• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.

Unexpected news over the phone

BroccoliQueen

Member
Pronouns
She/Her
Hi there, I'm new here. I received a phone call from my dr telling me that my blood tests (regarding something else) have shown that I'm diabetic. The Dr asked me to return to the surgery phlebotomist for another test, but I've not been told which type I am or where to get support. I already have a very difficult time with food due to Mast Cell Activation Syndrome which means I eat as low histamine as I can. I find this very hard indeed to manage already as it's a rather unpredictable and complex issue especially when you add peri-menopause into the mix. The thought of diabetes too is really hard. I'm trying to be positive because stress makes my current illnesses worse. I know I'll need to mourn, and I'm just looking for some reasons to be positive too.
 
Welcome @BroccoliQueen 🙂 Are you able to see your test results online? Look for HbA1C. That number will give you an idea of how far into the diabetes zone you are. Type 1 and Type 2 are very different conditions, so if there’s any doubt about which type you are, it’s best to establish that first.
 
Yes, my HbA1C was 'only' 48, which I understand is as low as it could be without moving into the pre-diabetic band, but when you're not looking to find out anything to do with diabetes it's a real shock. She just hasn't said which type, despite telling me I am diabetic. If I was less in shock I would have asked her how and when we'd find out. Thank you for replying. I do feel very much like I've been left hanging.
 
Yes, my HbA1C was 'only' 48, which I understand is as low as it could be without moving into the pre-diabetic band, but when you're not looking to find out anything to do with diabetes it's a real shock. She just hasn't said which type, despite telling me I am diabetic. If I was less in shock I would have asked her how and when we'd find out. Thank you for replying. I do feel very much like I've been left hanging.
The threshold for diagnosis is anything over 47mmol/mol so you are only a smidgen into the zone. It is nothing to panic about and some modest changes to your diet is likely to be all that is needed.
I had a quick look at the low histamine food list and most of those are foods which people managing their condition by a low carbohydrate approach would be comfortable eating. So I don't think it will be as difficult as you may imagine.
Have a look at this link and you will see there are many foods which are suitable and the program is based on the suggested no more than 130g carbs per day is a good starting point, it is not NO carbs, https://lowcarbfreshwell.com/
 
Yes, my HbA1C was 'only' 48, which I understand is as low as it could be without moving into the pre-diabetic band, but when you're not looking to find out anything to do with diabetes it's a real shock. She just hasn't said which type, despite telling me I am diabetic. If I was less in shock I would have asked her how and when we'd find out. Thank you for replying. I do feel very much like I've been left hanging.

Odds are that it’s Type 2, but if there’s any doubt, push for further tests. You could start by looking at the Learning Zone (orange button at the top of the page) 🙂
 
The threshold for diagnosis is anything over 47mmol/mol so you are only a smidgen into the zone. It is nothing to panic about and some modest changes to your diet is likely to be all that is needed.
I had a quick look at the low histamine food list and most of those are foods which people managing their condition by a low carbohydrate approach would be comfortable eating. So I don't think it will be as difficult as you may imagine.
Have a look at this link and you will see there are many foods which are suitable and the program is based on the suggested no more than 130g carbs per day is a good starting point, it is not NO carbs, https://lowcarbfreshwell.com/
 
That's exactly the kind of site I need to just get me going - but most of the meals are ones I can't eat because of pulses or mushrooms or tomato or aubergine or spinach or citrus or soya or fermented foods or avocados or dark chocolate and other things. Bread, rice and pasta were safe for me, and sugar in moderate amounts was too. I'm glad to hear I can have some. Maybe the general advice will be helpful and I might be able to translate some of it. I guess I will get used to it. I guess I can spiralise courgette instead of spaghetti though it's not filling me with joy. I'm a bit unsure about the fats. I'm not overweight but I'm reading I need to eat less carbs and less fat. If I can just find a few meals (fish frozen at sea with salad or Thai veg curry, boiled egg with ?) then I can just scour the net a little bit every day until I have a repertoire.
 
