Type 1 trying to sort my life out

[hannahrbuckley1]

Hi everyone, I'm 19 and a student and have been diagnosed with type 1 for a year.

My HbA1C was 79 mmol/mol when diagnosed July 2018 so I started insulin, it was 47 mmol/mol in December 2018, then 51 mmol/mol in April 2019 and finally was a shocking 89 mmol/mol in August this year. A result of 47 mmol/mol was incredible for me. And the 51 mmol/mol is also something to be proud of, especially within the first year. Then it all went so wrong.

I want to get my health back on track after falling off the wagon, drinking too much on nights out, barely ever testing my blood and not caring about anything. I'm pretty sure my blood sugar was permanently over 10mmol for weeks but I don't know because I barely ever tested and only gave myself the minimum amount of insulin. I was scared of the testing meter and of responsibility of saving myself.

Recently I've been doing SO WELL. I manage to test between 4-10 times a day every day for over 2 weeks, and have had some surprisingly good readings. Plus I've really been calculating my carb intake well, and sticking to spirits and diet mixers or dry wine when out which don't seem to have a big effect on my blood, as long as I don't go overboard with them haha.

I had a bad hypo today even after monitoring my blood really well (tested 6 times so far today). But I no longer feel scared of the testing meter and 70% of the time my blood is within the normal range now (even though I'm getting more hypo's).

I'm going to be sharing my blood sugar regularly here until I no longer feel like I'll fall off the wagon again. I'm getting another HbA1C test in December so I want that 89 to be drastically reduced. I'd love to get a result of below 60 mmol/mol

Its been my own personal hell since diagnosis but I won't let this stupid disease kill me.

Thank you!

 

[SB2015]

Hi everyone, I'm 19 and a student and have been diagnosed with type 1 for a year.

My HbA1C was 79 mmol/mol when diagnosed July 2018 so I started insulin, it was 47 mmol/mol in December 2018, then 51 mmol/mol in April 2019 and finally was a shocking 89 mmol/mol in August this year. A result of 47 mmol/mol was incredible for me. And the 51 mmol/mol is also something to be proud of, especially within the first year. Then it all went so wrong.

I want to get my health back on track after falling off the wagon, drinking too much on nights out, barely ever testing my blood and not caring about anything. I'm pretty sure my blood sugar was permanently over 10mmol for weeks but I don't know because I barely ever tested and only gave myself the minimum amount of insulin. I was scared of the testing meter and of responsibility of saving myself.

Recently I've been doing SO WELL. I manage to test between 4-10 times a day every day for over 2 weeks, and have had some surprisingly good readings. Plus I've really been calculating my carb intake well, and sticking to spirits and diet mixers or dry wine when out which don't seem to have a big effect on my blood, as long as I don't go overboard with them haha.

I had a bad hypo today even after monitoring my blood really well (tested 6 times so far today). But I no longer feel scared of the testing meter and 70% of the time my blood is within the normal range now (even though I'm getting more hypo's).

I'm going to be sharing my blood sugar regularly here until I no longer feel like I'll fall off the wagon again. I'm getting another HbA1C test in December so I want that 89 to be drastically reduced. I'd love to get a result of below 60 mmol/mol

Its been my own personal hell since diagnosis but I won't let this stupid disease kill me.

Thank you!

Well having read this I am not sure that title to the thread is right.
You have definitely taken your Diabetes by the horns, and got back on track.
Well done, and I am glad that you have found the forum.
Loads of help and support available.

You clearly know what you need to do and when you choose to do that it works. Good to hear that you are back to testing and I am sure that your specialist team recognise just how well you are now doing. Did you stick with your care team at your home town, or is it local to your college/uni? Have you heard of the Libre system. This makes it a lot easier to test, as all you need to do is pass the reader/your phone over the sensor. This is now available on the NHS if you meet the criteria, one of which is that you test at least 8 times a day. For many the use of the Libre is a life changer (that includes me) so it would be worth asking about it.

How do you manage your diabetes. Are you in a pump or on Multiple Daily Injections?

I look forward to hearing of your continued progress.

 

[hannahrbuckley1]

Well having read this I am not sure that title to the thread is right.
You have definitely taken your Diabetes by the horns, and got back on track.
Well done, and I am glad that you have found the forum.
Loads of help and support available.

You clearly know what you need to do and when you choose to do that it works. Good to hear that you are back to testing and I am sure that your specialist team recognise just how well you are now doing. Did you stick with your care team at your home town, or is it local to your college/uni? Have you heard of the Libre system. This makes it a lot easier to test, as all you need to do is pass the reader/your phone over the sensor. This is now available on the NHS if you meet the criteria, one of which is that you test at least 8 times a day. For many the use of the Libre is a life changer (that includes me) so it would be worth asking about it.

How do you manage your diabetes. Are you in a pump or on Multiple Daily Injections?

I look forward to hearing of your continued progress.

Thank you. I'm feeling better for it, although it's still pretty stressful. My university have been a great help for me, they're amazing. I'm sticking with my doctors at home because they have a specialist young persons diabetes centre, so I have about 4 appointments a year with them. I only moved an hour away from home, much to my parent's delight!

I really really want the libre system! That's one of the reasons I started testing a lot more, because I seriously think it would change my life. I'm going to see whether I can get myself up to testing 6-12 times a day, which would be beneficial anyway since I'm prone to hypo's. Then I will ask at my next appointment in December.

I don't have anything connected to me right now, I inject myself with tresiba every day (I've always been good at taking that on time) and novorapid when I eat. I have to prick my finger to test which SUCKS because I get blood on my books when I'm reading haha.

I will be keeping you updated!

 

[SB2015]

Thank you. I'm feeling better for it, although it's still pretty stressful. My university have been a great help for me, they're amazing. I'm sticking with my doctors at home because they have a specialist young persons diabetes centre, so I have about 4 appointments a year with them. I only moved an hour away from home, much to my parent's delight!

I really really want the libre system! That's one of the reasons I started testing a lot more, because I seriously think it would change my life. I'm going to see whether I can get myself up to testing 6-12 times a day, which would be beneficial anyway since I'm prone to hypo's. Then I will ask at my next appointment in December.

I don't have anything connected to me right now, I inject myself with tresiba every day (I've always been good at taking that on time) and novorapid when I eat. I have to prick my finger to test which SUCKS because I get blood on my books when I'm reading haha.

I will be keeping you updated!

As I said before Well Done.
I look forward to hearing more.