Type 2 and confused

Status
Not open for further replies.

Deana

New Member
Relationship to Diabetes
Type 2
I was diagnosed last week with T2 and prescribed metformin. I am completely lost as to what I am supposed to be doing. My doctor diagnosed me gave me some leaflets and told me to go back in three weeks. I have made an appointment with my practice nurse to see if she can help guide me but I feel as if I have been let down by my doctor. Or is this the normal practice - diagnose and let the patient come to terms with it then help on the next appointment?

Any advice would be gratefully received.
 
Hi Deana, welcome to the forum 🙂 There can be an awful lot to take in at the beginning, but you will get there. Some doctors are better than others - some are woefully inadequate, unfortunately. If there is anything in particular, then please do ask - there are no 'silly' questions here and we'll be happy to do whatever we can to help 🙂

A good book recommended by many of our Type 2 members is Type 2 Diabetes: The First Year by Gretchen Becker, which should give you a good grounding on what to expect.
 
hi deana welcome to the forum ....yep when i was dx 18months or so ago i was given the 'sheet' and then saw DSN ...took my tablets avioded all sugar...then after a year i found here and it has helped tremendously ...just knowing i wasnt the only one ...main thing is take everything one step at a time... are you testing your BS ?
 
hi deana welcome to the forum ....yep when i was dx 18months or so ago i was given the 'sheet' and then saw DSN ...took my tablets avioded all sugar...then after a year i found here and it has helped tremendously ...just knowing i wasnt the only one ...main thing is take everything one step at a time... are you testing your BS ?

Hi and thanks for answering. No I am not testing my BS and this is where my confusion begins! My friend had type 2 and she tested regularly to make sure everything was ok. I have been told nothing at all by my doctor and when I rang my surgery to try to get some more information or an appointment with someone the receptionist was very unhelpful and didnt want to give me an appointment with anyone until I insisted. I am seeing the practice nurse tomorrow and have a long list of questions to ask her but I dont know if I am over reacting by this lack of information or it is normal. I have looked on the web for things to help but I dont know which way to go. Perhaps I will be better informed after tomorrow - well fingers crossed that I am anyway. Thanks again - here's to tomorrow.
 
Hi Deana, unfortunately there is no clear policy on the issuing of test strips and meters. The strips are expensive, so some PCTs are reluctant to prescribe them unles the patient is on insulin or some other medication that may cause blood sugar lows (hypos). Most informed people do believe though that testing is extremely useful, especially when you are newly diagnosed, as it helps you learn how different foods affect you so that you can modify your diet appropriately.

Have a read of the following link and you will have a good idea of the value of testing when you have your appointment:

http://www.diabetessupport.co.uk/boards/showthread.php?t=5836
 
hi denna ...it was my dsn who gave me my meter and i am lucky to have a surgery that lets me have prescriptions for the strips ...ask your dsn x
good luck ....its all so confusing at first your head will feel its in a spin but dont worry we dont regard any questions as silly here 🙂
 
Hi Deana, and welcome to the forum.

When i was first diagnosed my doctor told me virtually nothing and left it all up to the practice nurse. Luckily she's a lot more easy to talk to than my doctor. Do you live near to your local general hospital? Mine has drop in sessions every tuesday and basically give you access to more people to get advice from.
Northy's book suggestion is good, i have a copy myself and have found it hugely helpful because it not only explains the science stuff but also gives advice on how to manage your everyday life. Diabetes UK also publishes a question and answer type book for type 2s (there's one for type 1s too) by Drs Kilvert and Fox (Cheap plug, they run my Hospital's diabetes centre). Diabetes UK also have loads of leaflets you can download from thier website. You can also ask about XPERT or DESMOND courses, these are courses for type 2s, and the DESMOND one is suitable for the newly diagnosed and confused (i haven't been on the XPERT one myself but have heard good reports, Steff is the person to ask here.). DESMOND explains quite abit about food and how it affects you and a bit about medication and so on.
My GP is very anti testing, my PCT has ruled out providing strips, although the hospital clinic is keener. There's been reports in the medical (well, pharmaceutical) press about how knowing you blood sugar is of benefit to all people with diabetes, but that doesn't seem to have gotten through to Northamptonshire PCT yet..
If you've got any specific questions, about medication, food, lifestyle, medical jargon, whatever, feel the need to rant and rage, or simply need a bit of moral support, feel free to ask or make yourself heard. Somebody here will have the answer. Well, except to the really annoying questions like "why me?" and "why won't it go away?!?". ;-)

