type 1 looking for advice from some one whos on the pump :)

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Hiya im julieann and new to this site, i have joined in the hope that some one could give me advice who may be on the pump, I have had diabetes for 7 years now and my blood sugars are all over the place :( no matter how hard i try they just don't want to be in controlled. so after i have spoke to the diabetic nurses they have suggested the pump as they think i will befit from it and will help me gain more control. The problem is im not 100 % sure about it i did the ice course that our diabetic center holds and i was lucky enough to meet a women who was on the pump because she was having the same problem as me and she said its best think she ever did. just wondered if i could here from more ppl who have been in the same situation as me and if they changed to them pump how are you coping now?

Thanks julieann x
 
Welcome to the forum Julieann Hardman. More people, pumpers and others, will be online in the daytime. In the meantime, it's worth looking at the pumping section of the boards, as many people have asked about postive and negative effects of going on an insulin pump, so there will be some answers ready to read.
 
Hi Julieann,

My 12 year old son has been on a pump since he was 7, and I had a long fight to get him one! These are a few of the issues he was having on MDI which the pump helped address:

* His Lantus did not have a smooth 24 hour action in him. He would have to go to bed with a BG of 16+ to avoid being hypo before morning. Then around 4pm he would have no basal insulin left, and any exercise (such as after-school football or swimming lessons) made his BG soar into the stratosphere. On the pump you have no long-acting insulin, just a programmed trickle of novorapid (or humalog), and you can tailor a personal basal profile. My son has 8 different basal rates throughout the day, so he gets more or less background insulin at times he needs it. This is the closest approximation to a healthy pancreas!

* On MDI, he was having an average 7 injections per day. He is very slender, so injection sites such as arms and thighs suffered terrible bruising. Tummy and bottom injection sites were becoming lumpy. With the pump, the 7 injections a day were replaced by one needle (to introduce the cannula) every 2-3 days.

* He was diagnosed aged 4, and had relatively small insulin needs, yet his insulin pen could only deliver in increments of 0.5U, and his Lantus in whole units. On the pump, basal increments are 0.025U (1/40th), and bolus increments are 0.05U, so we can really fine tune his doseage.

* For foods such as pasta, we were finding that bolusing all in one go would send him hypo within an hour of eating, then high a couple of hours later, so on MDI we had to do 2injections a few hours apart. With the pump you can programme an insulin bolus for foods like this which delivers part of the insulin straight away and part over a few hours.

* Eating out and parties! On MDI this was a nightmare. Kids parties are often in mid-afternoon, between "normal" mealtimes. Buffets are hard because of "grazing" over a long time period. But bothe of these became SO much easier to handle on the pump, where you can just add a bit more insulin at the touch of a button rather than yet another injection.

* Insulin on Board is tracked by the pump so when you do a correction you take into account any insulin still circulating in your body from a previous bolus.

* Illness - you can imagine how many bugs a 4 year old picks up! On injections trying to manage feverish illness or vomiting bugs was a Nightmare! On the pump, you can easily reduce or increase the basal rate on a temporary basis to help control levels.

* Exercise - again, basal can be altered whenever suits you. My son has a combination of snacks and reduced basal for sport, and may also run a reduced basal for a few hours overnight to prevent post-exercise hypos.

* Different basal needs at weekends. He is more active on schooldays, plus it's a routine schedule. At weekends he is lazier, so now we have the pump we can have a completely different basal pattern for weekends.

There is lots more I could say but if I haven't bored you into submission yet I would just say "go for it!" You won't regret it. His a1c went down from the high 8's to the low 7's with the occasional 6.9. He feels much better in himself without the swinging levels he had on MDI - rarely goes above 14 on the pump.

🙂 🙂 🙂 🙂 Pumps rock!!!!
 
There isnt a PERFECT answer yet but I wouldnt give it back. After over 45yrs of mdi 😱 Go 4 it 🙂
 
Just go for it but do prepare yourself for some hard work at the beginning

My son went on the pump in January as his HbA1c was always around 9. After 3 months even with the first couple of weeks his readings being quite high because we hadn't worked out his basal rates it had come down to 7.9

There are so many advantages of the pump
1. Background insulin matched to you
2. You can eat whenever you want as the pump will calculate how much insulin you need taking into account what insulin you have left over from the last meal. as well as your current reading
3. You have more options how you manage sports as you can reduce the background insulin while you exercise.
4. Less injections.
5. The pump can administer insulin corrections at any time.
6. You can upload all your date so that your diabetic carer can see everything whats happening.

The main downside is because you don't have any long acting insulin like Lantus, if there's any problems your levels will shoot up really quickly.

There's also an awful lot to learn.

My son's now been on the pump for 3 months. I would say the first month was horrendous and really stressful. The first couple of weeks his readings were really high during the night and had to be tested a couple of times during the night. I don't think I slept much in the first two weeks. But things did get better and I would say it's only now after 3 months that's we're beginning to turn a corner. So do be prepared for that initial period and let others around you know. If you do have problems at the beginning, don't think it's just you. As far as I know most people have problems.

One thing I would strongly advise is after you've been on the pump for a couple of weeks, read a book like Pumping Insulin as you'll find loads of tips for pump use, like I didn't know you can't get hand lotion or hairspray get onto the tube.

But in summary I would strongly advise anyone to go on the pump if they have the chance.
 
Hi Julieann. I've been diabetic for 42 years and had very erratic blood sugars. Until recently I had been reluctant to go on a pump. However I changed my mind last year and started on the pump on November 2oth. It is the best thing that I have ever done and it has made a huge improvement to my control. Some days I can go to bed at 5.2 and wake up at 5.3 the next morning. I never thought that would happen.
 
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