Hi, t1 of 33 years joining the forums!

[PurpleSky]

Hi everyone,

I’m not new to diabetes UK having become a lifetime member in 1987 at my diagnosis!
But for some odd reason I’ve never found these forums during my google searches.

I’m a T1 diabetic, diagnosed age 10 which was (aham) far too many years ago now for me to comfortably remember 😉
in addition to the t1, i have hypothyroidism brought on whilst pregnant with my son Oops
Busy working full time, looking after my young family and trying to keep a handle on the ups and downs of this disease!

PurpleSky

 

[stephknits]

Hi and welcome PurpleSky. Type 1 too, but am a late starter as was diagnosed at 42. Glad to have you here

 

[PurpleSky]

Hi and welcome PurpleSky. Type 1 too, but am a late starter as was diagnosed at 42. Glad to have you here

I imagine that is a lot harder Stephknits! You will have had so long to get used to life not having to watch those numbers. Tbh though, i think it makes us all stronger people 🙂

 

[stephknits]

Pros and cons i suppose. Can definitely remember life pre diabetes, but am glad to have done uni / travelling / having kids without it. My oldest was diagnosed at 16, which seemed a rubbish age, just when you are spreading your wings. Although not so much with lockdown!

 

[rebrascora]

Hi and welcome from me too.

Like Steph I am another late starter with Type 1 at 56, so I am just 2 years down the line with insulin. It certainly is a learning curve and I definitely remember life when I could (and did) eat anything without having to think. Feel much fitter and slimmer and healthier now though, so not complaining too much!

Which insulin's are you on and are you MDI or a pump? Do you have Freestyle Libre or are you finger pricking? The forum is great for learning about new technology and picking up tips to improve management, which we all know is an ongoing process, so it is good that you have found it. I hope you find it as beneficial/invaluable as I have over the past 2 years.

Look forward to hearing more from you and perhaps learning from your extensive experience.

 

[Ljc]

Hello, welcome from me too.

 

[trophywench]

Diagnosed aged 22, 49 years ago. I jab a day and collecting my wee!

 

[SB2015]

Welcome to the forum @PurpleSky . I am another late starter diagnosed at 53.

As @stephknits says there are pros and cons being diagnosed at any age, but whenever we just have to start the juggling act of managing our levels.

The developments and access to pumps and the Libre have certainly made things a lot easier for me, and now a closed loop system using the Medtronic 780G with self funded sensors.

if you are happy to let us know how you are managing your T1 that would be great.

 

[PurpleSky]

Welcome to the forum @PurpleSky . I am another late starter diagnosed at 53.

As @stephknits says there are pros and cons being diagnosed at any age, but whenever we just have to start the juggling act of managing our levels.

The developments and access to pumps and the Libre have certainly made things a lot easier for me, and now a closed loop system using the Medtronic 780G with self funded sensors.

if you are happy to let us know how you are managing your T1 that would be great.

Well, nice to meet you all! I am on MDI and use the libre to monitor sugars these days.
I currently use L1, but I have a box sitting in a chemist bag with a nice shiny L2 in teasing me from the cupboard, as I still have 9 days left on my current sensor and I don’t want to be wasteful.

I would have liked a pump, but my control is too good for the nice guidelines. A closed loop system sounds very interesting SB2015!

 

[SB2015]

I would have liked a pump, but my control is too good for the nice guidelines. A closed loop system sounds very interesting SB2015

My control was tight, but I was getting a lot of hypos and after a couple of attempts I managed to get a pump. It certainly made life more flexible. When refused the first time I got a copy of the criteria, and then gathered data to support my application.

The closed loop system is expensive to fund but I am finding I can think quite a bit less about Diabetes. I can’t ignore it, and still need to enter carbs at meals, but there are times when I forget it, and I certainly sleep a lot better.

 

[Matchless]

Well, nice to meet you all! I am on MDI and use the libre to monitor sugars these days.
I currently use L1, but I have a box sitting in a chemist bag with a nice shiny L2 in teasing me from the cupboard, as I still have 9 days left on my current sensor and I don’t want to be wasteful.

I would have liked a pump, but my control is too good for the nice guidelines. A closed loop system sounds very interesting SB2015!

Hi purplesky type 1 at about 38 years now 35 years on have a pump medtronic 640g about to have a 4 year replacement and would love to have a closed loop system using dexcom sensor but i to have good HBA1C 6.3 (45) control which is to good for having dexcom sensor to go with a tandem pump for closed loop , i would love to go for a day without thinking about diabetes ,its annoying when you work so hard at keeping good control to be denied equipment that would make life more bearable at 73 i am a little worried how i will cope in the years to come so i see how annoyed you are being denied a pump because your control is to good it would make your control much easier .

 

[everydayupsanddowns]

and trying to keep a handle on the ups and downs of this disease

Welcome to the forum @PurpleSky

Nice turn of phrase there 😉