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We have a cunning plan - bit of an update...

dannybgoode

Well-Known Member
Relationship to Diabetes
Type 2
Well, it's not really very cunning. Certainly not the sort of fox like cunning the professor of cunning at Oxford University would come to but a plan nonetheless.

So went to see the DSNs today and had a really good chat with them. The team at the Northern General are so good - was in for over an hour going through next steps and I'm happy my concerns have been listened to but also they've had more chance to go through things in more detail from their side also.

They completely understand why I'm so reluctant to try Metformin and make it clear that if I don't want to, I don't have to. I can just stay on insulin if I want.

However, they also explained that, if I do tolerate Metformin and given my training coupled with dietary changes I've already made, that its actually a really good drug and that the only way I'll know whether I can cope with it is to give it a go.

They gave me the choice to a) think about it, b) outright refuse it or c) to give it a go and at least find out.

So, I've agreed I'll try it starting on 500mg for two weeks, upping to 1000mg for another 2 weeks and topping out at 1500mg if all goes well. They don't think I'll manage 2000mg regardless.

If it gives me gastro problems I just stop taking it and let them know and that will be that. The DSN I saw does have other patients with an ileostomy and some are fine on Metformin, others have tried and simply can't take it.

Interestingly there is a note from the consultant that, as I thought, SGLT2's are contraindicated due to hydration concerns with my ileostomy as is the SR Metformin due to absorption issues.

The DSNs think that it may be the case I'll not be able to stop all insulin in any event but may well be able to come down to a basal only if I do tolerate the Metformin.

Not sure what's happening with the DPP4 options. They aren't entirely clear what the consultant wants to do with that and they said they are not often used. Given my particular medical history they want to be sure what the plan there is.

The big positive for me is that they have agreed Libre, at least for a few months whilst I look at transitioning to oral meds and we'll review that one way or the other depending on how the Metformin goes. They think it is beneficial for me, particularly given my exercise load and desire to manage my diabetes the very best I can.

I will also be very closely monitored whilst I trial it and they're running the bloods for my baseline lactate so they can keep an eye on any sign of MALA. I'll have regular face to face appts too.

Overall this seems a very sensible plan and one that I'm happy with.

Oh, and on 6th Dec when I was diagnosed my Hba1c was 121 and as of 27th Dec it was 94 so a pleasing reduction in a short-ish time. They're testing my Hba1c again also and I have another appt scheduled for end of Feb for an early review of how I'm finding the Metformin.

So all in all very positive and I feel I can relax a little bit and see how everything goes over the coming weeks.
 
Sounds good, glad that you have a plan and can relax a bit (but not too much!). 😎 Cheers
 
Hi @dannybgoode glad to read your update, it sounds like they actually listened to your concerns
so now hopefully you can be less anxious regarding your health
hope you get on on with Metformin, like you said you can “try it and see”
but if it’s not good for you DSN’s have assured you that insulin is still a option (if that’s what you want/need) and good news that they are happy to prescribe the Libra whilst you find out how you will get on with changing your medication

onwards & upwards
 
it sounds like they actually listened to your concerns
so now hopefully you can be less anxious regarding your health
hope you get on on with Metformin, like you said you can “try it and see”
Very much so. Seems daft not to at least give it a go now I have the reassurance that if it doesn't work out I will not be left stranded. That was a bit part of my concern - that there would be no going back to a solution that was working from one that turned out not to be. However, they are in no rush for me to stop the insulin and I will continue MDI whilst I see how I get on with the Metformin and with the comfort of Libre so I can see if my insulin sensitivity is at a level where I need to watch doses.

such a brilliant healthcare team
They really are - I am very lucky I think to be under them. And whatever happens going forward I know I will be able to rely on them to help me through the next few months.
Great news on the Libre. (Even if a few months?)
We will see on that front 😉. Of course if I manage to move purely to Metformin and perhaps a DPP4 then I will not have the need for one but if I stay on insulin then I will be fighting to stay with the Libre.
 
