Ypsopump and Libre 3

[trophywench]

Went to Diabetes clinic yesterday and DSN got my Libreview results up on his computer, just like I always could on mine, after I downloaded the reader, which I used rather than using my phone cos it saved me having my phone 'to hand' all the while. That not now being a choice, all has to be done via CamAPP on my phone I therefore opened Libreview on my phone but no results from my new pump, so ?????

Rang Ypso Helpline and got a very helpful response. Apparently, the way the Libre 3 communicates with Libreview now is via something called Diasend which yeah could be downloaded to my phone if the hospital have told me what details to tell it which means you see the familiar upright column in pretty colours with the 'time in range ' as a block in the middle with hopefully less above and below the green part Or I can just look at CAMApp, click on the 3 horizontal lines in the top left hand corner, scroll down and click on Statistics, which then asks 'for how long?' so as it's only been 5 days I clicked on 'Week' - and there it was - 81% ! I hardly ever managed much over 70% and definitely haven't for the last couple of years. Impressed? - I ruddy well am so far!

 

[Natalie123]

That's impressive @trophywench Good to hear it's going well and the helpline is actually helpful! I now have a date fixed for mine on 24th February and I have to fill out a form with all my basal rates etc. Unfortunately there are a few parts of the form that don't really make sense so I'll have to ask the nurses about those. I'm trying not to get too overwhelmed and anxious about it but it's difficult. Good to know that it'll be worth it in the end!

 

[SB2015]

Very
Leased that you are already seeing some benefits @trophywench , and hopefully with a lot less effort.

 

[trophywench]

That's impressive @trophywench Good to hear it's going well and the helpline is actually helpful! I now have a date fixed for mine on 24th February and I have to fill out a form with all my basal rates etc. Unfortunately there are a few parts of the form that don't really make sense so I'll have to ask the nurses about those. I'm trying not to get too overwhelmed and anxious about it but it's difficult. Good to know that it'll be worth it in the end!

I really hope it is for you too, Natalie.
The Helpline lady was extremely empathetic to my feeling of wanting to understand EXACTLY how and why is does what it does and was also very truthful saying that they've been victims of their own early success so that ordering extra supplied might currently be slower than they intend it to be. Hence we (ie Ypsomed users whether looping or not) must currently all be patient patients, and we don't at this very moment, have any choice about that. Plus - they rolled out a revised computer system across their offices a couple of weeks ago, so they have internal teething problems with that, too.

 

[trophywench]

Hey Ho - some time last evening my Libre sensor failed at 9 days and a few hours. I didn't know this until after we had our tea, for which I'd had a guess at the carbs - it was stew we'd made on Friday so it's always a guesstimate cos eg no idea of the weight of the 2 onions let alone the parsnips, carrots, swede and leeks - and anyway who weighs ANY veg after they've been peeled and prior to chopping ? Not me anyway. No spuds in stew in this house, should be substantial enough without. So yes it did have flour in it and also a few gravy granules cos it was a bit pale. Totally forgot to look at what BG was doing after tea - too wrapped up watching telly. Hadn't seen any of the latest Masked Singer but the semi final last night and nowt else on we wanted to see - so you have to listen closely to that, followed by the 1% Club ditto. Hence an indeterminately long time until I looked at it again when Oh bugger - telling me it has lost connection. It's told me that it's connecting with the 'roundy roundy' symbol that we see our computers do loads of times since I've had it and since that has shortly after refreshed itself and acted 'normal' I didn't at first take very much notice, just glanced at it again a bit later -still no joy.

Decided I was unlikely to die overnight so went to bed and slept OK (with only the multiple need to empty my bladder 3 or 4 times starting at approx 3 or 3,30am at half hourly intervals. Always hope after 3 I can now sleep but sometimes I'm fooled. 3 last night, so that was OK. (ish, for me) ) Did a FP when I got up this morning and I was 8.9. Didn't react to that really, as yesterday morning I was 9 ish but by lunchtime that had reduced down to the high 5s. OTOH of course the pump was doing its Auto mode thing and today it hasn't been able to as it was not in contact with the sensor. Aaagh.

Husband put a new sensor on my arm but to start it, you open CamApp and click on the '3 horizontal lines' in the top LH corner, which then shows a menu, you scroll that menu up, right to the very last item on it 'Start new sensor', which you click on and follow the instructions on it.

So - husband replaced my Libre sensor and started it by pointing the back top of my phone, with CamApp open on it, over the new sensor, it made a quite nice sound and the instructions said to hold the phone absolutely steady for a bit so he did that, and eventually CamApp told us the Libre had 58minutes to go.

