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Type 1.5 LADA

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Southerngirl64

Southerngirl64

New Member
Relationship to Diabetes
Type 1.5 LADA
Hi, I have been Type 2 for nearly six years but today was diagnosed 1.5 LADA. Feels like I am learning all over again!
 
Hi and welcome.

How did your re-diagnosis come about?
Have they started you on insulin and if so, which ones?
Have they given you a Freestyle Libre sensor or do you just have a BG monitor at the moment for finger prick testing?

I know it is really overwhelming at first but there are lots of us here who were initially misdiagnosed and we are here to support you and fill in any blanks, which I know from personal experience happen, because I was too shell shocked to take in half the info that the nurses were telling me at the time. It is a very steep learning curve and an emotional roller coaster so do be kind to yourself and give yourself time to come to terms with it.
If you have any questions then feel free to ask. It doesn't matter how basic they are, we all started from knowing nothing, so don't feel awkward or embarrassed about anything you don't understand.
 
Welcome @Southerngirl64 🙂 You’re not alone in your re-classification of diabetes type. Quite a few adults are assumed to be Type 2 when they’re actually Type 1/Type 1.5/LADA.

Are you on insulin? If so, which ones? What triggered your re-classification?
 
Hi Inka, HbA1C of 112(when on Glicazide, always been on this) losing weight, currently size 8 clothes. Novorapid x 3 a day and Lantus before bed.
Had the GAD test and not Type 1, numbers still up and down but better than they were.
kidney and Liver functions absolutely fine.
 
At least you’re on basal (Lantus) and bolus/meal insulin (Novorapid). It might take a while to get your doses right, but insulin should help a lot, and help you put the weight back on. Are you on fixed doses of Novorapid or have you been told how to adjust your dose for the carbs you’re about to eat?
 
rebrascora said:
Hi and welcome.

How did your re-diagnosis come about?
Have they started you on insulin and if so, which ones?
Have they given you a Freestyle Libre sensor or do you just have a BG monitor at the moment for finger prick testing?

I know it is really overwhelming at first but there are lots of us here who were initially misdiagnosed and we are here to support you and fill in any blanks, which I know from personal experience happen, because I was too shell shocked to take in half the info that the nurses were telling me at the time. It is a very steep learning curve and an emotional roller coaster so do be kind to yourself and give yourself time to come to terms with it.
If you have any questions then feel free to ask. It doesn't matter how basic they are, we all started from knowing nothing, so don't feel awkward or embarrassed about anything you don't understand.
Click to expand...
HbA1c of 112 when on Glicazide, losing weight, size 8 clothes, feeling rubbish and tired. So off Glicazide and now injecting Novorapid 3 x day and Lantus at night. No Libra just a BG monitor that I have had for the last 6 years (well nearly 6). Starting to have more energy and feel better.
 
Inka said:
At least you’re on basal (Lantus) and bolus/meal insulin (Novorapid). It might take a while to get your doses right, but insulin should help a lot, and help you put the weight back on. Are you on fixed doses of Novorapid or have you been told how to adjust your dose for the carbs you’re about to eat?
Click to expand...
Just been told to adjust my dose for the carbs I am about to eat (appointment with dietician today) really confusing as she has told me to eat normally I.e. nothing low carb.
 
Southerngirl64 said:
Just been told to adjust my dose for the carbs I am about to eat (appointment with dietician today) really confusing as she has told me to eat normally I.e. nothing low carb.
Click to expand...
It is really difficult to adjust from Type 2 to a Type 1 diagnosis. I was only doing low carb for 6 weeks before I started on insulin and told to eat normally, so it must be really difficult to adjust after 6 years!! I decided to stick with low carb as that helps me with my disordered eating/cravings, but yes, as a Type 1 (LADA is just a slow onset TYpe 1) the whole idea is to eat a normal healthy diet and inject insulin to balance what you eat. It takes time to find that balance with the insulin but it frees you up to eat what you want within reason and you will probably find that there are one or two things that probably aren't worth the effort as they are tricky to balance but mostly with a bit of planning and the right amount of insulin at the right time, you can eat anything now.

Do ask about getting Libre on prescription because as a Type 1, you automatically qualify for it and it is a game changer for helping you manage your diabetes.
 
Good to hear that you are already feeling a bit better.
 
rebrascora said:
It is really difficult to adjust from Type 2 to a Type 1 diagnosis. I was only doing low carb for 6 weeks before I started on insulin and told to eat normally, so it must be really difficult to adjust after 6 years!! I decided to stick with low carb as that helps me with my disordered eating/cravings, but yes, as a Type 1 (LADA is just a slow onset TYpe 1) the whole idea is to eat a normal healthy diet and inject insulin to balance what you eat. It takes time to find that balance with the insulin but it frees you up to eat what you want within reason and you will probably find that there are one or two things that probably aren't worth the effort as they are tricky to balance but mostly with a bit of planning and the right amount of insulin at the right time, you can eat anything now.

Do ask about getting Libre on prescription because as a Type 1, you automatically qualify for it and it is a game changer for helping you manage your diabetes.
Click to expand...
Thanks for that advice about the Libre, fingers and toes are sore from testing 4 x a day. Also at my appointment it came out that I am lactose intolerant as well, in for a penny in for a pound as my dad used to say.
 
Southerngirl64 said:
Just been told to adjust my dose for the carbs I am about to eat (appointment with dietician today) really confusing as she has told me to eat normally I.e. nothing low carb.
Click to expand...

If you’re on insulin and don’t need to lose weight, then yes, you can eat pretty normally (with the right insulin doses obviously) 🙂
 
Southerngirl64 said:
Thanks for that advice about the Libre, fingers and toes are sore from testing 4 x a day. Also at my appointment it came out that I am lactose intolerant as well, in for a penny in for a pound as my dad used to say.
Click to expand...

Have you had a coeliac screening test? Sometimes new lactose intolerance can be connected to coeliac disease.
 
Southerngirl64 said:
Thanks for that advice about the Libre, fingers and toes are sore from testing 4 x a day. Also at my appointment it came out that I am lactose intolerant as well, in for a penny in for a pound as my dad used to say.
Click to expand...
You are testing your toes???
 
Southerngirl64 said:
Thanks for that advice about the Libre, fingers and toes are sore from testing 4 x a day. Also at my appointment it came out that I am lactose intolerant as well, in for a penny in for a pound as my dad used to say.
Click to expand...
Hi so sorry to hear that you're suffering. You need to ask for a freestyle libre sensor and scanner it will be a Life saver. It attaches to your upper arm you change it every fortnight there's no more bunching your fingertips you just place it in front of the sensor and it reads your blood glucose in seconds. Free on the NHS so ask for it!! Changed my life
 
Inka said:
If you’re on insulin and don’t need to lose weight, then yes, you can eat pretty normally (with the right insulin doses obviously) 🙂
Click to expand...
Still trying to find the right doses as numbers are still around 12-15mmol, the DN said if I feel I need to up my dose then do so. A bit unnerving really as only been injecting for a month and they started me off on 2 units 4 x a day and I have built it up to 10 units x 4, BS after dinner are always higher and I asked about this and the DN said if you feel you need to up the dose do so but i just feel a little unsure doing that, I guess I just wanted her to say yes up your dose but she didn’.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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