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That bloomin DSN

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M

mrsjaja

Well-Known Member
Relationship to Diabetes
Type 2
Have waited all morning for the DSN to call me back (the horrid one from two weeks ago).......rang her because i couldnt wait any more.

She thinks differently to Doc i saw. She wants me off the Byetta on insulin!!!!!

Want to at least give the two together a try, and had to argue with her about my weight loss - the clinic scales wouldnt weigh me when i first went onto the Byetta!!!!!! I dont want my weight to go back up, and hopefully the combo will help not do that, but i dont think she is really interested.

I told her that leaving the Byetta for the full hour just makes me feel really sick and gives me a mega headache and her reply - well it should make you eat less then........How much does she think i eat? I know i dont eat properly/enough and its people like this who make me this way!!!!!!!

Hasnt done anything about speaking to the consultant, is going to talk to the Doc on Friday about me, to discuss which way to go. Grrrrrrrrrr.

Why cant these people do what they say they will??????

Have tried to speak to nice dsn, but she is on leave till 1st March.

Am so frustrated and upset (again!!!)

Feel like stopping all meds and taking my chances....
 
First take a deep breath and let it out slowly.

Is the Doc she is disagreeing with your GP or the consultant ?

If its the consultant then I don't think she can overrule him. If she wants to change the advice she needs to speak to him/her.

I am not 100% sure what regime she is recommending as there appears to be a word or two missing from your post. Does she want you to stop the Byetta - if its giving you nasty side effects then it might be for the best. However, she is not doing anything to give you confidence in her - she seems condescending and aggressive.

Is it possible for the conversation between her and the Doc to include you, you could be with one of them and they could use a speaker phone or they could set up a conference call. You should be being included in your treatment decisions.

Hope that things are sorted soon. You know the first of March is next week so its not too long till you can speak to the nice DSN.
 
Congratulations on your weight loss.

Not long to 1st March - it's next Tuesday. (I'm very aware of short Feb, to avoid missing renewing my tax disc, which I've just done) Frustrating that it is, best to wait until you can speak to the DSN you trust. So, please don't stop your medications no. Doctor might not have been available to discuss your case.

Byetta and insulin are not approved for use together, so combo isn't an option. So not really a case of lack of interest by DSN.
 
Copepod said:
...Byetta and insulin are not approved for use together, so combo isn't an option. So not really a case of lack of interest by DSN.
Click to expand...

Squidge was on insulin and Byetta until very recently, although the side effects proved too bad for him. But it must be an option.
 
Northerner said:
Squidge was on insulin and Byetta until very recently, although the side effects proved too bad for him. But it must be an option.
Click to expand...

I think sometimes non approved options are used.

For instance I was told that no insulin is approved for use in pregnancy - simply because they don't have the data. However, it is used because there is no alternative. Not being approved and not being used can be two different things.
 
Margie - The doc she is disagreeing with is the junior consultant (i think) at the hosp. They have to have permission from the main consultant in charge of the Diabetic unit to give the insluin and the byetta, as a lot of the gp's wont repeat prescribe the byetta if its off-licence.

Copepod - i would be having the byetta off licence - you are right it is not licensed for use with insulin. The whole point of taking the two together was because i AM losing weight with the byetta, but my BS levels are still too high (pretty even around 13 - 15 first thing in the morning), and the weight loss has slowed right down.

Am just so cheesed off - she still wouldnt acknowledge the weight i lost when i initially went on the byetta, even though i can now be weighed on there scales and i couldnt before!!!!!!!

I know my weight is an issue, but so are my constantly poor levels!!!!

I really dont know what to do anymore!!!!!!
 
What do you mean leaving the Byetta for the full hour? Do you mean you have to wait to eat for that length of time? If so, 😱 ! I was told I had to eat within 10-20 minutes of taking the injection because of the nausea. The combination of Byetta and insulin is one my team are considering for me for the same reasons as you, to help me lose weight. It may not be licensed but it is something many teams are looking at, or so it seems. Dosen't Squidge also take Byetta and Insulin?

In this case, I'd go with the consultant's opinion and ignore the DSN. Tell her to talk to him if she thinks he's wrong.

Oh yes, well done on the weight loss.
 
ALisonM - was told when i first went on it at least 15 minutes before meals, but no more than an hour.

My happy medium was 15 -25 mins, much more than that and i get the nauseous feeling and the blinding headache (which lasts at least an hour if not more). The nasty DSN wanted me to leave it as long as possible (the whole hour) and see if it bought my levels down (which it hasnt)....She really did say the naseaous feeling was to stop me eating so much!!!!!

I just hope the Doc stands by her initial decision.... was very worried about the Insulin side of things, but she explained it so well to me that i am really actually quite keen to give the combo a go....
 
She's right about the nausea, however, I'm told our bloods are likely to rise if we don't eat and we can't eat if we feel too sick. I'd go back to your own way of doing things If it were me, I'd also complain in writing to the clinic about her attitudes and behaviour. Just mind you don't slip up and call her Nurse Ratchett next time you see her.😉
 
Do you think she could be sticking to the NICE guidelines, on the HbA1c part of it? I know you say the levels are still too high but I don't know if you achieved the required A1c reduction?

It does seem a shame that she doesn't come across well or have a good attitude. I would imagine makes it really difficult to trust her and feel she can support you.

Would it help to speak to your GP and see is s/he is happy to prescribe off lisence?
 
Mylast HbA1c was 9.1.

I dont like her at all. Saw her for the first time two weeks ago, and i came out of there and cried!!!!! Not like me at all. And she didnt like it that i stood up for myself today, i could hear it in her voice.

My GP is a fundholder for the local PHT, so i dont know how she will be about the Byetta off licence, thats why they have to get permission from the main consultant on the unit.

Will know for definite on Friday apparently, so fingers crossed.
 
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