Type 1 diabetic with mody gene

[Ena Waterhouse]

I am now 67 years of age and have been a diabetic since I was 17. Have discovered in 2004 after being transferred from tablets to insulin that myself, daughter, 2 granddaughters and sister (no males) ahve the mody gene.

 

[Steff]

Hi there Ena and welcome to the forum, have yourself a good look around you have had diabetes many years but im sure your still finding out new things as years go by.We have a few members who are MODY so im sure you will have a lot in common x

 

[Northerner]

Hello Ena, welcome to the forum 🙂 Goodness, 50 years! Have you applied for your medal from Diabetes UK? See this link:

http://www.diabetes.org.uk/About_us...o-Medal-for-50-years-of-living-with-Diabetes/

 

[Old Holborn]

Hi Ena and welcome. 🙂

 

[am64]

hello and welcome to the forum 🙂

 

[Emmal31]

Hi Ena

Welcome to the forum 🙂 x

 

[PhilT]

Hi Ena, welcome to the forum.

 

[ilovekandi]

I am now 67 years of age and have been a diabetic since I was 17. Have discovered in 2004 after being transferred from tablets to insulin that myself, daughter, 2 granddaughters and sister (no males) ahve the mody gene.

Welcome Ena.

WOW 50yrs!! thats brilliant. 🙂

Would u mind tell me how they found out you were MODY?
Also how did it work out being on tablets having type 1?

Thats if you don't mind me asking, but its quite fascinating there are all these different types and we intrust our doctors to make the right diagnosis. Craziness!

Take care
Kt x 😱

 

[Sugarbum]

Hi Ena!

Welcome to the forum! 🙂

Hope you enjoy it, Im sure you have a lot of stories to share. Look forward to your posts.

Take care,
Lou x

 

[Ena Waterhouse]

Steff2020;132497

Hi there Ena and welcome to the forum, have yourself a good look around you have had diabetes many years but im sure your still finding out new things as years go by.We have a few members who are MODY so im sure you will have a lot in common x

Hi Steff. You are right that things are quite exciting now in the diabetes world and lots of new medications are in the pipeline. I remembers (bearing in mind that I am 67) when my grandad was using his insulin about 60 years ago when he had a great big syringe which had to be sterilised in boiling water. no blood testing kits or diet info in those days. of course animal insulin was used then and I must admit I find the humalog very aggressive, very quick acting whereas the lantus seems to be very gentle. hope you are keeping well

 

[Ena Waterhouse]

Welcome Ena.

WOW 50yrs!! thats brilliant. 🙂

Would u mind tell me how they found out you were MODY?
Also how did it work out being on tablets having type 1?

Thats if you don't mind me asking, but its quite fascinating there are all these different types and we intrust our doctors to make the right diagnosis. Craziness!

Take care
Kt x 😱

Hi there. I discovered the mody gene in 2004 when my granddaughter who was 19 at the time was refusing to take her insulin and showing blood sugars in excess of 20. She never had an hypo or hyper and her lifestyle left a lot to be desired. because of this she was tested for the mody gene which was positive and then the rest of the family with diabetes were tested also. Because of this the younger members of the family no longer needed insulin and are now taking tablets. It is complicated but the doctors are endeavouring all of the time to do what is best for the patient.

 

[sofaraway]

Welcome Ena,

Nice to see another MODY here, do you know which gene mutation you have?

 

[Ena Waterhouse]

Mody Gene

Thanks for your interest. The finding of my mody gene were V246L/N
as tested by the Royal Devon and Exeter Health Care which I believe is
part of the Exeter University.