Hi Hope everyone is going to enjoy these forums. I am Type 1 and have been for almost 40 years. Always resisted doing things like joining Diabetes groups just got on with it with the help of my diabetic nurse for any support needed. I don't know anyone else with Type 1 but recently meet 3 people at work who are Type 2. I have a long history of Hypos which isn't good. Anyway nice to meet you all and hope you find out about new things and any help needed.
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Hi from a newbie
- Thread starter Fio62
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Thank you
Thank you for your reply, I was on a pump for 5 years went back to injections just over 2 years ago but my Heath care team advised I should go back on a pump but a different one. I have very low Hypo systems until I am below 4. I've been know to function below even 3. I do use Libre 2 which has been a life saver.
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Welcome to the forum from another long-term T1.
Historically I always preferred to run ‘on the low side’ until about 10 years ago when I realised that my warning signs had taken a bit of a hammering over the years and weren’t as reliable as they had been.
With a lot of work, learning, experimentation and a bit of luck and a following wind (plus a switch to insulin pump), I managed to ditch the vast majority of my ‘low level’ lows and all of my severe hypos. My warning signs are much improved, but I really try to avoid any readings below 4.0 if I possibly can - while also not wanting to stray too high either.
I never found the ‘run a bit higher’ strategy worked for me as I could plummet from double figures into hypo without somehow magically stopping at 4.2. One of the best changes I made recently was to take precautionary action when I get in the high-mid 4s which gives any small glucose nudges I take a little more time to get going.
Glad you have access to Libre 2 - those alarms are a real bonus, especially overnight!
Historically I always preferred to run ‘on the low side’ until about 10 years ago when I realised that my warning signs had taken a bit of a hammering over the years and weren’t as reliable as they had been.
With a lot of work, learning, experimentation and a bit of luck and a following wind (plus a switch to insulin pump), I managed to ditch the vast majority of my ‘low level’ lows and all of my severe hypos. My warning signs are much improved, but I really try to avoid any readings below 4.0 if I possibly can - while also not wanting to stray too high either.
I never found the ‘run a bit higher’ strategy worked for me as I could plummet from double figures into hypo without somehow magically stopping at 4.2. One of the best changes I made recently was to take precautionary action when I get in the high-mid 4s which gives any small glucose nudges I take a little more time to get going.
Glad you have access to Libre 2 - those alarms are a real bonus, especially overnight!
Rob Oldfield
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Hi @Fio62 and welcome aboard. What made you switch back from pump to injections?
Rob Oldfield
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Ditto here. I've got the low alarm on my Libre 2 set at 4.5. Hopefully to get a chance to head off the hypos before they happen.
Thank you
I had a problem with either the pump or infusion set just after the 1st lockdown and I was in hospital for a while DKA with no staff with any knowledge first time I had DKA for 40 years. They had no PPE remember this is April 2020 and no infusion sets suitable for my pump. Hence I came out of hospital back on insulin injections.
Thank you for your reply. I never found run a bit higher’ strategy worked for me either. I lost my driving License due to lack of Hypo warning signs only 4 years ago after running low for over 30 years. Things 40 years ago were so different pretty brutal really. I was told any high bloods I would get complications which now just isn't true. I think best thing every is the overnight protection of the Libre 2 bleeping, Thanks for your help
Rob Oldfield
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That does sound like you were let down quite badly. Can I ask who your health care team is? Local GP or more specialised types from your hospital? I'd say it sounds like the amount of hypos you're having should be justification for you to be at the top of the list for getting new kit including closed loop system. That's not something that I've tried yet but, as far as I understand it, should be good at avoiding hypos.
Hi Specialist Nurse at the hospital who consult with the Consultant when needed. They have agreed I should have the new pump which I don't see as being of much use without the closed loop system that is why I am trying to get so much information before I try another new another insulin input system. Thank you for your reply
Hi Fio62! I’m glad you’ve joined the forum. Even after all the experience you’ve had over the 40 years being diabetic, it’ll be nice to connect with a group of people who “get” it. I sincerely hope you get to go back on to pump therapy and get the closed loop system. And get to do so quickly.
Thank you yes I am finding this group helpful
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