shiv
Well-Known Member
- Relationship to Diabetes
- Type 1
So, last time I spoke to you guys, I had my trial pump. I still have it, although the hospital are not giving me any more consumables (those of you on facebook will know the whole story).
Thanks to the kind donations of many of the parents (and Tom!) I have been able to keep using the pump as they have been posting supplies to me.
My control on the pump has been way tighter than I have ever been able to manage on MDI. No more morning hypos, no dawn phenomenon, no huge post meal spikes. It's been hard ruddy work as we all know pumps are, but the benefits are so worth it.
Anyway - I explained my whole story (some of which I am not willing to share in public on the forum, but if anyone wants the entire story, I will happily PM it to you!!) to the guys at INPUT, the patient advocacy group for pumps.
The long and short of it is that I will be getting referred down to the team in Eastbourne, where I hope I will be able to get funding for a pump. I have all the logs to show how beneficial it has been and how it has solved all the problems I was encountering with MDI.
INPUT are still working closely with me, and they are speaking on my behalf to lots of people with important sounding job titles about the experiences and care I have had over the past year or so.
I'm hoping this is a really positive step in my battle to get a pump. I am dreading going back to injections, and hoping that will be a short term thing. I confess I feel like I am jumping from the frying pan into the flames as I obviously don't know what Eastbourne will say - but I am keeping my fingers crossed it is positive.
Thanks to the kind donations of many of the parents (and Tom!) I have been able to keep using the pump as they have been posting supplies to me.
My control on the pump has been way tighter than I have ever been able to manage on MDI. No more morning hypos, no dawn phenomenon, no huge post meal spikes. It's been hard ruddy work as we all know pumps are, but the benefits are so worth it.
Anyway - I explained my whole story (some of which I am not willing to share in public on the forum, but if anyone wants the entire story, I will happily PM it to you!!) to the guys at INPUT, the patient advocacy group for pumps.
The long and short of it is that I will be getting referred down to the team in Eastbourne, where I hope I will be able to get funding for a pump. I have all the logs to show how beneficial it has been and how it has solved all the problems I was encountering with MDI.
INPUT are still working closely with me, and they are speaking on my behalf to lots of people with important sounding job titles about the experiences and care I have had over the past year or so.
I'm hoping this is a really positive step in my battle to get a pump. I am dreading going back to injections, and hoping that will be a short term thing. I confess I feel like I am jumping from the frying pan into the flames as I obviously don't know what Eastbourne will say - but I am keeping my fingers crossed it is positive.
