When is Diabetic not a Diabetic!

[winky]

Having been Type 1 since 1975 late last year had several hypos needing help and now seeing consultant to put me straight! I was told that may have different form than originally diagnosed and so peptide test taken and I am awaiting result. When I asked for more info told Diabetes occurs in many forms and since my diagnosis research improved. Still taking reduced dose insulin and glucose levels up where advised they should be so if different form surely I could not type this message as be in permanent hypo state! Anybody had similar diagnosis and peptide test?

 

[Northerner]

Hi winky, welcome to the forum 🙂 That's a heckuva long time for them to decide that you may not be 'classic' Type 1! 😱 Diabetes can have a wide variation in its manifestation - I was originally on 20 units of lantus at diagnosis (10 years ago), but after 4 years I had had to reduce it down to zero, although I'm still needing novorapid with food. Clearly, my pancreas decided to start producing insulin again, at least in small amounts and enough to cover my basal requirements. I haven't had a C-peptide test, although my consultant kept suggesting I have one but never organised it. That was after 4 years though, not 40! 😱 Over the years I've encountered a handful of others with similar experiences.

There are quite a few variants that they know about now, such as MODY, which is due to a particular genetic variation and which may or may not require insulin, I wonder if this is what the consultant is thinking of?

 

[everydayupsanddowns]

There was quite a lot of coverage in the news recently about mis-classification of MODY as T1 so it could well be.