Until that hour of 'warmup' had expired, nothing occurred and then, thank goodness, Automode resumed so it resumed telling me my BG and I could then tell it what carbs I was about to eat for my lunch. By which time Libre said my BG was 7.1. Considering my target is 6.5 I think that shows my hourly basal rates are near as damn it is to swearing, correct. Phew.

What I have not discovered is what to do about the failed sensor since there is no info on the Abbott Libre website about failed Libre 3 sensors. Or indeed, how to get any more of them - DSN said they'd be sent to me automatically so OK BUT, hang on, why should the NHS have to pay full price for the failures? And the 6 I was sent upfront won't now last quite as long as they should have. Will ring DSN on Monday to find out what to do about it.

The sensor itself was still stuck to my arm like the industrial glue Amtico use for mega expensive industrial flooring that they have to wear protective clothing, breathing apparatus, time limits, restrict access etc when using - and one of the reasons it's expensive to install - because It Takes Quite A Bit Longer To Put In and It Lasts.

Quite a palaver - but knowing 'how' now hopefully this one and the others will all be OK. Just a thing you can't achieve in a couple of seconds and have to allow time for.

I said, Oooh, Libre, I'm not sure cos they're not all that reliable and though Libre 2 has been more reliable than Libre 1 ever was, a lot of early failures in 2024. No, no, L3 is FAR more reliable, Jen! they said.

 

[dannybgoode]

Right on the Abbott home page is a link to click to fill in a form to report faulty sensors. It's a little lengthy but they usually get a replacement out pretty quickly...

 

[riddler]

Otherwise phone Abbot up about the faulty sensor. They will probably ask for the serial number of the sensor which can be found in CamsAPS. They may ask you to send the faulty sensor back to them (they provide a pre-paid envelope). As stated replacements are sent out quickley.

 

[PattiEvans]

Jen, can I ask a couple of questions about this system please? Do you control it from your phone? Or do you have to get it out of your clothing to bolus? Also you had a Combo pump and I don't know if you remember, but you used to be able to increase/decrease basal by 0.01u. What's the minimum for the Ypsopump? Also what's the minimum target you can set for it to correct to? The system I had (Omnipod 5 and Libre 2+) the minimum I could set it to was 6.1 whereas I'd prefer to set it to 5.5.

At present I'm using Omnipod 5 in manual mode and achieving 90% TIR which is better than the HCL was. I asked to go back to Omnipod dash and DSN said no, but I could have a Ypsopump.

 

[trophywench]

@PattiEvans - Controlled once in use via CamAPP via mobile phone but at the moment must be an Android phone, not licenced for use with Apple, just as Mike has commented. You have to program them all in hour by hour on the pump (same as Combo) and the range starts at 0.00 - my lowest one is 0.26u and I don't officially know how low it can be set but since one of the ladies starting the same day as me was only 4 weeks pregnant and you'll probably recall the first semester is usually Hypo City I would think the lowest could be Nil - but if you have to set some number perhaps you can tell it 0.01. Also, same as Combo, basal is set hour by hour in increments of 0.01u. The minimum it can correct to is definitely under 6 because I said to the trainer setting mine that I'd like 5.5 and she said in her opinion that 6.5 would be safer to begin with so I said Oh, OK then. This closed loop system really is very different to others that people have described and is very fast responding to what Libre tells it, Patti, dropping the basal rate down by the time I've read the alert on my phone telling me my BG has dropped and certainly down as far as Nil if it continues to drop.

So far, despite not yet understanding precisely how it does what when - I'm happy with it.

Not clear to me - are you intending to closed loop with it, or manual?

 

[PattiEvans]

Hi @trophywench I need to ask the DSN a few more questions i.e. would I be able to loop with it etc etc. I mean would they do the training, does the Libre 3 cost the same as the 2? Also need to do more research on the Ypsopump. Ideally I'd like to be on HCL with it, but so far my experience of HCL was very poor. However, I think that might have been the system I was on rather than HCL itself. Someone else on here is also struggling with the Omnipod system. The DSN isn't very approachable when she doesn't want to be, other times she can be great.

Though for some time I've been considering whether to ask if I could go back to a tubed pump. I find the pods rather difficult to find sites for - given my almost 79 year old body is no longer svelt and bits stick out so avoiding siting the pods on those bits is necessary, otherwise clothing catches and can pull them off. Plus I've never liked the 0.05 increments which is all you can do with pods.

There's a lot to consider....