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Gastroparisis and neuropathy

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Haylz90

Haylz90

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Relationship to Diabetes
Type 1
Hi there I'm wondering if anyone suffer with both neuropathy and gastroparisis and can maybe give me some advice on coping with the pain and sickness I. On several meds for both but I still have flare ups of both many thanks ks and any advice is greatly appreciated
 
That sounds very unpleasant and difficult for you @Haylz90 I think @AJLang has suffered with gastroparesis. There are others too. You could try a Search top right of this page to get up some older threads while you’re waiting for more responses here.
 
If it helps for advice im on Fiasp insulin thru the t slim x 2 pump I use the dexcom g6 for monitoring my glucose levels I also take pregabalin 100 mg 2x a day, 20mg of amastripaline, omepazole 2x a day, folic acid, calcium 3x a day metocloprimide 3x a day doluxatine, amlodopine and a statine i also take paracetamol and oxycodone that I can't remember the name of sorry if any are spelt wrong I have trouble with spelling
 
I’m sorry, but you appear to be a victim of relentless polypharmacy, taking tablets to counteract the side effects of other tablets. And taking both of an either/or choice. How did you get in this situation? It’s doubtful it was a hospital clinic.

Whatever else is going on, someone with some sense needs to take a look at your medication and jettison at least a third. Then at least you’ll be able to feel more normal.

This is just a personal opinion, but any doctor who prescribes oxycodone for regular medication should be taken out and shot. It’s killed thousands in the US, and is “black boxed” by the FDA, who control meds in the US.

The one thing you mustn’t do is drink any alcohol, and don’t stop taking any tablets without medical advice.

(I used to be a doctor, now happily retired)
 
Haylz90 said:
Hi there I'm wondering if anyone suffer with both neuropathy and gastroparisis and can maybe give me some advice on coping with the pain and sickness I. On several meds for both but I still have flare ups of both many thanks ks and any advice is greatly appreciated
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Hi @Halyz90 I've had gastroparesis for eleven years and I'm on a much wider range of medications than you for a number of things - each of which I definitely need.
Unfortunately with gastroparesis there seems to be an expectation that even with medication we will suffer with flare-ups of pain and sickness - although I'm fortunate that despite the tests showing severe gastroparesis I tend to have severe nausea rather than actually being sick. Have you tried the approach of having five or six small meals/snacks a day rather than larger meals to help manage the gastroparesis and have you adopted the recommended low fat/low fibre diet? Apologies if you have already tried these. Do you have a diabetes consultant who specialises in gastroparesis or any other consultant for the gastroparesis, you should also have been referred to a dietician. If not I would suggest that you try to find one of these consultants and get referred to them. There used to be one at Leicester but I'm not sure if she is still there. They can help with alternatives if you're having problems with the effects of eating - although alternatives are very limited e.g. replacement drinks for meals. The other most important thing is to keep your blood sugars as near to normal as possible - this will definitely help with the gastroparesis although I find that I have to do frequent micro bolusing and lots of blood testings/scanning with my Libre to avoid/minimise hypos. If you haven't already been prescribed the Libre 2 with alarms I would strongly suggest asking your hospital DSN for one of those. I hope that some of what I've written helps.
 
Hi I am in the UK and the consultant and pain team have worked together to put me on all these meds as I have kidney disease I can't take any other pain killer apart from paracetamol that does absolutely nothing I may aswell have tictacs
 
Can the intestinal neuropathy be an early symptom of diabetes - or caused as a result of longer term higher sugars (say a couple years)? Just wondering as whilst I’ve had IBS my entire life I was always the urgent kind. Couple years ago this started to change to the point that I am now chronically constipated for no apparent reason. I just don’t move things through the system anything like I used to. I am on codeine but this is not frequent regular use and minimal dose. In the absence of any other cause maybe my nerves are just paralysed in there. Will ask GP when I get a chance.
 
VickyHW said:
Can the intestinal neuropathy be an early symptom of diabetes - or caused as a result of longer term higher sugars (say a couple years)?
Click to expand...

I think autonomic neuropathy, gastroparesis etc generally develop over time as long term complications, rather than early on at diagnosis - but diabetes does seem to delight in breaking its own rules

Hope you manage to get some relief from your symptoms @Haylz90
 
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