type3c diagnosis and treatment discussions

[everydayupsanddowns]

Good to hear @drguiom

Hope you find the Libre informative.

 

[SB2015]

Glad to hear that you have now got the Libre @drguiom , and hope that that helps you to make decisions about any changes to your doses that might help you.

Let us know how you get on.

 

[s.e london]

Hi @drguiom. I’m type 3c, if you’re looking for type 3 it will bring up American sites about Alzheimer patients with diabetes. Totally different to type 3c, which I’m assuming you mean. That is, diabetes caused by surgery/ damage or disease of the pancreas. I’m the surgery type, fire away with questions. I’ll try and help, but as indicated type 3c isn’t straight forward and treatment may differ amongst us. Can you tell us a little bit about how you were diagnosed with type 3c diabetes, what treatment you’re currently on. Insulin, Metformin or other? Are you on Creon to replace digestive enzymes? Elaine.

hello[s.e london] 18 months ago approx i had pancreatitus spent 3 days in hospital took me of metformin and put me on nova mix 30 70 . 10 units in morning 12 units in the evening later i was put on creon 5 capsules a day . my question is i have developed pains in my calves could that be the contents of the insulin
aspart.

 

[s.e london]

18 months ago approx i had pancreatitus spent a few days in hospital,took me off metformin slow release and on novamix 30.70 10 units in morning 12 unitsin the evening together with 5 creon over the day .my question is, i have developed pains in my calves could that be the contents of the insulin aspart

 

[Faith_exx]

I can't find a specific group for type 3

anyone else here with this type? Looking to share experience with treatment and management

I’ve only just found out I have type 3c from this forum. I was under the impression I was type 1 for the last 14 years. I didn’t even know it existed. I have 5% of my pancreas left after it was removed because it was producing too much insulin for me to survive. I actually ended up dying 5 times.
I use an insulin pump to manage mine and take creon with every meal. I’ve recently discovered the libre 2 and finished my free trial. I’ve already bought another and waiting for it to arrive, I’m hoping to get it on the nhs. How did you become type 3? What do you do to manage it?

 

[Faith_exx]

18 months ago approx i had pancreatitus spent a few days in hospital,took me off metformin slow release and on novamix 30.70 10 units in morning 12 unitsin the evening together with 5 creon over the day .my question is, i have developed pains in my calves could that be the contents of the insulin aspart

I keep getting pains where my set changes go, could this be the same thing? Mine is like a shooting, sharp, burning pain but it comes and goes.

 

[s.e london]

I keep getting pains where my set changes go, could this be the same thing? Mine is like a shooting, sharp, burning pain but it comes and goes.

the pains in my calves was not there when taking slow release metformin . the pain in my legs both legs up to and including knee caps only started after taking insulin coincidence i dont know. by the way i was told that slow release metformin has a higher than normal concentration of ndma and has been removed from metformin the slow release part i believe.

 

[Faith_exx]

the pains in my calves was not there when taking slow release metformin . the pain in my legs both legs up to and including knee caps only started after taking insulin coincidence i dont know. by the way i was told that slow release metformin has a higher than normal concentration of ndma and has been removed from metformin the slow release part i believe.

Oh it might not be the same then.
Sorry to hear about the pains your going through I couldn’t imagine that. It’ll be something for me to mention to the hospital when I get in. Is there anything they were able to suggest or do about the pains your getting?

 

[s.e london]

Oh it might not be the same then.
Sorry to hear about the pains your going through I couldn’t imagine that. It’ll be something for me to mention to the hospital when I get in. Is there anything they were able to suggest or do about the pains your getting?

unable to get to see the doctor face to face explained as best one can but all in vain. i said that a phone call to explain is in appropriate . why ? .was the most intelligent question i have heard. the pain is there and dont hurt ,looks inflamed here not there . well i cant see where your pointing to on the phone was the explanation realy was my reply . you see there is no permanant doctor only locums and they only seem available on fridays but never the same one twice. so my joining the diabetes forum may well find some intelligent answers not idiotic guesses all the best with your hospital engagement ,and i am sure all will be well in safe hands.

 

[Faith_exx]

unable to get to see the doctor face to face explained as best one can but all in vain. i said that a phone call to explain is in appropriate . why ? .was the most intelligent question i have heard. the pain is there and dont hurt ,looks inflamed here not there . well i cant see where your pointing to on the phone was the explanation realy was my reply . you see there is no permanant doctor only locums and they only seem available on fridays but never the same one twice. so my joining the diabetes forum may well find some intelligent answers not idiotic guesses all the best with your hospital engagement ,and i am sure all will be well in safe hands.

Yeh I’ve not seen a diabetic specialist in 2 years so can relate to them being c**p. My doctors didn’t acknowledge I was diabetic till I asked to be put in specialist care only then did they refer me to a hospital. I’ve found a lot out from the forum so I don’t blame you, definitely more than what doctors know. I hope you’re able to get it resolved and get a face to face meeting. I don’t feel like they understand how frustrating and serious it can be