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type 1 or 2?
- Thread starter Suzanne1
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Eternal422
Well-Known Member
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- Type 1
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- He/Him
As @Lucyr says, it is often a guess. Based on percentages, a person presenting with symptoms and high BG as an adult is most likely to be T2. A person presenting with sudden onset symptoms of high BG, unexplained weight loss and possibly ketones as well, regardless of age would be considered, at least initially, as T1. There are blood tests to help, but if not done soon after presentation of symptoms they may not be a reliable indicator.
Of course, such guesses are not always correct and there are a few people on here who were misdiagnosed as T2 but turned out to be T1, myself included. As with all things D related, nothing is ever clear-cut and we are all different. People can be late or slow onset T1 instead of having sudden symptoms.
@Suzanne1 - are you concerned you may be misdiagnosed?
Of course, such guesses are not always correct and there are a few people on here who were misdiagnosed as T2 but turned out to be T1, myself included. As with all things D related, nothing is ever clear-cut and we are all different. People can be late or slow onset T1 instead of having sudden symptoms.
@Suzanne1 - are you concerned you may be misdiagnosed?
im not concerned i have been misdiagnosed i just dont really understand any of it tbh. my gp thinks covid caused diabetes. only picked up randomly when they were doing bloods because my breathing was still a problem a year after covid. so follow up bloods, diagnosed and tried to be controlled by diet which didnt work at all so gp precribed meds. meds started lowering it but gave me non stop diarrhea. so meds changed. bloods now back to original levels and im just trying to understand it. gp said to give it a while longer and if they didnt start falling then they would consider different treatment so i suppose i was trying to read up and work out what that would be and what the differences are in treatment etc.
yesterday i had a perfect diet but checked bloods as i felt really sleepy and i was at 18.2 3 hours after eating. this morning i was at 11.2 before any breakfast. i dont think this is great on meds and trying to be good with diet is it?
thanks
thanks
rebrascora
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- Type 1
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What do you consider a perfect diet. Unfortunately there is a lot of misinformation out there about what is and is not a suitable diet for managing Type 2 diabetes which is why we encourage people to home test so that they can see what their body can cope with and what it can't. For instance, the NHS encourages porridge as a suitable breakfast, but porridge is like rocket fuel for my BG levels and I am not the only one. Similarly, they recommend fruit, which is healthy for non diabetics but needs to be restricted for many Type 2s and the type of fruit carefully selected as some fruits can have a lot of sugar whereas berries like rasps, blackberries, blackcurrants, strawberries etc are lower carb and tend to work best maybe with a few blueberries and an occasional half an apple.
Apologies if you already know this, but many people really don't get the right advice with diet at the start and therefore don't see the benefits that can be achieved by dietary changes.
That said, your levels are quite high and it is certainly worth considering a possible misdiagnosis, particularly if your diabetes hasn't responded to a low carbohydrate approach.
Eternal422
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I came across this some time back which shows a T2 care pathway (can’t remember which section of the NHS had this, I’m guessing it was from a local area somewhere in the country). It shows the many different drugs that can be used based on how you are doing with regard to reducing your hbA1c:
But as @rebrascora says, advice on diet is not consistent nor always good and it may need some tweaks to help improve your HbA1c. Or, possibly you have been misdiagnosed as T2? Your BG readings are quite high so it would definitely be worth asking more questions of your GP and get further help and advice.
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
Perhaps you would like to post some examples of typical meals and people might spot foods which might be causing problems.
What had you eaten when you tested and your result was 18.2 mmol/l
What had you eaten when you tested and your result was 18.2 mmol/l
Honestly I'd be happy to be spoken to like a five year old if it helped!!!
So I'm supposed to be combining a fodmap diet with diabetes diet which is proving fun.
I don't really do any cakes, chocolate, biscuits. Maybe literally once a month.
So yesterday, a breakfast biscuit that was recommended by the dietitian to have for breakfast as I have three disabled children and so struggle to have anything in the morning. So I have that and a coffe. Don't have sugar or anything in coffee.
For lunch I had a tuna steak and veg. For tea a cheesy sandwich.
Today I had the breakfast biscuit for breakfast, scrambled egg for lunch and a bacon sandwich for tea.
I do eat carbs but try to not have many. I don't really eat fruit as that triggers my ibs so tend to do veg and salad instead.
I ate tea at 3.30 ( too long to explain but have weird mealtimes in this house or I don't eat) and have done my bloods at 6pm and they are 20.4???
Either I'm doing something seriously wrong or something isn't working? Any advice is honestly appreciated
I had a breakfast biscuit for breakfast, scrambled egg for lunch, bacon sandwich for tea today, tested over two hours after tea and am over 20!
Yesterday when I tested at 18.2 I'd had breakfast biscuit for breakfast, tuna steak and veg for lunch and a cheese sandwich for tea. Bloods tested hours after tea.
It just makes no sense to me
Thank you. I can't read the chart on my phone but will look at it on laptop later. Thanks
Leadinglights
Well-Known Member
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- Type 2
To get an idea as to whether it is the food you are eating you need to test before you eat and again after 2 hours.
Your level does seem very high considering you are not having lots of carbohydrate so that makes me suspicious that you may not be a straightforward Type 2 and actually be Type 1 or LADA or need medication to help.
Do you have any ketosticks so you can test for ketones as with high blood glucose that could be a possibility and you should test if you feel unwell.
If you do some more testing that will also provide evidence that you are doing all you can with diet and need additional help. It would help if you could tot up how many grams of carb you are actually having.
Your level does seem very high considering you are not having lots of carbohydrate so that makes me suspicious that you may not be a straightforward Type 2 and actually be Type 1 or LADA or need medication to help.
Do you have any ketosticks so you can test for ketones as with high blood glucose that could be a possibility and you should test if you feel unwell.
If you do some more testing that will also provide evidence that you are doing all you can with diet and need additional help. It would help if you could tot up how many grams of carb you are actually having.
Thanks. This is my levels with medication?
What is lada?
I've done a stick and my ketones aren't even on the chart? Shows high protein, leukocyte, and glucose. My ketones are like a grey colour? Will see if I can attach a picture
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Inka
Well-Known Member
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- Type 1
That doesn’t sound excessive carbs. Do you test after breakfast? I wonder if you’re going a bit high then and that messes up the whole day afterwards.
LADA is basically a form of Type 1 that comes on in adulthood and often more slowly than when younger.
I tested a couple of hours after breakfast and was 12 point something.
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
Ok, so I guess you’re gradually going higher through the day as your body struggles to deal with your food. I don’t think that’s the fault of your food really.
If you are actually Type 1, you’ll need insulin to help your body’s deficient insulin production. Although that sounds frightening, it would actually mean you could eat and control your blood sugar better. In addition, some Type 2s need insulin to allow them to control their blood sugar too, but there are other medications they can try first.
If I was you, I’d write down a couple of days food and blood sugar readings so your GP or nurse can see how high you are and that you’re not eating excessively. Show them and specifically ask if you need more/different medication.
Brilliant thanks. I will start making a note of food and readings and talk to the Dr. Thank you
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
Remember to take before and after eating readings as that will be more meaningful.
Ok thanks, will do
rebrascora
Well-Known Member
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- Type 1
- Pronouns
- She/Her
With that diet and those readings I would say that it is likely you are a slow onset Type 1. Please do push for a referral to a diabetes specialist clinic where hopefully you will get some more support but if your ketone levels start to go up, please seek urgent medical advice ie 111 or A&E.
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