Hi everyone,
Have been reading posts on the forum for a while and have found everyone’s posts, comments and sharing of experiences invaluable - thank you!
Was first diagnosed with Type 2 in 2018 through my GP, managed by the Practice Nurse and started on Merformin and Gliclazide, then Empagliflozin and Ozempic after a couple of years. My HbA1C varied quite a lot, never perfect, but never awful. Tried a fasting diet at the beginning of 2023, kept taking Ozempic but stopped all the other meds and my HbA1C was 51 after 6 months. Started feeling unwell over Christmas 2023 (thirsty, peeing more, woolly headed), did a BM and my level was 25 so went straight back to the GP. A new Practice Nurse started me back on metformin and Gliclazide, repeated my bloods including autoantibody tests as I’d never had them done before. Bought myself a Dexcom sensor to keep track of my BM’s whilst waiting for the results for the next few weeks too which seemed all over the place (usually in the teens but sometimes >23). Had another review last Friday and got told by my nurse the results were back, HbA1C was 98 and the autoantibody test came back as positive so I was likely to be a Type 1. I didn’t have any ketones, so got told to wait for a call on Monday morning from the hospital to be seen by the consultant. Did some reading over the weekend and was expecting to be told on Monday that I had LADA and started on insulin.
Saw the consultant and specialist nurse at the hospital on Monday and left a little confused if I’m honest….
Consultant was great, but explained they didn’t believe in LADA - people were Type 1 as it was autoimmune driven or Type 2, insulin resistance. My GAD autoantibodies were 190, but no other autoantibodies detected. They suggested doing a C-peptide test and then reviewing me again to decide whether to treat me as a Type 1 or a Type 2. I guess I’m confused by the ‘black or white’/type 1 or type 2 view, despite having GAD autoantibodies they still may end up treating me as if I’m type 2 and discharge me back to my GP. They started me on 8iu Lantus daily and 2iu Trurapi before each meal in the meantime. Blood sugars are still spiking into the mid teens following meals, but going to start upping my rapid dose by a unit and see what difference it makes. Have ordered myself another months supply of Dexcom sensors to keep a closer eye on what’s going on too.
I’m guessing I might be left with the ambiguity until the C-peptide test comes back, but don’t know how the result will influence whether I get a type 1 or 2 diagnosis?
Apologies for the long rambling post! Just wondered if anyone else has had a similar experience or any insights to share?
Have been reading posts on the forum for a while and have found everyone’s posts, comments and sharing of experiences invaluable - thank you!
Was first diagnosed with Type 2 in 2018 through my GP, managed by the Practice Nurse and started on Merformin and Gliclazide, then Empagliflozin and Ozempic after a couple of years. My HbA1C varied quite a lot, never perfect, but never awful. Tried a fasting diet at the beginning of 2023, kept taking Ozempic but stopped all the other meds and my HbA1C was 51 after 6 months. Started feeling unwell over Christmas 2023 (thirsty, peeing more, woolly headed), did a BM and my level was 25 so went straight back to the GP. A new Practice Nurse started me back on metformin and Gliclazide, repeated my bloods including autoantibody tests as I’d never had them done before. Bought myself a Dexcom sensor to keep track of my BM’s whilst waiting for the results for the next few weeks too which seemed all over the place (usually in the teens but sometimes >23). Had another review last Friday and got told by my nurse the results were back, HbA1C was 98 and the autoantibody test came back as positive so I was likely to be a Type 1. I didn’t have any ketones, so got told to wait for a call on Monday morning from the hospital to be seen by the consultant. Did some reading over the weekend and was expecting to be told on Monday that I had LADA and started on insulin.
Saw the consultant and specialist nurse at the hospital on Monday and left a little confused if I’m honest….
Consultant was great, but explained they didn’t believe in LADA - people were Type 1 as it was autoimmune driven or Type 2, insulin resistance. My GAD autoantibodies were 190, but no other autoantibodies detected. They suggested doing a C-peptide test and then reviewing me again to decide whether to treat me as a Type 1 or a Type 2. I guess I’m confused by the ‘black or white’/type 1 or type 2 view, despite having GAD autoantibodies they still may end up treating me as if I’m type 2 and discharge me back to my GP. They started me on 8iu Lantus daily and 2iu Trurapi before each meal in the meantime. Blood sugars are still spiking into the mid teens following meals, but going to start upping my rapid dose by a unit and see what difference it makes. Have ordered myself another months supply of Dexcom sensors to keep a closer eye on what’s going on too.
I’m guessing I might be left with the ambiguity until the C-peptide test comes back, but don’t know how the result will influence whether I get a type 1 or 2 diagnosis?
Apologies for the long rambling post! Just wondered if anyone else has had a similar experience or any insights to share?