Two years on

[Tina63]

Since my lad moved to transition a few months ago, I no longer have ANY emergency contact details. My son has his new DSN's number in his mobile, but when I asked for that he went mad. Refused point blank to give it to me. His old DSN told me a good while back that I could use her as a point of contact for the time being - she obviously wasn't prepared to give me the new woman's name or contact details either. So he has a new DSN as well as a new consultant but I don't know either of their names! He has seen his new DSN on the last 3 or 4 appointments but only met the new consultant this week.

A year or so ago I had all the male members of the wider family telling me I was doing way too much for him and fussing too much, and they told me to let him take control himself. I did suggest he told me when he needed repeat prescriptions ordering or even do them himself (we can do those online) and he does occasionally tell me he needs 'more of everything ordering', but that's never accurate. I still keep an eye on what he has and what is going fast, and just order stuff still anyway. He has certainly never attempted to do it on his own.

He has still told me nothing more of his appointment, in fact he is incredibly angry and rude today, but when the follow up letter comes in a week or two I will have a read of that and see what's what. I suspect things are no better though. I am incredibly frustrated at the moment, but know there is little I can do about it.

 

[Tina63]

You mentioning A&E Catherine, when my lad went in with that alcohol induced situation, it was scary how ignorant most of the staff were about diabetes. The only saving grace was that the nurse who tended to him had a T1 daughter. She had a pump though, and this nurse seemed amazed we didn't. As I have said many times before, we have never even been told they exist, let alone offered one. Not that my lad is interested.........

 

[LeeLee]

Re: the prescription ordering issue, have you considered the repeat service that Boots (and some other chemists) offer? Then all you have to remember is to go pick up the medicine once a month.

When you collect the meds, you tick the items you want for the next month on the repeat form and they take it to the GP a week before it's due, collect it again, and then fill the prescription for you to pick up.

 

[Tina63]

The trouble with that is that I never know what my lad will use from one month to the next. I prefer to put in an order for what we want, when we want it. It gets taken straight to Boots anyway, so it's only a matter of a couple of minutes on the website ordering it all. I always keep an extra box of everything in anyway, so we never get dangerously low of anything.