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What happens now?? My 13 year old son just diagnosed type 1

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hi from Letchworth

Hi Melanie i am so sorry to hear of your sons diagnosis, its a hard time for all of you. my daughter was diagnosed a year ago. some days it still feels unreal and other days as if its always been here.

i am happy to meet or chat on the phone, i saw you said he doesn't know anyone else with type 1, my daughter is 8 but i do know a few others in the area with older children if you would be interested in meeting. they are a great bunch.

take care of yourself
 
MelanieG said:
Hi adrienne,

Thank you for your advice, it's so nice to hear from other parents who are going through the same. I have now got the carbs and cals app and it is good, and is helping me understand. So I think we're ready to dose his insulin ourselves instead of the nurse setting amounts, as he's suffering lots of hypo's at he moment.
We are in Stevenage Hertfordshire so it would be great for him to meet others going through what he is.
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Hiya

So I asked on the CWD email list and there are lots of people who live near there who would love to meet you and your son. Many have slightly young children. One mum says she has set up a group you can go along to. I've just had an email from a mum who is in Brookmans Park (about 30 mins from you) who has a 15 year old lad and they would love to meet up with you and chat and offer any support or whatever you need. How lovely is that.

How do you want to do that. They would be happy for me to give you their emails no doubt if that is a good idea or I can give them your email address. Let me know, feel free to pm me if you like.

Adrienne x 🙂
 
Adrienne said:
Hiya
So I asked on the CWD email list and there are lots of people who live near there who would love to meet you and your son. Many have slightly young children. One mum says she has set up a group you can go along to. I've just had an email from a mum who is in Brookmans Park (about 30 mins from you) who has a 15 year old lad and they would love to meet up with you and chat and offer any support or whatever you need. How lovely is that.

How do you want to do that. They would be happy for me to give you their emails no doubt if that is a good idea or I can give them your email address. Let me know, feel free to pm me if you like.

Adrienne x 🙂
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That sounds great, Tom is very worried about telling friends or anyone really about his diabetes, and so I keep saying it would be good to meet other children who are going through the same thing. He is very shy bless him. I would love to be able to email and talk with these parents and hopefully meet. It is all so new to us.how do I pm you my email? Thanks so much.
 
Right even better but only if you are on fb of course. Are you on facebook?

I don't know if you are aware, probably not as you are new to this, the face of paediatric diabetes in England is changing massively for the better. The country has been divided up into 9 areas. Luckily you are under the East of England. Each area has a co-ordinator (yours is Kate Wilson) and a couple of parent reps and they sit on a network panel which is comprised of consultants, DSN's NHS and parents etc and then they all feed into a main national network.

Well the EofE area is the most proactive. I have many very good friends who are park of the fantastic organisation. They have a fb page and have just literally done a can for your son's age children all with night testing and some d mums and dads as the carers etc. It sounded fantastic.

So you need to join that group, but I can do that for you but only if you are on fb.

My email is adrienne@atburton.plus.com (Northerner I have no idea if I am allowed to put that here but it is easily found on the web anyway due to running a charity etc etc).

Feel free to email me Melanie and I can get the ball rolling. You will feel much better once you meet some people. I absolutely guarantee that as finally you will know other people who 'get it'. That is so important.

xx
 
MelanieG said:
That sounds great, Tom is very worried about telling friends or anyone really about his diabetes, and so I keep saying it would be good to meet other children who are going through the same thing. He is very shy bless him. I would love to be able to email and talk with these parents and hopefully meet. It is all so new to us.how do I pm you my email? Thanks so much.
Click to expand...

My daughter is 13 and we would both also love to meet you. 13 is a tough age to get d, there are lots that are shy and so to meet others is a bonus xx
 
MelanieG said:
That sounds great, Tom is very worried about telling friends or anyone really about his diabetes, and so I keep saying it would be good to meet other children who are going through the same thing. He is very shy bless him. I would love to be able to email and talk with these parents and hopefully meet. It is all so new to us.how do I pm you my email? Thanks so much.
Click to expand...

Hiya Melanie

Hope all ok. I found lots of people in your area who would happily meet up and chat with you and Tom or just you, whatever you want. I haven't heard from you though. If you don't want to its absolutely no problem and no pressure but it sounded like you did so thought I would post another message.

Let me know and hope all ok 🙂

xx
 
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