• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Therapy and counselling

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Batch1988

New Member
Relationship to Diabetes
Type 1
Hi everyone. So this is my first post, and sorry its a little long and maybe ranting . So I've had type 1 over 20 years and just generally tried to get on with it, after all their's normally someone else who's in a worse place/situation than me so I don't tend to ask or seek help. Guess that's not the best thing

Over the years of being a type 1 I've generally just gotten on with it and came to see it as something that's with me and I can't exactly make it go away, so I've kind of accepted it mostly. Although I've had times in the past where I couldn't be bothered dealing with it but mentally it's not been much of a problem I've worried about.

But nearly 2 years ago I became a dad and now I have 2 little boys or little monsters depending how they are . Since then I've received quite a bit of help dealing physically with the diabetes. I was firstly placed on the t:slim pump just over a year ago which has helped alot with it and in January I was given the Dexcom G6 to use with the pump in a hybrid loop.

This has significantly improved my HbA1c. Considering at one point some years ago my HbA was over 14 it's a complete improvement and almost unbelievable until I see my readings. All this has significantly improved my physical health, I didn't even realise how physically unwell I felt within myself untill recently.

But now I find myself rather mentally drained with worrying about my health. I generally didn't look after the diabetes in my younger years and have a few complications now and also a pretty awful sleep condition making my mental health worse.

The biggest worry is how it affects my fiance and how it'll affect my children and family in the future and what may happen. It's a daily thing and it's almost too much at times, I've been recently diagnosed with depression and anxieties and started a new med which will hopefully start helping soon.

The biggest issue is trying to get therapy or counselling. My GP can only give me a phone number to self refer but the biggest issue is the set times they're open and the sleep condition makes this almost useless to me. I contacted my specialist nurse and was basically told the hospital has nothing they can offer with regards to mental health.

Accessing services during normal hours is almost impossible as day to day I have no idea if I'll be able to do anything with the extreme sleep inertia it causes. It generally lasts for hours on end even requiring some days to go back to sleep during the day. Most days I'm unable to do much of anything in usual working hours till around the evening's which is too late for most services.

I'm hopeful that someone on here can help guide me with the best way to access help and support therapy as my GP and hospital are almost useless for this.
 
Welcome @Batch1988 and sorry to hear about your problems. Have you tried looking for a private counsellor? I saw one and found it a great help. It’s possible you could visit one in the evenings if you explained your issues, or even just use Zoom to speak to them in the evenings.

There are also some useful things like mindfulness that can help. Are you getting support with the sleep problem? A lack of sleep can make you feel worse mentally as well as physically.
 
The counselling itself would take place during daytime hours so I think you’re just going to have to find a way to make the phone call. Have you checked there’s no online form to self refer though? Mine has that option.
 
If you are not already getting help with your sleep problem then asking for a referral to a Sleep Clinic may help as they will have encountered your issues before whereas your GP may not.

This link may help you find some support for your metal health.
 
The biggest issue is trying to get therapy or counselling. My GP can only give me a phone number to self refer but the biggest issue is the set times they're open and the sleep condition makes this almost useless to me. I contacted my specialist nurse and was basically told the hospital has nothing they can offer with regards to mental health.

Accessing services during normal hours is almost impossible as day to day I have no idea if I'll be able to do anything with the extreme sleep inertia it causes. It generally lasts for hours on end even requiring some days to go back to sleep during the day. Most days I'm unable to do much of anything in usual working hours till around the evening's which is too late for most services.

I'm hopeful that someone on here can help guide me with the best way to access help and support therapy as my GP and hospital are almost useless for this.
It is shameful that mental-health services are so poor, and especially that mental-health services for adult T1s are so poor. Research shows that we are more likely to suffer from depression and anxiety disorders, plus we have our own particular mental-health condition, 'diabetes-related distress'. ALL hospital diabetes clinics should include psychologists ...

Sorry! It just makes me so angry. But let's get practical:

The key question here is whether or not you could afford to pay a therapist privately. The cost would be in the region of £40 to £90 per week; sometimes even 8 weeks can make a difference, depending on what the issue is. Having sessions in the evening would not be a problem; and it would also not be a problem if you preferred to do sessions by phone or videoconferencing rather than physically going to the therapist's office.

Before I was diagnosed with T1 (which was less than 9 months ago) I developed severe anxiety and depression. My GP said, essentially, 'Well, you can have drugs or therapy; but if you want therapy with an actual therapist, the NHS waiting lists are so long you'll have to go private.' So I did-- and it has made a massive difference to my life.

If you could afford therapy privately-- I can give you more advice on how to find someone. If there really is no way you could possibly afford it-- you need a different sort of advice. Just let us know, and we'll try to think of something. Sending all best wishes!
 
I would much prefer a face to face appointment, maybe I'm a little bit of a techno phob lol. I was thinking of trying private but the costs would be pretty prohibitive at the moment with our current financial situation.

I've also been to 4 different hospitals with regards to the sleep issues and was finally diagnosed with "delayed sleep-wake phase sleep disorder". One hospital even said its just my diabetes, to deal with it and go outside and get some fresh air. Great NHS service and advice! Was finally diagnosed at Sheffield but told theirs nothing can be done apart from sleep hygiene which is basically impossible with a 19 month old and a 7 month olds needs.

Tbh it's not just the diabetes that's causing the anxieties and depression but worrying about the needs and future needs of my children and worrying I can't do what I want and need to do for them. Plus the worry of putting so much on my fiance with my health and with regards to the children's needs, at times it makes me feel more a burden.

My general experience with the NHS with regards to health and especially towards mental health is to just deal with it. The thing I don't understand with the NHS is they will spend thousands on physical treatments but don't care about mental health, as long as the doctor can click a box saying my bloods are okay they don't generally care.

