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They say I have diabetes...

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baroby

New Member
I posted a message on the forum about 6 months ago. A blood test for something else led to a diabetes blood test-A1C.
The result came back at 105-which did not mean much to me. As I said previously, I don't smoke, don't drink alcohol,
am very active, and was only a few pounds over my ideal weight, and believe it or not, I have never eaten fast food. Never had a
burger and fries, never been in a taco joint, ...

A test 3 months later came back with a reading of 86.

The clinic gave me a meter to test my blood sugar levels with finger-prick tests, which I have been doing now since I was told I had diabetes type 2. Testing 3 or 4 times a day. When I get up, after meals, before meals, late at night, and sometimes 15 minutes after eating, even got up during the night a couple of times and tested.

In all that time, the highest reading I got was 6.3 when I got up just once.

No matter what time I test, my readings scarcely move out of 4.0 to 4.9, and sometimes into the low 5s, mostly 5.1 or 5.2.

When I look at diabetes authorities in the U.S, N.Z, the UK, France, I see that their definition of normal b.g. is 3.5 to 5.4 for a non-diabetic.
Seems just what I am. But my clinic insists that I have diabetes.

In the UK, it seems that b.g. readings of 4.0 are hypos. I regularly get readings of 3.5 thu' 3.8, and 4.0 is commonplace for me. In fact if my b.g. goes above 5.0 I become anxious, thinking that I have hyperglycemia. I don't take medication.

Quite a few times, I have had carb-laden meals and tested my b.g. before and after. Just last Sunday, I tested my blood sugar level before Sunday dinner-4.7, 75 minutes later it was 4.2.

The pattern that emerges of my b.g. levels is the 3 or 4 range when waking, a rise to maybe 4.6 or even 5.1 around midday, and falling back again like the last night-3.5.

I don't believe I have diabetes, but the health center says otherwise. I have never seen a doctor at the clinic about this diagnosis. Long ago I was hospitalized three times. The first time was abnormal b.g. results-a test-the doctor told me that they thought I had a tumor on my pancreas. I didn't and whatever was making me ill cleared up. The second time I spent a week in the hospital, diagnosis, hypoglycemia. The third time, the same thing. An endocrinologist told me that my liver and pancreas were fine, and my test results were outside the normal range, but of themselves, not alarming.

My latest HbA1C test shows my b.g. is 26 or 4.5%.

I am going to an endocrinologist to have new tests and a review of my test results. Going to cost me about £600.00.
 
This is a bit confusing. A HbA1c of 86 is well into the "diabetic range" (you get diagnosed with a no. of 48 or above. If it goes below this later, you're still diabetic.). And another result of 105 I would take as making quite definate. However, HbA1c of 26 is Low. "Normal" is 32-41!
However, your finger prick tests are low.
Seems something is going on, even if you doubt the diabetis.
In all that time, the highest reading I got was 6.3 when I got up just once.
That is a surprise.
You need to have a good talk with HCPs about what is going on. Ask to see a doctor if necessary (although you usually get longer with the nurses to explain things).
Keep a record of your levels to show them, maybe along with a food diary. Try taking readings at different times after eating, see if the peak happens later or sooner. 2 hours after eating is often given as a time.
I have had carb-laden meals and tested my b.g. before and after. Just last Sunday, I tested my blood sugar level before Sunday dinner-4.7, 75 minutes later it was 4.2.
What do you call carb-laden? What sort of things are you eating?
Are you on any medication? Insulin? Gliclizide?
I've had a similar situation for a roast beef dinner (minimal carbs, plate piled high with other things), giving figures of 5.2, 5.6 and 5.7
In the UK, it seems that b.g. readings of 4.0 are hypos.
"Four is the floor" is a phrase I've heard a few times. Anything below 4 is a hypo. Depending on cirumstances, it is possible for diabetics to have hypos. Which is one of the big reasons for some to self test.
 
@Ralph-YK the OP says they aren't on medication stated at the end of one of the parts you quoted xx
 
Well with a recent HbA1c of 26, no you aren't diabetic. If you do have low blood glucose a lot of the time and your body is working properly, your liver compensates and chucks some of its glucose stores into your bloodstream. However, if it over compensates then your blood glucose shoots up high - reactive hyperglycaemia.

