• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

2 for the price of 1... bargain, right?

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Dump64

New Member
Relationship to Diabetes
Type 3c
Spent 10 days in hospital with pancreatitis, left hospital with pancreatitis diabetes!

Not sure what caused the pancreatitis in the first place, I dont drink, like, ever, my ex was an alcoholic and the effects of alcohol, quite frankly, scare me, and 99% tastes like c**p anyway, so wtf is the point?

So yeah, I'm David, um, fan of metal music. Lifelong gamer. I guess I can add, "I cant eat Mars Bars!", to my lists of "quirks" now huh?

Anyway, that's me.
Take care of yourselves!
 
Welcome @Dump64 🙂 I eat Mars Bars and other chocolate. The trick is to choose your time wisely eg before exercise.

Sorry about your pancreatitis. I don’t know what could have caused it, but you’re not alone. There are a number of Type 3cs here, some of whom have joined very recently. @eggyg and @Proud to be erratic are just two of them.

What insulins are you on?
 
Welcome to the forum @Dump64

And to the exclusive club of the pancreatically challenged!

Sorry to hear about your brush with pancreatitis, and the little present it gave you. We have a fair few Type 3c’s on the forum, and a few gamers too.

Make yourself at home, ask away with any questions, or simply use the forum as an understanding place for some good old fashioned moaning. We ‘get it’ here, and know just how fickle and annoying diabetes can be to live with 🙂
 
Hello @Dump64 and Welcome to the forum.

Welcome also to the T3c club. You are part of a very small group of diabetics. To put that in perspective about 90% of all those with Diabetes Mellitus (DM) are T2 (their bodies make insulin but resist that insulin, leading to very elevated Blood Glucose (BG)) without medications or insulin, in conjunction with taut carb control. About 10% are T1 (they have an auto-immune condition and simply don't make any insulin), so take insulin by injection (or pump) and broadly can eat what they wish. T3 is for people whose pancreas has become damaged, from all sorts of circumstances and T3s are less than 1% of all those with DM; T3 comes in different flavours, from 'a to k', and T3c includes those people who get diabetes after pancreatitis, along with people like me who have little or no pancreas after surgery. I had pancreatic cancer and surrendered all of my panc'y. T3cs are rare!

This can cause difficulties, since most medical professionals have never even heard of T3c and can be very ignorant of the consequences and problems that this diagnosis can create. You are insulin dependent and should be treated as akin to T1. This is important. There are very few guidelines from the National Institute for Clinical Excellence (NICE) that even mention T3c. Most A&E clinics won't know that T3cs are insulin dependent. So if your medical notes refer to you as T1 gracefully accept that; if they say T3c, make sure that any medical professional knows that means you are insulin dependent - don't assume that they will already know this! Being akin to T1 means you should receive all the care that T1s should receive, which includes being under the care of a Hospital based Specialist Team and you should have direct access to a Diabetes Specialist Nurse (DSN). As you adjust to your new world of living with DM, you might well need support and guidance from your DSN - I certainly did.

I'm going to pause here, but leave you knowing that this forum is full of people with centuries of accumulated experience of managing DM. Feel free to ask questions - any questions (none are stupid). If you are happy to share a bit more with us, it would help to know:
How much of your pancreas has gone? I had a total pancreatectomy; others have partial removal and get some of the residual pancreatic functions. Your discharge paperwork from hospital should make this clear for you.
What insulins are you on? I was discharged on Multiple Daily Injections (MDI) with both a long lasting basal (then Levermir, now Tresiba) and short acting bolus (Novarapid) for all food.
Do you have Libre 2?
Are you carb counting or are you currently on fixed insulin doses before meals?

Sorry to bombard you with questions. You have a steep learning curve ahead of you, but it is manageable (we seem to survive!!) and there is lots of help and support from folks here, should you need it.
 
Welcome from another virtual none drinker with the pancreas of a chronic alcoholic. Musically of a punk/post punk persuasion.
 
Hi and welcome @Dump64 from another Type 3c caused by acute pancreatitis.

Hope you're recovering well from the pancreatitis. It's a nasty condition and takes a while to get over.

Are you taking insulin? NICE guidelines for Pancreatitis do mention Type 3c and we should have access to Type 1 tech including Libre, which makes monitoring glucose levels much easier.
If you're taking insulin Mars bars should be fine with the correct dose.

If you don't have much functioning pancreas you are likely to be lacking digestive enzymes as well. Type 3cs are generally taking replacement enzymes such as Creon. Is that the case for you?

Hope you're being looked after well. I was lucky that my local hospital is a specialist pancreatic centre and so the diabetes team see a lot of 3cs but that may not be the case in other hospitals.

