Susanann1955
Member
- Relationship to Diabetes
- Type 2
I have severe pancreatic enzyme deficiency and have been treated for Type 2 insulin dependent and wonder if it could be T3 and not T2. Anyone any experience of this?
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Type 3 diabetes
- Thread starter Susanann1955
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nonethewiser
Well-Known Member
- Relationship to Diabetes
- Type 1
Pumper_Sue
Well-Known Member
- Relationship to Diabetes
- Type 1
Hiya,
the answer is no they are different conditions. PEI is a lack of enzymes meaning you do not digest food unless you take Creon.
Type3 is a lack of insulin due to pancreatic surgery.
sololite
Well-Known Member
- Relationship to Diabetes
- Type 3c
In my case I was already diagnosed and being treated as LADA Type 1 for 6 years before a sudden weight loss and and attendent symptoms led to a PEI diagnosis too. Further scans and endoscopies revealed a large cyst. Subsequent surgery took out my pancreas. My surgeon called me a Type 3 diabetic. I do hope you are OK. Regards, Chris
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
We have a number of Type 3cs on the forums whose diabetes was the result of different forms of pancreatic damage or surgery.
Along with @eggyg I can also tag @soupdragon @Proud to be erratic and @martindt1606
There’s some general information about type 3c here which may help.
www.diabetes.org.uk
Along with @eggyg I can also tag @soupdragon @Proud to be erratic and @martindt1606
There’s some general information about type 3c here which may help.
What is type 3c diabetes?
You may have heard of the more common types of diabetes like type 1, type 2 and gestational. But there are actually many other types of diabetes that aren't as well known. Type 3c diabetes develops because of the damage to the pancreas, which can happen for a few different reasons. And although...
Proud to be erratic
Well-Known Member
- Relationship to Diabetes
- Type 3c
- Pronouns
- He/Him
There is a degree of confusion about the T3 nomenclature, not helped by a lack of international consensus on T3 and its subgroups.
In rhe USA and some other countries Type 3 (unspecified) is specifically attributed to people with dementia or Alzheimer’s disease.
An International Conference, some years ago, wrestled with the fairly obvious question of how should (might) a diagnosis be given to those people who were diabetic yet clearly were neither T1 nor T2, different in principle because their diabetes arose from any sort of pancreatic damage, including removal of one's pancreas. The Conference derived subsets of T3 a-k, whereby each letter was attributed to pancreatic damage from different circumstances: such as steroid damage, alcohol poisoning or accident. From this came T3c - originally attributed specifically to damage from surgery (including total removal), damage from accident and damage from pancreatitis.
The Conference agreed these definitions in principle, but the World Health Organisation did not endorse the T3 sub-types and this was then left open for a further review and agreement - which has not happened. Meanwhile there is a modest growing recognition by some specialists that some form of description was/is needed to distinguish people who had diabetes but not from T1 or T2 circumstances and the use of T3c has gained traction around the world, not just this forum! T3c is also recognised by NICE in connection with Pancreatitis.
Strictly, if pancreatic damage has arisen from (say) taking steroids, then it is not truly T3c, unless perhaps that damage has led to surgery and partial or total pancreatectomy. But given the small nos of people who fall into these discrete sub-categories it is not so surprising that any origin of pancreatic damage is increasingly being loosely attributed to T3c. And that certainly has become the position of the NHS.
So @Susanann1955 my view on your original question is you might be more correctly diagnosed as T3c - but you might not be.
If you have medically identified damage to your pancreas, from whatever cause and thus you're production of insulin is impaired then you really are not T2, but T3c. The significance of this could well be that the treatment path for 'normal' T2 could be inappropriate for your diabetes and additionally no-one will be reviewing why that need for pancreatic enzymes has arisen or addressing that different medical problem. My instinct is (and I have no medical qualification) your Pancreatic Enzyme Insuffiency (PEI ) is likely to have arisen from some sort of pancreatic damage, such as pancreatitis. That said, there are a small no of reasons why people have Pancreatic Enzyme Replacement Therapy (PERT), are then prescribed pancreatic enzymes such as Creon and those medical reasons can have nothing to do with diabetes. However, I would be asking for a referral to a Specialist in endocrinology, to establish why you have a pancreatic enzyme deficiency; PEI is not a medical condition in its own right, its a consequence of a medical problem. A more correct diagnosis of T3c for your diabetes, rather than T2, might result in different treatment and it should at least open the door to getting better support for 2 ailments: the cause of your PEI as well as managing your diabetes.
In rhe USA and some other countries Type 3 (unspecified) is specifically attributed to people with dementia or Alzheimer’s disease.
An International Conference, some years ago, wrestled with the fairly obvious question of how should (might) a diagnosis be given to those people who were diabetic yet clearly were neither T1 nor T2, different in principle because their diabetes arose from any sort of pancreatic damage, including removal of one's pancreas. The Conference derived subsets of T3 a-k, whereby each letter was attributed to pancreatic damage from different circumstances: such as steroid damage, alcohol poisoning or accident. From this came T3c - originally attributed specifically to damage from surgery (including total removal), damage from accident and damage from pancreatitis.
The Conference agreed these definitions in principle, but the World Health Organisation did not endorse the T3 sub-types and this was then left open for a further review and agreement - which has not happened. Meanwhile there is a modest growing recognition by some specialists that some form of description was/is needed to distinguish people who had diabetes but not from T1 or T2 circumstances and the use of T3c has gained traction around the world, not just this forum! T3c is also recognised by NICE in connection with Pancreatitis.
Strictly, if pancreatic damage has arisen from (say) taking steroids, then it is not truly T3c, unless perhaps that damage has led to surgery and partial or total pancreatectomy. But given the small nos of people who fall into these discrete sub-categories it is not so surprising that any origin of pancreatic damage is increasingly being loosely attributed to T3c. And that certainly has become the position of the NHS.
So @Susanann1955 my view on your original question is you might be more correctly diagnosed as T3c - but you might not be.
If you have medically identified damage to your pancreas, from whatever cause and thus you're production of insulin is impaired then you really are not T2, but T3c. The significance of this could well be that the treatment path for 'normal' T2 could be inappropriate for your diabetes and additionally no-one will be reviewing why that need for pancreatic enzymes has arisen or addressing that different medical problem. My instinct is (and I have no medical qualification) your Pancreatic Enzyme Insuffiency (PEI ) is likely to have arisen from some sort of pancreatic damage, such as pancreatitis. That said, there are a small no of reasons why people have Pancreatic Enzyme Replacement Therapy (PERT), are then prescribed pancreatic enzymes such as Creon and those medical reasons can have nothing to do with diabetes. However, I would be asking for a referral to a Specialist in endocrinology, to establish why you have a pancreatic enzyme deficiency; PEI is not a medical condition in its own right, its a consequence of a medical problem. A more correct diagnosis of T3c for your diabetes, rather than T2, might result in different treatment and it should at least open the door to getting better support for 2 ailments: the cause of your PEI as well as managing your diabetes.
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