I should bloomin well hope they are going to do further tests on you to find out what the heck is really going on. Let's hope they can and you can receive suitable treatment.
 
This is a bit confusing. A HbA1c of 86 is well into the "diabetic range" (you get diagnosed with a no. of 48 or above. If it goes below this later, you're still diabetic.). And another result of 105 I would take as making quite definate. However, HbA1c of 26 is Low. "Normal" is 32-41!
However, your finger prick tests are low.
Seems something is going on, even if you doubt the diabetis.

That is a surprise.
You need to have a good talk with HCPs about what is going on. Ask to see a doctor if necessary (although you usually get longer with the nurses to explain things).
Keep a record of your levels to show them, maybe along with a food diary. Try taking readings at different times after eating, see if the peak happens later or sooner. 2 hours after eating is often given as a time.

What do you call carb-laden? What sort of things are you eating?
Are you on any medication? Insulin? Gliclizide?
I've had a similar situation for a roast beef dinner (minimal carbs, plate piled high with other things), giving figures of 5.2, 5.6 and 5.7

"Four is the floor" is a phrase I've heard a few times. Anything below 4 is a hypo. Depending on cirumstances, it is possible for diabetics to have hypos. Which is one of the big reasons for some to self test.
Prior to being told I had diabetes (first AiC test 105) I was not testing my blood levels.
During the time covered by the second A1C test (86) I was testing 3 or 4 times a day on a meter.
Then and now, my b.g. levels hardly ever moved out of the range 3.5 to 4.9, with a rare jump to 5.1 or 5.2 when I got up in the morning. Today my b.g. level on waking was 4.6. 75 minutes after lunch, it was 4.2. Right now, just before dinner, it was 3.4. This is normal-at least based on 6 months of test records.

I have a detailed record of b.g. levels and food I have eaten.

Carb laden Sunday dinner-all the stuff one might find-mash potato and parsnip, Yorkshire puddings, roast potatoes, cabbage, Brussel sprouts ...I estimate about 260 carbs. For dessert, treacle tart and custard-about another 100 carbs. B.G. before dinner 4.7, 75 minutes later, 4.2. Evening snack-custard and Cadbury chocolate cornflake clusters-70 carbs I think.

I have no markers for any metabolic disease-other than these A1C tests, which are now showing levels consistent with being non-diabetic. Last one 4.5%.

The clinic I attend has never referred me to a doctor, everything is email or telephone. But they insist I have diabetes. The b.g. levels I have were described by an endocrinologist long ago as normal for me, and nothing to be concerned about after I was discharged from the hospital with a suspected benign tumor on my pancreas gland, which turned out to be a false alarm and my low b.g. levels were described as 'normal' for me.

How I am persistently recording b.g. levels in the 3.5 to 4.8 range and on two occasions in the last 6 months I have got A1C levels consistent with diabetes is beyond me. I just don't know. There is a possibility that both high readings were false positive, I hope to find out soon.
 
Have you had any problems with anaemia when you had the high a1cs? I read that can cause falsely elevated a1cs.
 
The clinic I attend has never referred me to a doctor, everything is email or telephone.
I've never dealt with a doctor for my diabetes. I was referred to the GP Practice Nurse straight away.
 
My Hba1c has been 42, even moving from 50 gm of carbs a day down to 40 did not alter it - I suspect that my Hba1c is somehow stuck at 42 and is not exactly following either my intake of carbs or my day to day blood glucose levels - for me it is not a problem, I just go along free of worry and medication - and symptoms. I am slowly shrinking in size, each time I bring out my other season clothing it is a bit looser and some things have to be replaced or remade, and although I could eat more carbs, I like the low carb way of eating too much to change now.
You definitely need to find out more about what is going on - but it doesn't seem to be anything a diabetic would normally experience.
 
Welcome back @baroby

What a confusing situation for you.

Hope you can get seen for some proper checks and a bit more of a thorough assessment as something certainly seems very odd. The fingerstick readings you are quoting are very much in the non-D range, and wouldn’t give rise to the significantly elevated HbA1c results you had earlier.

I would suspect that the 105 was an error of some kind except that 3 months later you got a result of 86 which is well into diabetes territory.

However your current BG results are optimal, so it seems you have plenty of time to explore what has gone on once the healthcare system has a bit more capacity, and in the meantime you’ll get regular checks to keep an eye on things 🙂
 
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