Odds are that it’s Type 2, but if there’s any doubt, push for further tests. You could start by looking at the Learning Zone (orange button at the top of the page) 🙂
Yes - I don't fit the stereotype, but I'm guessing that lots of people with type 2 don't. I've been listening to the podcast this morning and I'm learning there are lots of misconceptions about both types and I might have either. I think my nan was a late type 1. I will push for tests if they seem at all unsure.

Thank you everyone
 
She just hasn't said which type, despite telling me I am diabetic.
That is because she won't know.
There are additional tests (people with both Type 1 and type 2 take the hba1c test) which may indicate which type but it is hard to be conclusive even after these tests
Often the assumption is made that it is type 2 based on it being the most common unless you are a child.

Family history maybe important. But it is worth checking whether your nan had Type 1 or type 2 treated with insulin
 
Last edited:
That's exactly the kind of site I need to just get me going - but most of the meals are ones I can't eat because of pulses or mushrooms or tomato or aubergine or spinach or citrus or soya or fermented foods or avocados or dark chocolate and other things. Bread, rice and pasta were safe for me, and sugar in moderate amounts was too. I'm glad to hear I can have some. Maybe the general advice will be helpful and I might be able to translate some of it. I guess I will get used to it. I guess I can spiralise courgette instead of spaghetti though it's not filling me with joy. I'm a bit unsure about the fats. I'm not overweight but I'm reading I need to eat less carbs and less fat. If I can just find a few meals (fish frozen at sea with salad or Thai veg curry, boiled egg with ?) then I can just scour the net a little bit every day until I have a repertoire.
You may find all you need to do is moderate your portions of those high carb foods but there will be plenty you can still eat. There is absolutely no need to have low at unless you need to for other conditions and certainly best to avoid low fat as those products are sometimes higher not always than normal fat.
No need to rush into anything take your time to sort out suitable foods, there is no rush.
 
There are at least as many, if not more, people diagnosed with Type 1 in adulthood as childhood, it by no means only targets the young. Though I was only 22 when I was diagnosed and had been married and living in our own house for 15 months in some ways I was pleased cos my size 12 clothes were getting baggy so whoo hoo, under 8 stone at last! - if only this weight loss didn't make me feel so bloody awful with raging - by now unquenchable - thirst and constantly needing to wee ..... eventually I did make an appt to see our GP and in between ringing them before the weekend and first appt after 5pm (because I didn't work locally and my husband took me in the car so no money for public transport both ways so couldn't go in a morning) was next Tuesday .. by which time I'd started occasionally getting this weird fluttering sensation inside my ribs so when the doc asked me if I was getting heart palpitations I had to ask if those feelings were palpitations or what if not? Yes apparently. He told me straight off he thought I had diabetes and did I think I could produce a urine sample - oh yes, most definitely, please, cos I was already wondering how I was going to do the 5 minutes walk from here to my house without wetting myself ..... Pee test done by nurse down the corridor and yes, diabetes. Admitted to hospital next morning and had first insulin jab just after lunch.

It was Type 1 and 'they' reckoned had probably been instigated by a gastric virus I'd had in the February, I was off work for a fortnight with that and couldn't eat reasonably till week 2. Really I suppose it was not ever so long after that when the early symptoms started and mom said she thought maybe I had symptoms of diabetes - to which I said Oh stop being so over dramatic, mom! - and let's be absolutely fair here - never once did she say, to my face, WeIl, I told you so.

Any virus can start the auto-immune response that just happens to overwhelm the body's immune response so it 'accidentally' kills off cells that it needs rather than only the ones it's 'supposed' to kill simply because unexpected things do and always will, go awry with it from time to time. You already know that very well.

Diabetes doesn't usually kill you pdq though - so let's concentrate a lot more on staying alive whilst it does its (sometimes unpredictable) thing underneath it all - and that's exactly what the folk on this forum try to promote and pass on whatever things we have found help us, to other folk. But, whatever has helped me will not necessarily help them cos nobody else in the whole world is me - and likewise, you also!

