Type1Girl
New Member
- Relationship to Diabetes
- Type 1
Hi
I didn't want my first post to be emotional or negative, but I'm just very tired of it all today. I was diagnosed earlier this month after being admitted into the hospital with DKA. After months of feeling tired, thirsty, going to the toilet and losing lots of weight, it was good to know what was wrong with me. This didn't last long.
1. The 3rd night I was in hospital the night nurses didn't test me for over 3 hours and left me on a higher level of insulin on the sliding scale, I ended up hypo'ing and calling for a nurse at midnight. My BG was 3.
2. My DN sent the GP my prescription so I could pickup all the supplies I needed after hospital and it was not ready on the Friday, or open on sat/ sun, so I had to spend ?25 on more testing strips. I havent been working for around 8months and money had been tight, this didnt help.
3. After a week of using NOvorapid and Lantus and having a terrible rash, it was discovered that I am allergic to Novorapid and have been put on to Humalog. The DN again sent the script to the GP, and when I went in the next morning they said they hadnt received it. The DN had to ring the surgery and lose it before they signed it off as urgent. I then had to go to 5 different pharmacies to find Humalog, as I needed it for my next meal.
4. DAFNE - my hospital does not fund DAFNE. If i want to go on the course I have to change hospitals.
5. In some sense I am lucky as I have managed to keep my BG's pretty much under 10, but people around me dont realise how dangerous this disease is or the difference between Type 1 and type 2, it's like i have to constantly educate them and i'm tired of 'can you eat that, can you eat this'. I know it is concerned but sometimes my partner just drives me mad with 'you shouldnt eat this' or 'dont drink diet coke' - it's fine that everyone else is getting drunk but I cant even drink a diet soda!
6. My partner has really hurt me today, in an argument he said that I was using my diabetes to attention seek and that i was wrapping his family around my finger because they are all concerned. Also that I have been mean to him and knocking down the things he has said in terms of what to eat and what not to eat, the thing is I know better than him because I've read up on what to eat and what not to and how to bolus for meals with more / less carbs. He doesn't even know what I take or how much I take. He had a quick look when I was in hospital with DKA, but since then when I talk to him about it, he busies himself with work, or looking at his phone, but never actually listens. Occasionally he'll retweet something I have put on twitter but thats that. I'm scared about all the other autoimmune diseases I am more likely to get, about the cardio vascular issues, about not getting the right care, not knowing about insulin pumps, worried about going back to work, finances and checking my feet and what if scenarios. I am overwhelmed. And yet he throws back in my face how much care he took of me when I was in hospital and taking time off work. I know he is scared too, but it's different when you have to deal with it day in and day out and that you'll never be 'normal' again, or that you'll gain weight and not be able to control it.
I'm sorry to rant and I know my problems are tiny compared to others. I'm just tired. I didn't ask for this. I just needed to rant and say what I am feeling inside.
It's xmas eve and I haven;t had enough money for presents, and all I want is a BIG glass of red wine and a GIANT bar of chocolate.
I didn't want my first post to be emotional or negative, but I'm just very tired of it all today. I was diagnosed earlier this month after being admitted into the hospital with DKA. After months of feeling tired, thirsty, going to the toilet and losing lots of weight, it was good to know what was wrong with me. This didn't last long.
1. The 3rd night I was in hospital the night nurses didn't test me for over 3 hours and left me on a higher level of insulin on the sliding scale, I ended up hypo'ing and calling for a nurse at midnight. My BG was 3.
2. My DN sent the GP my prescription so I could pickup all the supplies I needed after hospital and it was not ready on the Friday, or open on sat/ sun, so I had to spend ?25 on more testing strips. I havent been working for around 8months and money had been tight, this didnt help.
3. After a week of using NOvorapid and Lantus and having a terrible rash, it was discovered that I am allergic to Novorapid and have been put on to Humalog. The DN again sent the script to the GP, and when I went in the next morning they said they hadnt received it. The DN had to ring the surgery and lose it before they signed it off as urgent. I then had to go to 5 different pharmacies to find Humalog, as I needed it for my next meal.
4. DAFNE - my hospital does not fund DAFNE. If i want to go on the course I have to change hospitals.
5. In some sense I am lucky as I have managed to keep my BG's pretty much under 10, but people around me dont realise how dangerous this disease is or the difference between Type 1 and type 2, it's like i have to constantly educate them and i'm tired of 'can you eat that, can you eat this'. I know it is concerned but sometimes my partner just drives me mad with 'you shouldnt eat this' or 'dont drink diet coke' - it's fine that everyone else is getting drunk but I cant even drink a diet soda!
6. My partner has really hurt me today, in an argument he said that I was using my diabetes to attention seek and that i was wrapping his family around my finger because they are all concerned. Also that I have been mean to him and knocking down the things he has said in terms of what to eat and what not to eat, the thing is I know better than him because I've read up on what to eat and what not to and how to bolus for meals with more / less carbs. He doesn't even know what I take or how much I take. He had a quick look when I was in hospital with DKA, but since then when I talk to him about it, he busies himself with work, or looking at his phone, but never actually listens. Occasionally he'll retweet something I have put on twitter but thats that. I'm scared about all the other autoimmune diseases I am more likely to get, about the cardio vascular issues, about not getting the right care, not knowing about insulin pumps, worried about going back to work, finances and checking my feet and what if scenarios. I am overwhelmed. And yet he throws back in my face how much care he took of me when I was in hospital and taking time off work. I know he is scared too, but it's different when you have to deal with it day in and day out and that you'll never be 'normal' again, or that you'll gain weight and not be able to control it.
I'm sorry to rant and I know my problems are tiny compared to others. I'm just tired. I didn't ask for this. I just needed to rant and say what I am feeling inside.
It's xmas eve and I haven;t had enough money for presents, and all I want is a BIG glass of red wine and a GIANT bar of chocolate.