Generally the NHS seems to be more about following guidelines and trying meet targets regardless of what else happens. And even trying to get a GP appointment is almost impossible due to the sleep issues. Their is a self referral for counselling which I have done previously but never got anywhere. I will certainly try the self referral again but as with the NHS I struggle to hope it'll get anywhere this time.

Thank you for the help and kind words, I will never give in or give up with getting the help I need, just seems getting the help and care needed is about as likely as winning the lottery normally lol
 
I would much prefer a face to face appointment, maybe I'm a little bit of a techno phob lol. I was thinking of trying private but the costs would be pretty prohibitive at the moment with our current financial situation.

I've also been to 4 different hospitals with regards to the sleep issues and was finally diagnosed with "delayed sleep-wake phase sleep disorder". One hospital even said its just my diabetes, to deal with it and go outside and get some fresh air. Great NHS service and advice! Was finally diagnosed at Sheffield but told theirs nothing can be done apart from sleep hygiene which is basically impossible with a 19 month old and a 7 month olds needs.

Tbh it's not just the diabetes that's causing the anxieties and depression but worrying about the needs and future needs of my children and worrying I can't do what I want and need to do for them. Plus the worry of putting so much on my fiance with my health and with regards to the children's needs, at times it makes me feel more a burden.

My general experience with the NHS with regards to health and especially towards mental health is to just deal with it. The thing I don't understand with the NHS is they will spend thousands on physical treatments but don't care about mental health, as long as the doctor can click a box saying my bloods are okay they don't generally care.

Generally the NHS seems to be more about following guidelines and trying meet targets regardless of what else happens. And even trying to get a GP appointment is almost impossible due to the sleep issues. Their is a self referral for counselling which I have done previously but never got anywhere. I will certainly try the self referral again but as with the NHS I struggle to hope it'll get anywhere this time.

Thank you for the help and kind words, I will never give in or give up with getting the help I need, just seems getting the help and care needed is about as likely as winning the lottery normally lol
I've just gone back to your first post, where you say "in January I was given the Dexcom G6 to use with the pump in a hybrid loop", and "this has significantly improved my physical health, I didn't even realise how physically unwell I felt within myself until recently."

Well, first of all-- congratulations on getting a hybrid closed-loop system!!! I desperately want one but don't yet know whether I will be able to get one on the NHS.

Also makes me think: It's not uncommon that, while people are struggling with an overwhelming practical/physical problem, other fears and worries get pushed to the side-- and then, when the practical or physical problem lightens up, those other fears and worries surge to the fore, because they now have much more room to roam. (And sometimes other people don't understand this and are puzzled or even annoyed that you're feeling worse rather than better!) Add to that having a 19-month-old and a 7-month-old, oof!! Plus a sleep disorder ...

But back to the counselling/therapy problem: It sounds as though, in financial terms, going private would not be outright impossible, but it would be very difficult? Even if it would 'merely' be very difficult, though, of course you should try the available NHS resources first.

Going back to your first post: it sounds as though the only barrier to you getting face-to-face counselling on the NHS was the times they were open? And you felt your sleep disorder made this impossible?

But: I just looked up medical articles on "delayed sleep-wake phase sleep disorder" ... Treating this requires 'phase shifting'-- resetting your internal clock-- and one of the most helpful ways to do this is 'phase advancing': "Morning light exposure is likely to be most helpful in phase-advancing ... The best method for this is natural light, and patients should be encouraged to get outside into daylight as quickly as possible after waking, for 30 minutes." (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5803043/ )

So-- if you could arrange counselling sessions for first thing in the morning-- that would be perfect! Killing two birds with one stone.

You might initially feel it was killing you too! ; ) But, although it would be tough, you could do it? ... Perhaps with your fiance's help? Could she, literally or figuratively, push you out the door? ...

If, currently, you absolutely could not get out of the house in the morning: In that case, we would need to get you some counselling or therapy first, in order to get you over the hump of being able to get out of the house in the morning, in order to enable you to get face-to-face counselling and also to get the morning light you need for your sleep disorder. And that would mean first doing a little therapy simply focused on the problem of getting out of the house in the morning-- identifying barriers and how to get past them-- and doing this via either online 'guided self-help' or by phone or video.

So-- think about this, and definitely do the self-referral again, and explain the problem. They should be able to understand-- there are lots of us who find getting out of the house difficult or even impossible!-- and should be able to recommend a solution, at least in terms of a first step or first phase.

Also, if you haven't done this before, do look up beforehand the different sorts of help offered by your local 'IAPT'. Some areas (e.g. https://www.tewv.nhs.uk/about-your-...s/talking-therapies-for-adults-iapt-services/ ) seem to offer a very wide range of types of therapy and counselling; other areas-- not so much! Just so you know in advance what the service in your area can and can't offer. There's a widget here to identify your local IAPT and take you to their webpages: https://www.nhs.uk/service-search/mental-health/find-an-nhs-talking-therapies-service .

Anyway, please do let us know how it goes when you try the self-referral again, and how you get on; fingers crossed!
 
I was interested in this because last year I started getting classic diabetes burnout but did not seek help for it and have just been muddling along with it ever since - except I have to say, since the days have been literally getting brighter, so have I, a bit.

So, anyway - I just clicked on the link which @Spathiphyllum posted above - and my local NHS area (Coventry & Warwickshire) does indeed have the opportunity to self refer. I haven't, as yet, so no idea what if anything the outcome of doing so might produce. (I have a diabetes clinic appt next month and intend to raise this one with them (amongst quite a few other bits and pieces bugging me!) so I'll have to see where I go from here.)

However, at the very least @Batch1988 - please DO try that link and DO self refer yourself before discounting them!

Best of luck pal.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top