Stay strong and live hopefully- and most importantly to me personally - keep a good sense of humour ! Giggling about stuff when I can is and always has been one of my coping strategies. Thing about 'here' is that whatever folk tell us - somebody if not everybody will 'get' what you're on about.
 
There are at least as many, if not more, people diagnosed with Type 1 in adulthood as childhood, it by no means only targets the young. Though I was only 22 when I was diagnosed and had been married and living in our own house for 15 months in some ways I was pleased cos my size 12 clothes were getting baggy so whoo hoo, under 8 stone at last! - if only this weight loss didn't make me feel so bloody awful with raging - by now unquenchable - thirst and constantly needing to wee ..... eventually I did make an appt to see our GP and in between ringing them before the weekend and first appt after 5pm (because I didn't work locally and my husband took me in the car so no money for public transport both ways so couldn't go in a morning) was next Tuesday .. by which time I'd started occasionally getting this weird fluttering sensation inside my ribs so when the doc asked me if I was getting heart palpitations I had to ask if those feelings were palpitations or what if not? Yes apparently. He told me straight off he thought I had diabetes and did I think I could produce a urine sample - oh yes, most definitely, please, cos I was already wondering how I was going to do the 5 minutes walk from here to my house without wetting myself ..... Pee test done by nurse down the corridor and yes, diabetes. Admitted to hospital next morning and had first insulin jab just after lunch.

It was Type 1 and 'they' reckoned had probably been instigated by a gastric virus I'd had in the February, I was off work for a fortnight with that and couldn't eat reasonably till week 2. Really I suppose it was not ever so long after that when the early symptoms started and mom said she thought maybe I had symptoms of diabetes - to which I said Oh stop being so over dramatic, mom! - and let's be absolutely fair here - never once did she say, to my face, WeIl, I told you so.

Any virus can start the auto-immune response that just happens to overwhelm the body's immune response so it 'accidentally' kills off cells that it needs rather than only the ones it's 'supposed' to kill simply because unexpected things do and always will, go awry with it from time to time. You already know that very well.

Diabetes doesn't usually kill you pdq though - so let's concentrate a lot more on staying alive whilst it does its (sometimes unpredictable) thing underneath it all - and that's exactly what the folk on this forum try to promote and pass on whatever things we have found help us, to other folk. But, whatever has helped me will not necessarily help them cos nobody else in the whole world is me - and likewise, you also!

Stay strong and live hopefully- and most importantly to me personally - keep a good sense of humour ! Giggling about stuff when I can is and always has been one of my coping strategies. Thing about 'here' is that whatever folk tell us - somebody if not everybody will 'get' what you're on about.
Thank you. You've provided me with my first diabetes laugh - there's really zero problem providing a wee sample. I have had a virus that I've not been able to shake while the others around me have thrown it off. I just feel exhausted but these gathering messages
 
You may find all you need to do is moderate your portions of those high carb foods but there will be plenty you can still eat. There is absolutely no need to have low at unless you need to for other conditions and certainly best to avoid low fat as those products are sometimes higher not always than normal fat.
No need to rush into anything take your time to sort out suitable foods, there is no rush.
Thank you. Yes. No need to rush. I want to do this well, but hurrying won't help that
 
Welcome to the forum @BroccoliQueen

Sorry to hear you’ve had diabetes added to the mix of what sounds like an already challenging collection of requirements :(

There are a number of forum members who have to tread that narrow wobbly line of balancing multiple conditions, and their needs, and the. accommodating diabetes on top of that, so you aren’t alone.

Hope you get some clarity over your diagnosis and the type of diabetes you have soon. It does ‘feel’ more likely that it might be T2 from what you’ve said (and because T1 variants usually are diagnosed with a more dramatically raised HbA1c), but it’s interesting to hear you may have some late-onset T1 in your family.

Does your username suggest that you are OK with broccoli? Which other veggies are you able to eat? How about eggs, meat, and dairy? I’m sure there will be an overlap between the requirements of your conditions which will provide you with a flexible and enjoyable menu. Half the time with diabetes it seems to be finding the workarounds and ‘swaps’ that keep things pottering along nicely.
 
Back
Top