Type 1 newbie saying Hello

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LadySassa

LadySassa

New Member
Relationship to Diabetes
Type 1
Hello everyone,

I'm a Type 1 diabetic due to Severe Acute Pancreatitis caused by Gallstones in July 2009.

Still recovering from 5 months (July - December 09) of being seriously ill in hospital so I have only received basic information. I have a lot to learn about diabetes and how to care for myself once my life is back to normal again.

I'm hoping here is the friendly and supportive "missing link" that can help me understand my diabetes a bit better.:D

Thanks

Sassa
 
Good morning Sassa and a warm welcome to the forum , sorry to hear of your problems but never fear hun this place is full of very knowledgeble people from ones who have had diabetes a month to some who have had it years, ask anything you need no question is silly,someone will be here to help you anytime xx
 
hi sassa! welcome to the forum. i think a lot of people find this place is the missing link in a lot of ways. as steff said ask as many questions as you want, we once tried to add up how many years we'd collectively been diabetic and it came out at like 200 years or something?? so plenty of people to ask!

shiv 🙂
 
Hi Sassa, welcome to the forum.
 
Hello there! 🙂

I'm a Type 2 so will probably not get involved with any of your questions.

Andy
 
Hi Sassa, welcome to hte forum 🙂 We have a number of members who were made Type 1 due to pancreas problems, so hopefully they will be able to help you with the additional considerations that pancreas removal cause.
 
Hi Sassa,

Welcome to the forum, sorry to hear you've been so ill. I found this site a godsend and still do - like steff said no question is a silly one here 😉 x
 
Hi Sassa ..

Welcome to the forum .. the large extended family ... :D .. There is a wealth of knowledge and understanding on here hun ... always someone about who can either help or point you in the right direction ...

Hope you feeling a little better ... :D

Heidi
xx🙂
 
Hi Sassa,

I also had Severe Acute necrotising pancreatitis last year, in May. I was 16 weeks in hospital so I know how you feel. I'm back at work now, full time and it's a long hard road to get back to feeling well. It really is possible - I know I didn't believe I'd ever feel well again, but I do now, and so will you.

Suzanne
 
Hi Sassa, and welcome! Hope you start feeling better soon.
 
thanks

Thank you everyone for being so welcoming! I feel very reassured knowing there are lots of people to seek advice and reassurance and hopefully I can do the same for them 🙂
 
Hi Sassa,
Hope you are feeling better soon and welcome to the forum.
Lots of people to help you on here 🙂
Natb
 
Hi Sassa, just woke up to find I'm hypo so thought I'd check the forum whilst waiting for bs to go up again....I was diagnosed with a potential gall stone around 7 years ago which when investigated showed I had damage to the pancreas. After 5 years on Creon a scan identified a neo endocrine tumour which resulted in them whipping out the pancreas resulting in diabetes. Insulin is now part of the day to day routine however I do find support (away from this forum) a struggle as I have yet to meet a DSN or doctor who hasn't fallen back on the "of course your not a type 1 diabetic" line. BS now back to sleep levels, welcome to the forum and hope we can help each other in the future.
 
Hiya, welcome from me too.

Well - it may be true that you aren't a classic T1 of course (auto-immune condition and all that jazz) and you aren't a classic T2 (eg only first phase insulin missing; maybe/probably some degree of insulin resistance) or a 1.5 or in fact any of the other 'types' that have a handle currently. But if you don't produce ANY insulin and you are only looking at that one aspect of your condition, then it would be interesting to know how that particular HCP would treat it if it wasn't 'as a classic T1' LOL

But that's ignoring the other problems a person with no pancreas/a loss of entire/most pancreatic function will face, that classic T1's don't have to face! (eg trypsin, amylase etc) so either the HCP was being lazy and only looking at the one aspect of the loss of the beta cells, or they didn't know about the other aspects. 😱

Fortunately - there are centres that DO know - and one of our members (a lady whose name I can't recall, sorry) was recently referred to Bournemouth Diabetes and Endocrine Centre who have that expertise and she reported on the forum about what a relief it was to be talking to someone who appreciated both exactly what she was facing and how to deal with it.

If you aren't being treated 'right' by your clinic, ask to be referred elsewhere to somewhere with the correct expertise. I know BDEC see people from the whole country. But of course - you do have to get there .....
 
Hi sassa.

A belated welcome from me.🙂

Rob
 
LOL - I didn't notice that! - obviously!
 
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