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Question for Omnipod users

Strangely Grey

New Member
Relationship to Diabetes
Type 1
Hi all
I've been using Medtronic pumps since 2009 and am now on HCL. I'm thinking of switching to Omnipod 5 HCL when my warranty ends this year.

Just wondered, for those of you who have made the same switch, how you've found Omnipod 5, any regrets about switching, have you maintained or improved your control, and is there anything you wished you'd known about it before you switched.

Thanks
 
Welcome to the forum
There have been quite a few discussions about OmniPod 5 looping on the forum.
This is one that jumps out
You can find more if you type "Omnipod 5" into the Search box at the top of every page.

I am not using it today but I have been reading the threads with interest as I prefer a patch pump (I am using another patch pump today). However, I have heard (and read) that it is not very "aggressive" with its looping which means that it would result in a higher HBA1c than I currently achieve with "manual pumping" (no HCL).
I have also noticed that the reports of looping with Libre has not been positive. Dexcom seems to be better but I would need to self fund.

Take a read and feel free to ask more questions.
 
Hi all
I've been using Medtronic pumps since 2009 and am now on HCL. I'm thinking of switching to Omnipod 5 HCL when my warranty ends this year.

Just wondered, for those of you who have made the same switch, how you've found Omnipod 5, any regrets about switching, have you maintained or improved your control, and is there anything you wished you'd known about it before you switched.

Thanks
I only started the HCL with O5 and Dexcom G7 a week ago, so very early days and the system is still learning (and I am too!). It's my first experience of HCL so can't compare with other systems.
Going well so far and it''s great to let it get on with things a lot of the time.
Lowest target you can set is 6.1. I'd prefer to set a lower target overnight. It generally heads back down to 6.1 but sometimes takes a while at the moment.
It's not coping too well with exercise at present (activity mode sets a target of 8.3) but, to be fair, I do tend to fall very fast with exercise and had to juggle things a lot with Omnipod DASH. I probably need to move to activity mode earlier in future.
Sensor and pod only losing connection occasionally and have reconnected without input from me (except for one time).
It's worth knowing that you're not tied in to a 4 year contract with Omnipod so if it doesn't suit you there is an opportunity to change.
 
Hi @Strangely Grey.

Just giving @PhoebeC, @mark king and @nonethewiser a knock - they use the O5. I know @PattiEvans didn't like it and has switched to a different pump.

I started HCLing with the O5 and G6 on Jan 28 this year. For me personally, it is just as much work as a non-HCL pump. My TIR has improved slightly BUT my quality of life has not. I still have to keep a close eye on things and my bg is still like a roller coaster (yes, I DO pre-bolus!).

The algorithm has struggled to learn my basal needs, eg at around 11pm my bg drops into the hypo zone but the O5 seems unable to adjust rhe basal to stop this from happening. As a result, I need to set Activity mode from 10-12pm to avoid a hypo.

Activity mode works fine in the morning. In the afternoon it's pretty useless - for afternoon exercise I switch to Manual mode and set a TBR.

I'm going to give it 6 months and then ask if I can go back to the Omnipod Dash.
Mind you, I don't have any regrets about switching (I would've regretted not trying it tbh) and there isn't anything I wish I'd known before switching.

Good luck!
 
It’s been mixed for me and I am still making my mind up.

I started in December with the freestyle libre 2 plus, I had been on the 2 / plus and the dash for about 18 months and I had pretty good control on that and HB1Ac again the best it’s been. My issues on that where around my menstrual cycle and rugby match days, the plan was moving to this would fix those issues. I loved the set up with the dash as I had worked out different backgrounds settings for those times, I had ovulation, menstruation and rugby match day settings plus my normal days, so I swap those when I needed, which worked great for me.

I had so many issues with the libre 2+ connecting with the O5 that it was basically just the same system as before. Until I switched over to Dexcom G6 I was in manual mode at least 40% of the time.

Since G6 connection has been great, I’ve had 1 funny sensor but that’s it since Feb and it worked for 8/10 days so fine. And I believe my DSN have moved a few other patients to G6 as the 2+ did the same for them too. So much so that they have now set up a standard process (not approval each time / each patient from the consultants) for easier switch over.

I don’t find the pods very good quality, either O5 or the dash, only last week I had another leaky one. I think they are cheaply made, same as Omnipod. Their customer service is pants. But they have replaced all faulty. I’d say I’ve had at least 10% faults across the time using any Omnipod.

So standard days (not menstrual or rugby matches) it’s great, anything none standard it’s slow, it’s not worked out my menstrual cycle and rugby matches I am still working out what to tell it. And think I might go back into maunal mode for matches this season. You can’t tell it like won’t the dash that you need a different background set up, well you could change all the insulin reaction, correction and target glucose settings but actually it’s a faff and it would take a lot of effort, time and calculations

It takes about 3 days to work any new trends which is slower than it would take me, I don’t think it’s as a smart as a person. And you can’t tell it about faults so if you’ve had one that’s leaky or a wayward sensor with faulty readings you can’t tell it to ignore those few days, where we would know as people that all that extra insulin wasn’t in my system so I shouldn’t count that in my daily insulin calculation. It’s slow, it doesn’t feel very clever, I am not sure it’s getting any smarter.