Take care of yourself and feel free to ask any questions.
 
Thank you everyone, I'm on metformin currently.

The thing that blows my mind is how insanely high in sugar a high in fruit diet actually!
 
Hello @Dump64 and Welcome to the forum.

Welcome also to the T3c club. You are part of a very small group of diabetics. To put that in perspective about 90% of all those with Diabetes Mellitus (DM) are T2 (their bodies make insulin but resist that insulin, leading to very elevated Blood Glucose (BG)) without medications or insulin, in conjunction with taut carb control. About 10% are T1 (they have an auto-immune condition and simply don't make any insulin), so take insulin by injection (or pump) and broadly can eat what they wish. T3 is for people whose pancreas has become damaged, from all sorts of circumstances and T3s are less than 1% of all those with DM; T3 comes in different flavours, from 'a to k', and T3c includes those people who get diabetes after pancreatitis, along with people like me who have little or no pancreas after surgery. I had pancreatic cancer and surrendered all of my panc'y. T3cs are rare!

This can cause difficulties, since most medical professionals have never even heard of T3c and can be very ignorant of the consequences and problems that this diagnosis can create. You are insulin dependent and should be treated as akin to T1. This is important. There are very few guidelines from the National Institute for Clinical Excellence (NICE) that even mention T3c. Most A&E clinics won't know that T3cs are insulin dependent. So if your medical notes refer to you as T1 gracefully accept that; if they say T3c, make sure that any medical professional knows that means you are insulin dependent - don't assume that they will already know this! Being akin to T1 means you should receive all the care that T1s should receive, which includes being under the care of a Hospital based Specialist Team and you should have direct access to a Diabetes Specialist Nurse (DSN). As you adjust to your new world of living with DM, you might well need support and guidance from your DSN - I certainly did.

I'm going to pause here, but leave you knowing that this forum is full of people with centuries of accumulated experience of managing DM. Feel free to ask questions - any questions (none are stupid). If you are happy to share a bit more with us, it would help to know:
How much of your pancreas has gone? I had a total pancreatectomy; others have partial removal and get some of the residual pancreatic functions. Your discharge paperwork from hospital should make this clear for you.
What insulins are you on? I was discharged on Multiple Daily Injections (MDI) with both a long lasting basal (then Levermir, now Tresiba) and short acting bolus (Novarapid) for all food.
Do you have Libre 2?
Are you carb counting or are you currently on fixed insulin doses before meals?

Sorry to bombard you with questions. You have a steep learning curve ahead of you, but it is manageable (we seem to survive!!) and there is lots of help and support from folks here, should you need it.
Um, I havent lost any of my pancreas as far as I'm aware lol um, I'm on metformin tablets, and thsts all I can answer really. You're knowledge seems massive, thank you for sharing with me, I enjoyed reading this
 
Um, I havent lost any of my pancreas as far as I'm aware lol um, I'm on metformin tablets, and thsts all I can answer really. You're knowledge seems massive, thank you for sharing with me, I enjoyed reading this

There’s an overview of Type 3c and many of the things that can be involved in that classification here


But it’s still quite a new concept, and some GPs / practice nurses may not yet have come across the information 🙂
 
Spent 10 days in hospital with pancreatitis, left hospital with pancreatitis diabetes!

Not sure what caused the pancreatitis in the first place, I dont drink, like, ever, my ex was an alcoholic and the effects of alcohol, quite frankly, scare me, and 99% tastes like c**p anyway, so wtf is the point?

So yeah, I'm David, um, fan of metal music. Lifelong gamer. I guess I can add, "I cant eat Mars Bars!", to my lists of "quirks" now huh?

Anyway, that's me.
Take care of yourselves!
Hello and welcome to the club, there's quite a few 3c's on the forum.
Please be assured you can eat mars bars if you so wish, just take enough insulin and creon to cover what you eat.

Oops just seen you are on metormin, perhaps make that mini mars bar then and go for a long walk to burn it off 🙂
 
Um, I havent lost any of my pancreas as far as I'm aware lol um, I'm on metformin tablets, and thsts all I can answer really. You're knowledge seems massive, thank you for sharing with me, I enjoyed reading this
So my apologies for wrongly making that assumption. It does change the whole nuance of what I said about being T3c. The metformin is to help improve your sensitivity to the insulin that you are making, to allow that insulin to "go further". And, of course, you are not insulin dependent (or at least no more than any other human being - its a clumsy phrase!).

What it does mean is that you will need to manage your diet as if you are T2 and take steps to control your carb intake to avoid overloading your pancreas. So you (correctly) should be avoiding the Mars bars, along with many other high carb foods. It's all about carbs, not just sweet foods.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top