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Glucose tablets not working!

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Pumper_Sue said:
Dory,
with respect it's your pump it's you who should be making the changes 🙂
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Sue I actually am quite upset you have said that. As I would have thought would be obvious by now, I haven't had the basic training from my DSN, or the follow on support. Hence my frustration (and the need to go to them for advice). and actually, I would think it fairly obvious that by joining this forum, I am trying to learn and do things myself because I realise I cannot rely on my DSN. I have spent the last week up most nights (in fact, Sun/Mon/Tues night I was up on the hour EVERY hour throughout the night and then working through the days, then had bad, bad hypos on Weds and Thurs night) in a desprate attempt to try and learn, coming to you for advice. I am trying my damndest because I've never been given any support from anywhere else and i am physically and mentally EXHAUSTED because I am having to cope with this, a full time job with 3 hour commutes each day and 2 diplomas and a maintenance company that I'm having to seek legal advice on for improper services. I have no friends, family or partner that can help. 😡

TW When you talk about basal testing, do you mean fasting tests for a few hours? if so then yes that is something I can do, i could start tonight (I have been doing hourly tests through the night so assuming that will be fine again)?
 
sorry for the rant, but i really am exhausted and on the brink of breaking this week after all this going so wrong.
 
Dory said:
Sue I actually am quite upset you have said that. As I would have thought would be obvious by now, I haven't had the basic training from my DSN, or the follow on support. Hence my frustration (and the need to go to them for advice). and actually, I would think it fairly obvious that by joining this forum, I am trying to learn and do things myself because I realise I cannot rely on my DSN. I have spent the last week up most nights (in fact, Sun/Mon/Tues night I was up on the hour EVERY hour throughout the night and then working through the days, then had bad, bad hypos on Weds and Thurs night) in a desprate attempt to try and learn, coming to you for advice. I am trying my damndest because I've never been given any support from anywhere else and i am physically and mentally EXHAUSTED because I am having to cope with this, a full time job with 3 hour commutes each day and 2 diplomas and a maintenance company that I'm having to seek legal advice on for improper services. I have no friends, family or partner that can help. 😡

TW When you talk about basal testing, do you mean fasting tests for a few hours? if so then yes that is something I can do, i could start tonight (I have been doing hourly tests through the night so assuming that will be fine again)?
Click to expand...

Dory,
Just for your information, I have never ever had a dsn or a consultant. I read a book on how to use a pump. It's called pumping insulin by John walsh.
I also took on board everything that forum members kindly taught me, (with good grace I might add). What I have learnt over the years is passed on to people that struggle or are struggling.
Bottom line is the pump only does as you tell it.

We have all told you your basal is out you are swiming in insulin. So as we have told you all week basal test and act on it.
We can not do the test for you. If you don't understand how to interpret the results put them on the forum and we will help you.
Just because you are frustrated and fed up don't take it out on me.

Basal testing............ look in the pump forum there is a sticky read it and act on it..
 
sue given it was your comment that upset me i think i do have a right to reply and let you know how that made me feel.

I am trying and i appreciate you can't see that, but making a sarcastic comment that its my pump it's me who should be making the changes is not a very good response for someone who is frazzled already. perhaps you may wish to consider how your comments (even said in innocence) can be taken by others - especially those who are stressed as it is.

i do appreciate all the constructive comments everyone is puting on here and amd trying to take it on board but please bear with me. my mind is not lke yours (ie a blank canvas) - don't forget I have a trunkload of exisiting rules set in my brain by my DSNs who have in the past just told me to change X to Y so it will do Z without telling me all the extra useful stuff I have learnt on here (such as the minor increments, glucose coming from protein, etc) and I have said my thanks many times over for this help. So it's like having done maths for years one way, then being given a load of new equations and formulas etc and trying to work out what to keep and what to lose.
 
I am on Amazon now looking the pumping insulin book - not sure whether it's better (ie easier) to get the book or the kindle version?
 
Dory said:
sue given it was your comment that upset me i think i do have a right to reply and let you know how that made me feel.

I am trying and i appreciate you can't see that, but making a sarcastic comment that its my pump it's me who should be making the changes is not a very good response for someone who is frazzled already.
Click to expand...

You never know Dory but perhaps your abuse of me was upsetting to me, but that's fine carry on. 😡

Each and every pumper is told the same thing by their dsn's/consultants.

On here it's put a bit more bluntly. The pump is not plug and play. You only get out what you put in.

We have all on this thread told you about your basal being the problem, so far you have done nothing but argue it isn't.
We can only help you if you are prepared to help yourself.
Yep you are tired and stressed, we all get to that stage.
I'm dealing with my fathers terminal condition and also proping up my 76 year old Mother at the same time.
Am I stressed, do I feel c**p yes I do, but at least I bothered to try and help you.
I'm bowing out of this now and suggest Admin locks the thread before it becomes a slanging match.
 
can anyone else provide any help on the question I posted above about whether the insulin pump book is easier to read if a real book or on kindle?

if there's no differnece then i can buy it on kindle and start reading straight away but if i'm going to need to do a lot of flipping back and forth for references, charts etc then it's probably easier to get the real book.
 
I'd suggest you have it on your bookshelf to keep on referencing and re-checking.
 
I have a fairly bog-standard kindle (no keyboard or touch screen, just the cursor controls) and I find any reference type book quite difficult to use on it, so I would recommend the paper edition for a book like this 🙂
 
Hi Dory,
I would get the book to thumb through as needed.

We were very much like you left to get on with it having been set up with 3 basal rates over 24 hrs which were not doing the job at all. DSN and consultant were fairly new to it all too and after I while I felt I needed to get the grip on things and be less reliant on thinly spread formal support.

This book "pumping insulin" helped enourmously with getting the basals set up better and knowing how to tweak, because, very similar to others, my dtrs basals change too. We just wished we found it sooner. Have confidence in your ability to do it -

Go for it and best of luck 🙂
 
thanks all. will get the paper book version then and see how i get on. it sounds good so hopefully that will shed light on a lot of things.
 
Dory

Yes - I wouldn't want it on my Kindle - much easier to find 'stuff' when it's a proper book. And of course, the little post-it notes to go with it, that are so very indispensible to mark the really useful bits!

I'm very lucky because I do have a fantastic DSN - same sense of humour - one day she was whizzing through my pump trying to find a partic screen, and kept going past it - I said, I keep doing that, been meaning to ask you, how do you go backwards? And she said without skipping a beat - Well I know that, of course. But I'm not going to tell you! so I said Oh and why would that be, Mrs D? and she said straight faced, 'Because, Mrs C - knowledge is POWER!'

And when we'd both stopped guffawing, she admitted she couldn't remember .... and I still don't know!
 
oh she sounds fab TW! well maybe my PCT will wake up and smell the coffee and realise that 2 DSNs to cover the bottom part of surrey and northern part of west sussex really isn't a good idea 😉
 
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