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Testing for diabetes Insipidus

B

Bumble121

Member
Relationship to Diabetes
At risk of diabetes
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She/Her
Hi,

Does anyone have this/know the process for testing? GP mentioned this but unsure what it entails. Thank you.
 
Thank you I did look at this but didn’t know if anyone had been tested so I knew what to expect. I have had a read thank you. I did have a head injury from an accident but who knows ‍♀️ It’s not something I had heard of before.
 
Bumble121 said:
Thank you I did look at this but didn’t know if anyone had been tested so I knew what to expect.
Click to expand...
Worth asking, but I don't recall anyone actually having tests (or coming back and telling us about it, anyway).

It's rarer than diabetes mellitus (and not particularly related) so not surprising you'd not have heard of it. I'm pretty sure I remember a BBC Radio 4 program on it (Inside Health, probably) but iPlayer shows nothing for insipidus.
 
My consultant recommended a couple of test to rule out type 1 and check the function of my pancreas: a c-peptide urine test after a meal and an antibody blood test
 
MarcR said:
My consultant recommended a couple of test to rule out type 1 and check the function of my pancreas: a c-peptide urine test after a meal and an antibody blood test
Click to expand...
None of these are tests for diabetes insipidus as that has nothing to do with the pancreas
 
Bumble121 said:
Thank you I did look at this but didn’t know if anyone had been tested so I knew what to expect. I have had a read thank you. I did have a head injury from an accident but who knows ‍♀️ It’s not something I had heard of before.
Click to expand...

My friend was tested for diabetes insipidus after developing an enormous and constant thirst. They ruled out diabetes mellitus as their blood sugar was normal. I know they had initial tests for diabetes insipidus done, but I’m not sure if these were blood tests, urine tests or both. If I remember correctly, they were looking for a particular hormone. If these tests had been positive, further tests might have been done, but, as it happens, the initial tests showed it wasn’t diabetes insipidus.

Not sure if that helps you much @Bumble121 but it’s the only person I know of.
 
Thank you. My hba1c was ok after a few random high blood sugars. I have high urine output and extreme thirst (so I guess high urine output makes sense). Even when I try not to drink I feel like I’m dehydrated it’s hard to describe. I’m so fatigued. I don’t know what is wrong but hopefully they will get to the bottom of it.

I had a serious head injury from a car accident as a child but would have expected to have had life long issues (I read about head injuries being one of the causes). I guess it’s a wait and see. I have an array of blood tests and a referral for the endocrinologist. If I find out more I’ll update incase it’s helpful for others 🙂
 
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