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Type 3C

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AnnieL

AnnieL

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Type 3c
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Hi have just joined and have been looking to see if there is a thread or group here for people with Type 3C. Did a search but it said it ignores 3C as too short or common. Thanks, Annie
 
I'll call in our resident T3c expert. Oh @eggyg 🙂
 
No problem @AnnieL

Welcome to the forum and any questions you have please fire away.
 
Hi Annie and welcome

I am not sure where you read that info but we certainly have 3c members here who, to a large extent, should be considered Type 1 with added complications. I'm not sure it is necessary to have a Type 3c group here as I don't think we have specific groups for Type 1 or Type 2 or LADA or MODY etc.... we just all muck in together but if you have specific 3c problems then obviously titling a thread to that effect will be more likely to attract attention from other 3cs although after a while reading the forum, many of us pick up bits of info about the other Types, or know where to direct people if we don't know.... ie @adrian1der tagging @eggyg

Can you tell us a bit about how you come to be Type 3c, which if any insulin(s) you are using and if you use Creon and how long you have been diagnosed. There can be a significant range of approach and treatment with 3c I believe depending upon how much of your pancreas is compromised/removed etc.

Is there anything specific which is causing you problems or you need help with or are you just wanting to compare notes with others in a similar position to yourself, which can be a massive benefit in itself, so I hope you find being a member here really helpful, even if we don't have a specific group for you to join.
 
It's an annoying problem with the search function, ignoring short words! However, if you search 'creon' you will find pages of 3c related threads/posts.

Welcome to the forum!
 
rebrascora said:
Hi Annie and welcome

I am not sure where you read that info but we certainly have 3c members here who, to a large extent, should be considered Type 1 with added complications. I'm not sure it is necessary to have a Type 3c group here as I don't think we have specific groups for Type 1 or Type 2 or LADA or MODY etc.... we just all muck in together but if you have specific 3c problems then obviously titling a thread to that effect will be more likely to attract attention from other 3cs although after a while reading the forum, many of us pick up bits of info about the other Types, or know where to direct people if we don't know.... ie @adrian1der tagging @eggyg

Can you tell us a bit about how you come to be Type 3c, which if any insulin(s) you are using and if you use Creon and how long you have been diagnosed. There can be a significant range of approach and treatment with 3c I believe depending upon how much of your pancreas is compromised/removed etc.

Is there anything specific which is causing you problems or you need help with or are you just wanting to compare notes with others in a similar position to yourself, which can be a massive benefit in itself, so I hope you find being a member here really helpful, even if we don't have a specific group for you to join.
Click to expand...
Thanks Barbara - I meant the search wasn’t possible because the words “Type 3C” was too short or common
I had necrotising pancreatitis in 2008 and became diabetic after a number of necrosectomies. I was on Creon for a few years but am now digesting food OK. I take Lantas and NovaRapid. I have been jogging along on this treatment but now want to explore different treatments - my fingertips are so calloused . I have recently moved to live in Scotland - Ayrshire and the system is different up here.
 
Ah! Thanks for the extra info.
Great that you can now manage without Creon! Did you need to adjust your diet to achieve that?
As regards technology, you should be entitled to the same as Type 1 but not all Type 1s can get Freestyle Libre on prescription or an insulin pump. You may have more success in Scotland as I believe some Type 2s can get Libre up there whereas in England I think that would be exceptional. Have you done the Free 2 week Libre 2 trial. If not, go to the Abbott website and see if you qualify.... I think the only limitation in your case may be whether you have a compatible phone, but definitely worth checking out as many Type 2s have been taking advantage of the free trial. Libre is a fantastic system when it works well (a real game changer) but it has had problems with reliability. Worth giving it a go for free though, even just to give your finger tips a bit of a rest.... it can be quite addictive though so at the end of the trial, you might suddenly feel more vulnerable than you did before. Being able to scan as many times a day as you like can be very reassuring.

Anyway, that is just my input to your situation. I am sure Elaine @eggyg will be along in due course to give you her take on the situation.
 
rebrascora said:
Ah! Thanks for the extra info.
Great that you can now manage without Creon! Did you need to adjust your diet to achieve that?
As regards technology, you should be entitled to the same as Type 1 but not all Type 1s can get Freestyle Libre on prescription or an insulin pump. You may have more success in Scotland as I believe some Type 2s can get Libre up there whereas in England I think that would be exceptional. Have you done the Free 2 week Libre 2 trial. If not, go to the Abbott website and see if you qualify.... I think the only limitation in your case may be whether you have a compatible phone, but definitely worth checking out as many Type 2s have been taking advantage of the free trial. Libre is a fantastic system when it works well (a real game changer) but it has had problems with reliability. Worth giving it a go for free though, even just to give your finger tips a bit of a rest.... it can be quite addictive though so at the end of the trial, you might suddenly feel more vulnerable than you did before. Being able to scan as many times a day as you like can be very reassuring.

Anyway, that is just my input to your situation. I am sure Elaine @eggyg will be along in due course to give you her take on the situation.
Click to expand...
It was eventually discovered that I had Pancreas Divisum and both ducts were blocked. I developed a 20cm Pancreatic Pseudocyst - this was treated via an endoscopic procedure when stents were inserted to drain in into my stomach. I now have a fistula there and apparently pancreatic enzymes are flowing through it (unsure of correct wording), hence not needing Creon anymore. I no longer get pancreatitis either which is a relief. Like a lot of folk with this condition it took years to get a diagnosis and it took 8 months in hospital to find out.
Will check the Abbott website - have an iPhone X
 
Welcome @AnnieL.
I’m here! Sorry I just noticed I’d been tagged.
Yes I’m a Type 3c. Very long story short.
2001. Pancreatitis caused by gallstones. 6 weeks in hospital, emergency gall bladder removal and pseudocysts drained.
2007. Pancreatitis attack, ultrasound, MRI, ultrasound endoscopy. Result, tumour on pancreas. Distal pancreatectomy (partial pancreas removal) and splenectomy. Tumour pre cancerous. Four weeks in hospital. Creon and penicillin prescribed.
2010. Diagnosed Type 2 diabetic. I know, mad eh? Diet and Metformin. Didn’t work of course.
2014. Put on insulin, at last, mixed. Didn’t work out so put on MDI. Fantastic. Asked to go on a DAFNE course to learn how to carb count. Computer said no! I wasn’t a “real” Type 1.
2018. After much nagging went on course. The DSN running it knew one other weirdo like me and I cried! I felt at last someone understood. Now get treat as Type 1, hoping to get Libre on prescription very shortly. Going on education course next month.
I live a full life on the whole. Not much spontaneity!
Any questions or just need a natter, fire away. Elaine.
 
Welcome to the forum @AnnieL

Yes we have a few Type 3c on the forum (sorry about the search function - it can be frustrating at times!)

Goodness what a rollercoaster ride you’ve had. And yes, while 3c is fairly well known on the forum, it does seem that some Drs and clinics haven’t really heard of it.

Look forward to hearing more of your story and experiences in the weeks and months ahead 🙂
 
Welcome to the forum @AnnieL
I am very glad that you have found us. As others have said we all muck in together and help each other out. For specific 3c stuff @eggyg is a useful source of good advice, otherwise th8gs about insulin’s and tech stuff we will help where we can.

The Libre definitely gives you a lot of useful information to look at and it helps people head off hypos and hypers, as well as educating us about the impact of certain foods. We all react differently so it is a case of finding what works for you diet wise, especially with additional issues, although it is good to know that your plumbing has enabled you to come off creon

Fire away with any questions that you have. Nothing is considered silly on here.
 
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