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Aaarghhhhh!

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Kei,
Your all amazing! The way you have dealt with all this brings a tear to me eyes. Your DH is amazing too! I hope J takes to his injections as well as he can and that you all have some precious 'bonding' time when he gets home.

Like Becca says there are 3 families that we know who have more than one diabetic child and i am sure they will contact you if you need some support.

Let us know how things are when you have time - we will all be thinking of you and little J.🙂Bev xxxxxxxxxxxxxxxxxx

special big hugs and kisses for J X X X X X X X X X X X X X X X X
 
Hi,
Sorry to hear about J. I was reading your previous post about the ear infection, i had that just before i got diagnosed 25 years ago. My Mum has always believed it was linked to me getting type 1. Big hugs to you and J. Take care x x x
 
hya Kei

I'm so sorry to hear about J. How is he doing? Hope all of your family are ok? You have done amazing and your a fantastic mum. You know where any of us are if you need a chat.

Take care
Gem xx
 
We're home - with J, although the doctors weren't keen on us bringing him home! Everyone exhausted. Mum is here helping out. J doing well and tolerating the injections and testing like a star.

There were no diabetic nurses on duty till Wednesday and no diabetic specialists available at the hospital, so they weren't confident that it was a good idea to send him home yet.

He wanted his own bed though, and we know exactly what to do if he goes high or low, and have all the right stuff here to do it.

I'll monitor him several times during the night and adjust things if necessary, and we know the warning signs that would mean we needed to get him back there (5 minutes away).

5 minutes ago, our DSN phoned, from her holiday, to say she'd been told about J, and will be coming to see us as soon as she's back.
 
Oh Kei your are doing really well. I can't imagine what you must be feeling right now. How old is J if you don't mind me asking? If you want a chat just send me a message I'm on here plenty. have they put J on mixes like F and my J?

Hope everything goes ok tonight and of course he wants to be at home with his family and not at the hospital.

gem xx
 
Thanks Gemma. J turned 5 in January. Yes, they have put J on Mixtard 30 like F and your J. It was SO cute this evening to see F and J go and do their BMs together before supper! :D
 
Awww that is sweet. I'm sure he will take to the injections just fine aswell. I bet he is use to seeing F doing her injections and b/s for a while now. How you feeling about it all? xx




Kei said:
Thanks Gemma. J turned 5 in January. Yes, they have put J on Mixtard 30 like F and your J. It was SO cute this evening to see F and J go and do their BMs together before supper! :D
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Gemma444 said:
Awww that is sweet. I'm sure he will take to the injections just fine aswell. I bet he is use to seeing F doing her injections and b/s for a while now. How you feeling about it all? xx
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Absolutely fine. I've been fairly sure for a few weeks that he was diabetic. Now it's just confirmation of that, so I'm not shocked or anything. 🙂 I'd come to terms with the idea quite a while ago, and am honestly just feeling pleased that my mummy instinct was right, because if it hadn't been diabetes I'd have been much more worried about what else it could have been!
 
Just goes to show that us mums know when there isn't something quite right going on when it comes to our kids. Mum knows best x
 
Hiya
Am away and this is the first chance to log on. Wow I'm so sorry this has happened to J. Thank goodness you knew what to do to help him. DH thinks quick on his feet doesn't he what with the injection leg. Not sure what else to say but to reitterate what Becca said. When you are ready, we know other families with two kiddies diagnosed and maybe you could speak to them. Take care. x
 
I'm tired after a night of getting up and down to test J's blood sugars, but we kept them fairly well controlled, considering his dosage was pretty much guesswork by the hospital. Roughly, his blood sugars were:

16 at 2000
11 at 2200
7 at 0100
6 at 0230, so I gave him some orange juice and half a digestive
7 at 0400, so I gave more juice and the rest of the digestive
7 at 0700
4.8 just before insulin and breakfast at 08:00

I'm guessing that means it ought to be slightly less insulin tonight.

He's brighter and seems a lot better now he's got some insulin inside him. He's peeing at normal intervals and drinking a sensible amount. His daytime blood sugars have been all over the place so far, but that's to be expected till we get the dosage right. So far I think they've given him slightly too much at night and slightly too little in the morning, but we'll wait for the "official" verdict later! 😉

All 3 kids are out for a walk with Nanna at the moment, to let me rest, so I'll go...
 
Thanks for the update Kei. It's good that your experience is helping you with J's levels and insulin doses, and great to hear that he's feeling much better. I can vouch for that - I felt hugely better once they started giving me insulin. I've never been quite sure how they determine insulin requirements in hospital, certainly with what I know now. When I was in (for 8 days) I ate like a horse, eating everything I possibly could off every menu (I hadn't eaten for 5 days before being admitted). However, although they checked my levels regularly, they never seemed to pay any attention to the amount of carbs I was stuffing away! I ranged from 2 to 27! When I came out I discovered that my doses changed signficantly from what I had been advised.

Have a good rest, you deserve it!🙂
 
Apparently the initial insulin dose was based purely on his weight, and they adjusted from there. I've just been called by the doctor, who looked at J's night-time numbers and cleverly deduced that he needs a lower dose tonight. 🙂

His BMs were up to 18 by mid-morning, but I made him drink a cup of water, then sent him out for a walk with Nanna. When we tested at lunchtime he was 6.4 and his sister was 4.2. How's that for control? 😉
 
You seem to be coping really well - well done. It must help that you already know so much - not that that will make it easier to deal with. Keep us informed.
 
Up to 18 again but hoping the evening insulin will have kicked in by now, and the water I reminded him to drink will have helped too. I'll be checking him through the night again.

Thanks to my mum, who is staying with us a few days to help out, I managed to have a lovely long bath earlier, which helped. Hopefully tomorrow I might get a nap. :D
 
Kei said:
Up to 18 again but hoping the evening insulin will have kicked in by now, and the water I reminded him to drink will have helped too. I'll be checking him through the night again.

Thanks to my mum, who is staying with us a few days to help out, I managed to have a lovely long bath earlier, which helped. Hopefully tomorrow I might get a nap. :D
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Hi Kei,

Sorry Ive not written again, Im on someone elses computer as I cant get online.

Read the thread with interest, my heart and thoughts go out to you. Hope everything goes well. I dont know what else to say but Im thinking of you.

Lots of love xx
 
Have come late to this as have been away.....my goodness you've been through the mill.
It sounds like you're all being incredibly strong.
Keep going, you're doing a tremendous job 🙂
C x
 
Hi, im really sorry to hear your news, the same thing happened to us this very week, our son was diagnosed age 10 in Nov and now our daughter age 2 :( it sucks xxx
 
Hello kei

sorry to all for being out of touch - Internet down until end of next week....

Sorry not to be here sooner - but I am so full of admiration for you. You are doing so well and thank goodness for your mother.

I think I would be so low I couldn't get up if I were you, or jimmysmum. What a week. You and your families are in my thoughts.

I too just 'knew' something was up with my son. When everything around you seems to be going bad, you have DONE GOOD.

Xxoo
 
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