Rachel
 
I can confirm that the Diabetes Xpert course (run by the NHS) is worth going on. It is one afternoon a week for six weeks and covers most of the basics. I found it really useful.

Ask your GP or DSN about it.

Andy 🙂
 
Hi and welcome to the forum, the book Northerner has mentioned is brill and will really help you, im afirad i have found in my own experience that you can just be diagnosed and left to your own devices my doctor was terrible and subsequently i sacked him so to speak.
 
Hi Deana,

As far as I'm concerned the most important message that any Type 2 needs to learn is the need to cut back dramatically on the starchy carvbohydrate foods that you eat in addition to the sweet sugary foods - i.e. cereals, bread, potatoes, pasta, rice, pizza etc. Doing that usually leads to a big reduction in blood glucose readings and very quickly too.

Testing is a great idea too so that you can see what different foods do to your blood glucose levels.

Unfortunately, your healthcare team may tell you "do not test" and "eat plenty of starchy carbohydrate" because often - amazingly as far as I'm concerned - they do just that! I'm a Type 2 also and following that advice to the letter led to my condition worsening over eight years - i.e. my HbA1c going from 5.7% to 9.4%. Over the last eighteen months - since I started testing and eating much less starchy carbohydrate - my HbA1c has come down to 5.1% last time and I'm expecting to be even lower the next time.

These days, the healthcare professionals would say that I'm not diabetic by most of the usual measures that they use to detect the condition.

You can read more details of my story in detail elswewhere on this forum:

http://www.diabetessupport.co.uk/boards/showthread.php?t=3961&highlight=reversal

Also, here are details of what I eat these days:

http://www.diabetessupport.co.uk/boards/showthread.php?t=6435&highlight=reversal

I hope that you might find some interest and get some ideas from those posts.

Very best wishes - John
 
I was diagnosed last week with T2 and prescribed metformin. I am completely lost as to what I am supposed to be doing. My doctor diagnosed me gave me some leaflets and told me to go back in three weeks. I have made an appointment with my practice nurse to see if she can help guide me but I feel as if I have been let down by my doctor. Or is this the normal practice - diagnose and let the patient come to terms with it then help on the next appointment?

Any advice would be gratefully received.

Hi there,
no you havent been personally "let down" - your experience is so typical for new T2s.
Your Practice Nurse might not be much use either - she will probably just sing from the established hymn sheet - "no need to test" etc.
Print out and read Maggie Davey's Open Letter to New T2s- it talks far more sense than what you are going to hear from your "team" ....
http://www.sequin.pwp.blueyonder.co....ds/openlet.pdf
 
Hi Deana

Welcome to the forum! You will be just fine mainly because you have discovered this forum. Plenty of advice around and always someone to point you in the right direction. Unfortunately your experience so far with the doctors is fairly typical and certainly is similar to my own. The recommended books are a good starting point. Good luck with your appointment, I hope you get some decent advice. 🙂
 
Hi Deana and welcome. Also congratulations on finding this site because it is going to help you so much.

I was diagnosed over the phone when I phoned my blood test results - "you are diabetic. Oh, you want to make an appointment?". The first appointment with the doc was a waste of time and he was annoyed I had not gone straight to the practice nurse. She was slightly better but that is the total sum of support I can expect from that practice. No testing, no dietician, no foot specialist, no diet sheet. Come back in 3 months for another blood test and let's see what changes.

