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Doesn't help

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spell

Well-Known Member
I think I need to mention I am not a social person, I can be crass,rude, inappropriate,direct, embarrassing with a filter permanently off, it's just how I've become the longer I live with type 1(which I blame for becoming like this) help offered is seldom forthcoming,last diabetes psychologist I was seeing just up and left without warning with no one to take over, which has made me care even less.
See a different doctor/nurse every time so have to explain my problems over and over again, you're offered only CBT and it don't work with me,I don't get it!
This does not help in clinic and seems they just want rid of me asap so I'm just not gonna go to any appointments anymore.
I know i need help, it's never the right help.
Die of 43 years of this This? I'm not fussed
 
What would the right help be for you @spell ? Emotional support? Practical support to improve your blood sugars? Anti-depressants? A great DSN?
 
Your mood/mental wellbeing will, improve greatly if you lowered your blood sugars. High numbers make the world look very black.

You seem to be blaming everyone else for your problems and not helping yourself :(
 
I think I need to mention I am not a social person, I can be crass,rude, inappropriate,direct, embarrassing with a filter permanently off, it's just how I've become the longer I live with type 1(which I blame for becoming like this) help offered is seldom forthcoming,last diabetes psychologist I was seeing just up and left without warning with no one to take over, which has made me care even less.
See a different doctor/nurse every time so have to explain my problems over and over again, you're offered only CBT and it don't work with me,I don't get it!
This does not help in clinic and seems they just want rid of me asap so I'm just not gonna go to any appointments anymore.
I know i need help, it's never the right help.
Die of 43 years of this This? I'm not fussed
Some people just don’t respond well to those types of therapy. I’ve had CBT and treatment for PTS which involved what I can only describe as a kind of hypnosis, problem is I could never relax enough for it to work ! Medication can work for most, have you tried any? I’ve had to really work hard on myself, I’ve had some really dark times that lasted years but I’ve always wanted to get better, you got to want to buddy. It might seem like we are all cool with being diabetic along with the array of other conditions we suffer, but not 1 of us given the opportunity would chose not to have perfect health. We aren't kidding ourselves, or in denial just doing the best we can, our days aren’t all sunshines and rainbows but they aren’t and dog **** on the door mat either.
 
@spell what are you looking for from this forum?
Many people look for advice whilst others look for a chance to chat with other people who understand their situation, occasionally we have a rant and often we have a laugh. Overall we try to help each other out.
 
@spell it’s so hard to find good support right now and I can understand you being burnt out with trying. You BG won’t help your mood. Fixing that won’t suddenly make you a different personality but you will feel better in yourself. Is there a friend or family member who can go with you to your next diabetes appointment and help advocate for you to get the support you need in getting your BG into a better place.

One of the hardest things with long term conditions is that medics tend to presume you know how to deal with it when actually management has changed significantly in 43 years and you might actually benefit from being treated as a newbie and given the access to carb counting courses, having discussions about sensors, pumps etc as if you were newly diagnosed.

We’re here cheering you on. You can be as cantankerous as you like.
 
I think I need to mention I am not a social person, I can be crass,rude, inappropriate,direct, embarrassing with a filter permanently off, it's just how I've become the longer I live with type 1(which I blame for becoming like this) help offered is seldom forthcoming,last diabetes psychologist I was seeing just up and left without warning with no one to take over, which has made me care even less.
See a different doctor/nurse every time so have to explain my problems over and over again, you're offered only CBT and it don't work with me,I don't get it!
This does not help in clinic and seems they just want rid of me asap so I'm just not gonna go to any appointments anymore.
I know i need help, it's never the right help.
Die of 43 years of this This? I'm not fussed
You sound a lot like a number of people I know including me sometimes. I hope you won't mind me suggesting you maybe look into the possibility you may be neurodivergent in some way. I had no idea until very recently that I was in fact autistic. It never occurred to me because I had the wrong idea about how being autistic 'looked' but once I researched about it - a huge amount of stuff fell into place and made sense and it was amazingly helpful in then finding strategies that worked for me in all the various areas of my life and health.

Knowing and accepting the sort of person I was - with my various preferences and quirks - meant I was able to stop beating myself up for not being like everyone else and instead was able to tailor my activities and life to suit me instead of trying to twist myself into someone else. I am not sure if that makes sense. Take care and maybe if you can - try and work out what you would like from your life and then perhaps you can start working out how to get there - step by step,
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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