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Hi

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Prbedd1

New Member
Relationship to Diabetes
Type 3c
It's Paul from Widnes, recently diagnosed with diabetes 3c, acute pancreatitis, still waiting on more ct Scan results
Now on novomix 30,metaformin and creon 30, blood sugars all over the place, really bad stomach pains and finding the whole journey hard to get on top off, hope your all ok
 
Welcome Paul. Sorry to hear about your problems. We have several members who are type 3c and I'm sure they will be along shortly
 
Welcome Paul. Sorry to hear about your problems. We have several members who are type 3c and I'm sure they will be along shortly
Hi
Thanks, hope so, would like to no how others are coping any hints or advice
 
Welcome to the forum Prbedd.
 
Hiya - we have a number of Type 3cs around these parts! However, i think most of them are treated as if they were Type 1, hence with normal T1 insulin regimes because Metformin and other T2 drugs do absolutely nothing whatsoever to help. Wonder why they are treating you as if you had Type 2 ?
 
Hi
Not sure what you mean with type 2, they're treating type 3c with acute pancreatitis, pleas do explain, new to diabetes
Thanks
 
Hello @Prbedd1
Sorry to hear that you are having such a difficult time.
I will copy in @eggyg who has been living with 3C for a while and may be along soon to talk to you.
 
However, i think most of them are treated as if they were Type 1, hence with normal T1 insulin regimes because Metformin and other T2 drugs do absolutely nothing whatsoever to help. Wonder why they are treating you as if you had Type 2 ?
Not sure what you mean with type 2, they're treating type 3c with acute pancreatitis, pleas do explain, new to diabetes
Thanks
Metformin is more of a T2 drug. Though there's been a couple of T1's who've posted that they're on it.
My understanding is T3c is more like T1 than T2.

[Edited]
 
@Prbedd1
Hi and welcome from me too.
To answer your question re Types of diabetes and associated medication....

Type 1 diabetes is when your immune system destroys the cells in your pancreas which make insulin and you therefore need to inject insulin to compensate for what you can no longer produce. These days Type 1 diabetics are prescribed a basal/bolus system of insulin which means you have 2 different types of insulin. A long acting one which takes care of the glucose released from the liver when you are not eating (through the night etc) and a quick acting insulin which deals with the glucose released by the food you eat. It enables you to eat what and when you like, rather than mixed insulin which means you need to eat fixed portion regular meals.

Type 2 diabetics can usually produce insulin (usually lots of it) but their bodies have become resistant to it so they need to reduce the amount of carbohydrates they eat (which is broken down into glucose in the digestive tract and absorbed into the blood stream) and take medication which helps to make them less insulin resistant, discourages their liver from producing so much glucose and/or removes the glucose from their blood in other ways like through the kidneys, or they have to inject extra insulin to force the glucose out of their blood stream and into the cells of the body. Metformin is the first line of attack medication with Type 2 diabetes. Mixed insulin like Novomix 30 is the sort of insulin which would often be used to treat a Type 2 diabetic who needed extraneous insulin.

Type 3c is when the pancreas has been damaged or removed (fully or partially) and means that you are often in the same situation as a Type 1 diabetic in that you cannot produce enough insulin to survive, rather than you being insulin resistant. However if you are significantly overweight there may be some insulin resistance as well and there are some Type 1 diabetics who are prescribed Metformin as well as insulin because they are experiencing insulin resistance and needing progressively larger doses of insulin to keep their levels in range.

Hope I have got that more or less correct as it is quite a complex subject to explain. There is also a Type 1.5 or LADA which may initially respond to Type 2 meds but is actually a slow onset Type 1 and some other even more rare genetic types like MODY.

In your case, have they done C=peptide tests to see how much insulin you are producing?

I think you would be within your rights as a Type 3c to push for a basal/bolus insulin regime which will give you better control and enable you to have a more flexible diet, but the mixed insulin may be a short term option to see how you respond.
 
Hi Paul from a fellow Type 3c on insulin and Metformin! I had a partial pancreatectomy 13 years ago and I’m still here. I applaud your medical team for knowing about 3c I was, wrongly it turned out, diagnosed as type 2 at first. Eventually I was put on a mixed insulin like yourself but then was promoted to MDI regime, basal and bolus. Slow acting insulin twice daily then basal to inject with food. It was a miracle! In time I would expect that’s what you will end up on. I also take Creon, I take up to 350k a day, you can’t overdose on it, we take what we need. To combat your stomach problems, try increasing your dose especially if you are having a fatty meal. Creon, unfortunately can raise your BGs. Things will get better, I promise. I live a full and active life, well as much as a 60 year old woman can! Any question please fire away. Nowt is too daft. Elaine.
 
Hello and welcome to the forum @Prbedd1 🙂
 
Welcome to the forum @Prbedd1

Sorry to hear about your diagnosis and your erratic BG and stomach troubles.

It can take a while to get insulin doses meds and diet adjusted in the early days, and metformin has a reputation for causing gastric upset in many people to begin with.

Hopefully taking metformin during a meal might help, and your BGs will begin to come more into line soon
 
@Prbedd1
Hi and welcome from me too.
To answer your question re Types of diabetes and associated medication....

