Initially diagnosed as Type 2 four/five years ago (age 54/55), started Metformin. I questioned diagnosis as Type 2 as I could see no reason, very healthy lifestyle and diet throughout life, no family history, usually healthy weight and BMI, no visceral fat (privately tested). Tested for Type 1 and not type 1.
Kept pushing on type 2 diagnosis, lost weight without reason, referred to a consultant and re defined as type 3c three years ago (Age 56)
Diagnosed with an enzyme defficiency three years ago. Prescribed Creon, Enzyme replacement therapy. This therapy has worked well since then.
Cause of type 3c, chronic pancreatitis. Not diagnosed until three years ago, via a CT scan, pancreatic damage found. Pain and issues since 19. Previously put down to IBS, everything else (not pancreatitis) tested for and ruled out. But this was in the 80’s and 90’s.
Cause of chronic pancreatitis confirmed by genetic blood testing as genetic, one month ago.
Older Sister diagnosed with Pancreatitis at age 11 and in her 30’s. No further conditions diagnosed since then. No enzyme defficiency and no diabetes.
Initially Gliclazide added to Metformin.
I was warned it would be likely I would need insulin in the near future. Started insulin 18 months ago.
Libre 2 sensor prescribed on the NHS 1 year ago, really helped with sugar level management. I work really hard at it and usually over 70% in range. But lows difficult to manage/can drop dramatically.
Sugar levels can vary dramatically and drop very quickly. I am told this is very symptomatic of Type 3c as the pancreas is damaged it does not produce Glucogen (another hormone, basically does the opposite to insulin) as well as insulin. “Brittle diabetes”
I continue to exercise quite a lot which also makes it very difficult to manage lows. I reduce my insulin when exercising within an hour, so go high, then drop like a stone when exercising. Libre 2 sensor helps immensely with this.
Currently referred to a consultant to go on a pump, meaning the insulin delivery can be fine tuned much more, aiming to keep in range much more of the time and manage the lows much better. Hoping to reduce my day to day work load/input too as it does get too much at times.
My diagnosis and route is very specific (I am not special, this seems to be very representative of type 3c as so many causes and so little known about it in comparison to type 1 and 2). I am getting lots of support from the professionals/very lucky to have really good ones. So I am not on the forum at this stage for advice or help (although that might change if I start using a pump) but I wanted to share in case others out there are on a similar journey.
Kept pushing on type 2 diagnosis, lost weight without reason, referred to a consultant and re defined as type 3c three years ago (Age 56)
Diagnosed with an enzyme defficiency three years ago. Prescribed Creon, Enzyme replacement therapy. This therapy has worked well since then.
Cause of type 3c, chronic pancreatitis. Not diagnosed until three years ago, via a CT scan, pancreatic damage found. Pain and issues since 19. Previously put down to IBS, everything else (not pancreatitis) tested for and ruled out. But this was in the 80’s and 90’s.
Cause of chronic pancreatitis confirmed by genetic blood testing as genetic, one month ago.
Older Sister diagnosed with Pancreatitis at age 11 and in her 30’s. No further conditions diagnosed since then. No enzyme defficiency and no diabetes.
Initially Gliclazide added to Metformin.
I was warned it would be likely I would need insulin in the near future. Started insulin 18 months ago.
Libre 2 sensor prescribed on the NHS 1 year ago, really helped with sugar level management. I work really hard at it and usually over 70% in range. But lows difficult to manage/can drop dramatically.
Sugar levels can vary dramatically and drop very quickly. I am told this is very symptomatic of Type 3c as the pancreas is damaged it does not produce Glucogen (another hormone, basically does the opposite to insulin) as well as insulin. “Brittle diabetes”
I continue to exercise quite a lot which also makes it very difficult to manage lows. I reduce my insulin when exercising within an hour, so go high, then drop like a stone when exercising. Libre 2 sensor helps immensely with this.
Currently referred to a consultant to go on a pump, meaning the insulin delivery can be fine tuned much more, aiming to keep in range much more of the time and manage the lows much better. Hoping to reduce my day to day work load/input too as it does get too much at times.
My diagnosis and route is very specific (I am not special, this seems to be very representative of type 3c as so many causes and so little known about it in comparison to type 1 and 2). I am getting lots of support from the professionals/very lucky to have really good ones. So I am not on the forum at this stage for advice or help (although that might change if I start using a pump) but I wanted to share in case others out there are on a similar journey.