Sleep is loads better though. I think since I've moved over to G6 so now in my 4th month I’ve only had 1 or maybe 2 diabetes impacted nights. Which is incredible and actually a huge win, I would say the weighting of this win is high. First time I’ve slept well in nearly 20 years consistently.

I said I would give it 6 months (now it’s working fully) this will be August and then compare the results, data, blood and other factors and decide if I stay HCL or go back to dash.
My TIR is about the same as it was on the dash, some days I don’t even think my diabetes and I only need to tell it my carbs, exercise and it stays in range and other days it’s all consuming and takes up loads of effort and is all over the place.

This is my first HCL and I was on the dash before that so I can’t compare to another HCL.

I like the patch pump element for me, which I think impacts noticing the cannula or blocked issue, you can’t tell quickly, and they are cheap as they are only made to last 3 days and cheaply. So that’s a down side but I didn’t fancy tubes, or cannulas, and I like being able to wear it when I play rugby.

Some diabetes teams allow the O5 set up very flexibly so that if it’s doesn’t work there’s other options where I know the other options can come with time commitments. So that’s a factor too. A lot of people have been able to test HCL with the O5.

I suggest you work out what you like about your current set up, negatives and compare.
 
It’s been mixed for me and I am still making my mind up.

I started in December with the freestyle libre 2 plus, I had been on the 2 / plus and the dash for about 18 months and I had pretty good control on that and HB1Ac again the best it’s been. My issues on that where around my menstrual cycle and rugby match days, the plan was moving to this would fix those issues. I loved the set up with the dash as I had worked out different backgrounds settings for those times, I had ovulation, menstruation and rugby match day settings plus my normal days, so I swap those when I needed, which worked great for me.

I had so many issues with the libre 2+ connecting with the O5 that it was basically just the same system as before. Until I switched over to Dexcom G6 I was in manual mode at least 40% of the time.

Since G6 connection has been great, I’ve had 1 funny sensor but that’s it since Feb and it worked for 8/10 days so fine. And I believe my DSN have moved a few other patients to G6 as the 2+ did the same for them too. So much so that they have now set up a standard process (not approval each time / each patient from the consultants) for easier switch over.

I don’t find the pods very good quality, either O5 or the dash, only last week I had another leaky one. I think they are cheaply made, same as Omnipod. Their customer service is pants. But they have replaced all faulty. I’d say I’ve had at least 10% faults across the time using any Omnipod.

So standard days (not menstrual or rugby matches) it’s great, anything none standard it’s slow, it’s not worked out my menstrual cycle and rugby matches I am still working out what to tell it. And think I might go back into maunal mode for matches this season. You can’t tell it like won’t the dash that you need a different background set up, well you could change all the insulin reaction, correction and target glucose settings but actually it’s a faff and it would take a lot of effort, time and calculations

It takes about 3 days to work any new trends which is slower than it would take me, I don’t think it’s as a smart as a person. And you can’t tell it about faults so if you’ve had one that’s leaky or a wayward sensor with faulty readings you can’t tell it to ignore those few days, where we would know as people that all that extra insulin wasn’t in my system so I shouldn’t count that in my daily insulin calculation. It’s slow, it doesn’t feel very clever, I am not sure it’s getting any smarter.

Sleep is loads better though. I think since I've moved over to G6 so now in my 4th month I’ve only had 1 or maybe 2 diabetes impacted nights. Which is incredible and actually a huge win, I would say the weighting of this win is high. First time I’ve slept well in nearly 20 years consistently.

I said I would give it 6 months (now it’s working fully) this will be August and then compare the results, data, blood and other factors and decide if I stay HCL or go back to dash.
My TIR is about the same as it was on the dash, some days I don’t even think my diabetes and I only need to tell it my carbs, exercise and it stays in range and other days it’s all consuming and takes up loads of effort and is all over the place.

This is my first HCL and I was on the dash before that so I can’t compare to another HCL.

I like the patch pump element for me, which I think impacts noticing the cannula or blocked issue, you can’t tell quickly, and they are cheap as they are only made to last 3 days and cheaply. So that’s a down side but I didn’t fancy tubes, or cannulas, and I like being able to wear it when I play rugby.

Some diabetes teams allow the O5 set up very flexibly so that if it’s doesn’t work there’s other options where I know the other options can come with time commitments. So that’s a factor too. A lot of people have been able to test HCL with the O5.

I suggest you work out what you like about your current set up, negatives and compare.
Hi that's very useful especially about the quality of the pods and how it copes with different situations. I'm very grateful
 
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