply of drugs and contracts in land purchases ...

I didn't understand the point you made with your first reply. I also think there is a problem with the slow move to privatisation, and I think (as I wrote), underfunding was an issue. What I said was that the move to an American system is not inevitable, and there are other systems we should consider to prevent the encroachment.

Your second post also confused me. I said part of the problem is that the NHS is seen as a sacred cow, and in particular, nurses and doctors are seen as unimpeachable. I didn't say they were bad or did not deserve more money or encouragement, I said they were not above criticism, so please stop with nurses and doctors being some kind of oppressed subset of the workforce. The fact that most people view the NHS as untouchable is a significant obstacle to progress. Too many people refuse to discuss, and the debate always goes the same way.

Every time funding is brought up, the response is a resounding insistence that the US system is the only alternative if we don't maintain the NHS exactly as it is. Absolute rubbish. The US pharma companies (alongside British companies and others) are playing a greater part in healthcare, I am not arguing with you on that, I don't like it either. The reasons, however, are more complex than someone wants to collapse the NHS. It is related to demographics, reduced funding, and some systemically poor organisation. However, you will notice that US influence is less pronounced in Germany, France, and other European countries - does that not tell you something? It should do.

There are some serious problems with the NHS, but I believe we need to move beyond treating the NHS as an institution and its employees as untouchable. If we keep doing that, it will fail. The NHS has some huge issues to face in the next quarter century: a dramatic change in demographics and the associated issues that come with that. Within 20 years, it is estimated that 25% of the population will be over 65, with all the associated increases in health needs, and a smaller population supporting it. Do you honestly think that the current NHS, the way it is currently funded and organised, can cope? I don't, so we need to think about it now.

I have gone way off-topic, for which I apologise.
 
im sorry but the US Pharmasutical companys are major funders of the NHS, and policies involving their supply of drugs and contracts in land purchases for private clinics and poching doctors from the NHS this is well documented ---the NHS is being deliberately underfunded so It collapses and then replaced with private health care which is what the American pharmasuticl companies want to have a major health care ( private) base I in the UK
The vast majority of public NHS funding comes from general taxation and National Insurance contributions. A small proportion of funding (1% of the total Department of Health and Social Care budget in 2023/24) comes from patient charges for services such as prescriptions and dental treatment. The level of NHS funding in a given year is set by central government through the Spending Review process and annual Budgets (source: The Kings Fund).
 
im sorry but the US Pharmasutical companys are major funders of the NHS, and policies involving their supply of drugs and contracts in land purchases for private clinics and poching doctors from the NHS this is well documented ---the NHS is being deliberately underfunded so It collapses and then replaced with private health care which is what the American pharmasuticl companies want to have a major health care ( private) base I in the UK
The NHS is not underfunded. It currently has a budget higher than the GDP of Portugal.

It is poorly managed and used as a political football. It is a shoddy institution with some questionable people being employed within it at all levels; from GPs and nurses, to armies of administrators with priorities to themselves rather than the patients they are paid to serve. It has diabolical health outcomes compared to the rest of the world.
 
The NHS is not underfunded. It currently has a budget higher than the GDP of Portugal.
UK's GDP is about 10 times bigger than Portugal's, and spending ~10% of GDP on healthcare is hardly unusual. That's roughly what Portugal spends, for example.
 
The vast majority of public NHS funding comes from general taxation and National Insurance contributions. A small proportion of funding (1% of the total Department of Health and Social Care budget in 2023/24) comes from patient charges for services such as prescriptions and dental treatment. The level of NHS funding in a given year is set by central government through the Spending Review process and annual Budgets (source: The Kings Fund).
Felt I had to post but first have to declare an interest I have worked for a lot of years for two of the largest US Pharma Companys. I agree with Martin about his point about NHS funding and not in any way suggesting that everything about these Corporations is beyond reproach but their prime raison d’ etre is to research,develop and market drugs to patients via healthcare providers.
All drugs go through comprehensive regulatory procedures and are evaluated by independent bodies like the FDA and EMA/MHRA and continually are subject to post marketing monitoring for side effects which may or may not prove to be related to the medication.
I fully understand that others may take an opposite view and that is entirely up to them but personally I prefer to take the advice/ input of a qualified healthcare professional rather than some Dr Google sites which yes can be very useful and informative but others I would not trust at all.As long as you are comfortable that you can distinguish between the two then fine but suggest you stick to professional advice.
 
Back
Top