Reading this site, plenty of others have similar stories so hopefully this will make you feel better. Someone at work has helped me tremendously and said to read all the labels on food. I tend to compare with other labels and take whatever is lower in carbs and sugar.

We are all different so there is no absolute correct way to tackle diabetes. What works for one, doesn't work for another. But this site will help you learn that.

Keep visiting and posting as not only will you learn, but you will be teaching us too.
 
Hi Deana, welcome to the forum.
 
No, you're not over reacting! You should have been sat down and talked to about what all this means, what the drugs are supposed to achieve and what you can do. The main things are diet, exercise and remembering to take the pills. You should ask if you can have a Glucose monitor and strips (prescribed). You probably won't get them, but you should still ask. Testing is one of the most important tools in our armory for dealing with this disease but type two's are often refused strips unless they're on drugs that might cause hypoglycaemia, which unfortunately is not Metformin. In the near future you should also have tests for retinopathy (eyes) and neuropathy (feet and fingers - mostly). As you're on Metformin you should also ask for a prescription exemption certificate to which you are entitled. There's a form you need to fill in to get this, ask the practice nurse when you see her.

Some of us find a low carb diet helps lower our blood sugars. Although it doesn't work for everyone, reducing your intake of bread, rice, pasta and potatoes can make a big difference. Certain high sugar fruits like bananas and grapes should be avoided too :(, but berries are fine I find. Try swapping white bread, pasta and rice for smaller portions of the wholemeal/whole grain versions and bulk out your meals with veg.

I think that about covers it.

I was initially diagnosed as Type 2 and the practice I was with then were brilliant. The doctor sat me down and told me the unvarnished truth, made me an appointment with their practice nurse for the following day and filled out the prescription exemption form for me. The nurse was just as good, she gave me a monitor and strips and showed me what to do with them. My current practice isn't so good, they won't let me have strips and the doctor's a divvy, but the nurses are great.

If your practice is no good is there another nearby you could shift across to?
 
I Hate Diabetes

Guys, nobody becomes type 2 diabetic overnight. Every year while i was living in the UK I had my blood sugar levels ltested, and they said I was fine. Two months later when I moved to Brazil I HAD A ROUTINE BLOOD Examination ( since there is a history of this deadly disease in my family ) and was DIAGNOSED WITH FULLY BLOWN DIABTES TYPE 2.........................................................I think the NHS is FAB when dealing with emergencies but otherwise, very disapointing.
 
I would just like to thank everyone who answered my post. I have taken your advice and ordered the recommended book - it is on its way as I type.

I went to see the practice nurse and she talked me through everything that I need to know and I think I am now understanding things a little better - and your comments helped as well. She said I had done the right thing in joining your group as people who have the condition can help each other enormously. So here goes to my new life - I know I have to change the way I live but not to an enormous extent - be sensible and safe. I was very frightened to start with but know now that as time goes on I will be more knowledgeable as to what I should and shouldnt do.

Thanks again
 
I would just like to thank everyone who answered my post. I have taken your advice and ordered the recommended book - it is on its way as I type.

I went to see the practice nurse and she talked me through everything that I need to know and I think I am now understanding things a little better - and your comments helped as well. She said I had done the right thing in joining your group as people who have the condition can help each other enormously. So here goes to my new life - I know I have to change the way I live but not to an enormous extent - be sensible and safe. I was very frightened to start with but know now that as time goes on I will be more knowledgeable as to what I should and shouldnt do.

Thanks again

Glad to hear that you are feeling a little less frightened by the whole business Deana 🙂 You've made a very good start to learning how to deal with diabetes, and that will really help you in the months and years to come. There are many thousands of people who never get the right advice and end up with dreadful problems that they never knew were avoidable. There will be ups and downs, but many people find that the diagnosis encourages them to undertake a much healthier lifestyle, and they end up feeling much better than they did before!
 
Status
Not open for further replies.
Back
Top