Type 1 diabetes is when your immune system destroys the cells in your pancreas which make insulin and you therefore need to inject insulin to compensate for what you can no longer produce. These days Type 1 diabetics are prescribed a basal/bolus system of insulin which means you have 2 different types of insulin. A long acting one which takes care of the glucose released from the liver when you are not eating (through the night etc) and a quick acting insulin which deals with the glucose released by the food you eat. It enables you to eat what and when you like, rather than mixed insulin which means you need to eat fixed portion regular meals.

Type 2 diabetics can usually produce insulin (usually lots of it) but their bodies have become resistant to it so they need to reduce the amount of carbohydrates they eat (which is broken down into glucose in the digestive tract and absorbed into the blood stream) and take medication which helps to make them less insulin resistant, discourages their liver from producing so much glucose and/or removes the glucose from their blood in other ways like through the kidneys, or they have to inject extra insulin to force the glucose out of their blood stream and into the cells of the body. Metformin is the first line of attack medication with Type 2 diabetes. Mixed insulin like Novomix 30 is the sort of insulin which would often be used to treat a Type 2 diabetic who needed extraneous insulin.

Type 3c is when the pancreas has been damaged or removed (fully or partially) and means that you are often in the same situation as a Type 1 diabetic in that you cannot produce enough insulin to survive, rather than you being insulin resistant. However if you are significantly overweight there may be some insulin resistance as well and there are some Type 1 diabetics who are prescribed Metformin as well as insulin because they are experiencing insulin resistance and needing progressively larger doses of insulin to keep their levels in range.

Hope I have got that more or less correct as it is quite a complex subject to explain. There is also a Type 1.5 or LADA which may initially respond to Type 2 meds but is actually a slow onset Type 1 and some other even more rare genetic types like MODY.

In your case, have they done C=peptide tests to see how much insulin you are producing?

I think you would be within your rights as a Type 3c to push for a basal/bolus insulin regime which will give you better control and enable you to have a more flexible diet, but the mixed insulin may be a short term option to see how you respond.
Thank you, I am seeing a professor end of this month thanks for the info, I do have lots to ask
Cheers
 
@Prbedd1
Hi and welcome from me too.
To answer your question re Types of diabetes and associated medication....

Type 1 diabetes is when your immune system destroys the cells in your pancreas which make insulin and you therefore need to inject insulin to compensate for what you can no longer produce. These days Type 1 diabetics are prescribed a basal/bolus system of insulin which means you have 2 different types of insulin. A long acting one which takes care of the glucose released from the liver when you are not eating (through the night etc) and a quick acting insulin which deals with the glucose released by the food you eat. It enables you to eat what and when you like, rather than mixed insulin which means you need to eat fixed portion regular meals.

Type 2 diabetics can usually produce insulin (usually lots of it) but their bodies have become resistant to it so they need to reduce the amount of carbohydrates they eat (which is broken down into glucose in the digestive tract and absorbed into the blood stream) and take medication which helps to make them less insulin resistant, discourages their liver from producing so much glucose and/or removes the glucose from their blood in other ways like through the kidneys, or they have to inject extra insulin to force the glucose out of their blood stream and into the cells of the body. Metformin is the first line of attack medication with Type 2 diabetes. Mixed insulin like Novomix 30 is the sort of insulin which would often be used to treat a Type 2 diabetic who needed extraneous insulin.

Type 3c is when the pancreas has been damaged or removed (fully or partially) and means that you are often in the same situation as a Type 1 diabetic in that you cannot produce enough insulin to survive, rather than you being insulin resistant. However if you are significantly overweight there may be some insulin resistance as well and there are some Type 1 diabetics who are prescribed Metformin as well as insulin because they are experiencing insulin resistance and needing progressively larger doses of insulin to keep their levels in range.

Hope I have got that more or less correct as it is quite a complex subject to explain. There is also a Type 1.5 or LADA which may initially respond to Type 2 meds but is actually a slow onset Type 1 and some other even more rare genetic types like MODY.

In your case, have they done C=peptide tests to see how much insulin you are producing?

I think you would be within your rights as a Type 3c to push for a basal/bolus insulin regime which will give you better control and enable you to have a more flexible diet, but the mixed insulin may be a short term option to see how you respond.
Thanks so much helped alot
 
Hi Paul from a fellow Type 3c on insulin and Metformin! I had a partial pancreatectomy 13 years ago and I’m still here. I applaud your medical team for knowing about 3c I was, wrongly it turned out, diagnosed as type 2 at first. Eventually I was put on a mixed insulin like yourself but then was promoted to MDI regime, basal and bolus. Slow acting insulin twice daily then basal to inject with food. It was a miracle! In time I would expect that’s what you will end up on. I also take Creon, I take up to 350k a day, you can’t overdose on it, we take what we need. To combat your stomach problems, try increasing your dose especially if you are having a fatty meal. Creon, unfortunately can raise your BGs. Things will get better, I promise. I live a full and active life, well as much as a 60 year old woman can! Any question please fire away. Nowt is too daft. Elaine.
Hi all
Thanks for the help and advice have started my metformin again, onwards and upwards, speak soon all
 
Thank you, I am seeing a professor end of this month thanks for the info, I do have lots to ask
Cheers

Let us know how it goes 🙂
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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