So all in all very positive and I feel I can relax a little bit and see how everything goes over the coming weeks.

Great stuff @dannybgoode

Hope the metformin treats you kindly, but sounds like you have a solid plan either way!
 
Sounds like a very productive meeting and so glad you don't feel like you are being pushed down a path without an alternative. Whatever medication you end up taking I think your positive attitude and support from the HCP team will help you manage your diabetes effectively. Great news about the HbA1c reduction too!
 
The positive attitude displayed by @dannybgoode should be a lesson to us all - loving your work
I don't always feel so positive on the inside and the help, advice and freedom to rant sometimes on here had really helped me make certain decisions.

It's been an awful lot to process in the last couple of months and that hasn't helped - the uncertainty around the way forward has been tough at times but I am happy I'm on a suitable pathway now.

I'm sure the consultant was trying to help and to push me a bit into at least giving Metformin a go however at the time it just felt like another change I wasn't ready for.

But having time to think about it and having the DSN approach the same suggestion but from a slightly different angle and with the assurances I now have about what will happen if it doesn't work out means I just about have the confidence to give it a go.
 
I'm also very delighted for you @dannybgoode. Your plan sounds great and you've clearly been your own brilliant advocate with the DSN team. Glad you have been given Libre, albeit provisionally. That, to my mind, should always have been a no-brainer: diabetes with a stoma has the potential for a lot of chaos and discomfort; CGM is an easy helper.
 
Sounds a good, productive meeting for you, glad it all went well and they listened plus it was a genuine two way conversation with you.

Seems like you have the best of both worlds - try Metformin but if it doesn’t work or disagrees with you then insulin will still be available.

Good luck - and don’t forget to keep us posted on how it goes!
 
try Metformin but if it doesn’t work or disagrees with you then insulin will still be available.
Yep, and it's not going to be a straight swap either. I'll stay on the MDI whilst I trial the Metformin so won't have to be playing catch-up if it doesn't work and I then have to mess about getting BG back under control.

If it does work out for me then it'll be a gradual transition - decreasing the insulin as needed as my sensitivity increases so again, I'll not be trying to chase down high numbers initially.

All in all I'm now happy enough. Still nervous as hell about possible side effects but that's just a function of being so ill from the UC so I just have to work on that.
 
This seems like a great partnership between @dannybgoode and his DSN which is wonderful to read.
I fear there are too many threads about how this relationship breaks down.
That may be due to a DSN who is too prescriptive and unwilling to listen to someone anxious because they have just been told they have a chronic condition. But the anxiety can sometime result in the patient becoming too belligerent.

So a huge :star: to danny and his DSN for working so well together.
 
This seems like a great partnership between @dannybgoode and his DSN which is wonderful to read.
I fear there are too many threads about how this relationship breaks down.
That may be due to a DSN who is too prescriptive and unwilling to listen to someone anxious because they have just been told they have a chronic condition. But the anxiety can sometime result in the patient becoming too belligerent.

So a huge :star: to danny and his DSN for working so well together.
Thank you and yes, the team at the Northern General are brilliant. Interestingly I've not actually seen the same DSN twice but they all seem to work to a very similar ethos and all have been very open to a proper constructive chats.

Never any rush either. None of my appointments have been under an hour so I've always had no pressure to rush through things.

Fingers crossed it continues like this. Next appt is 25 Feb when hopefully I'll have had chance to have had a few days with the Metformin.
 
Had a copy of the letters that have been sent to my GP requesting a) they prescribe the Metformin and b) they sort the Libre out. Whilst I was given a Libre 2 at the hospital they've actually stated the 2 Plus on the letter which is good.

Just need to follow up and get the prx for the Metformin in so I can try it before my next DSN appt on 25 Feb.

Still nervous as hell about it but will give it a go. Worst that can happen is I just have to stop taking it. It's all just a psychological thing I need to get through...
 
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