themanwho85
New Member
- Relationship to Diabetes
- Type 1
Hi all, on Saturday night I started having symptoms of neuropathy and it's causing me a lot of anxiety, I'm really struggling especially after making the mistake of using google to look up the prognosis... I've been trying to get support/advice from my GP but to no avail so I'm just gonna spill it all out here to try and make myself feel somewhat better!
I've been type 1 for 17 years and suddenly started getting a tingling/numbing feeling in my feet (occasionally shins), both hands but mostly up my left arm almost up to the elbow. I haven't felt any issues previously, can it really just go from 0-100 like that? I don't have any loss of sensation anywhere on both feet and no real 'pain' so to speak but it's obvious that something's going on.
Weirdly I already had an appointment to have my feet assessed which is tomorrow but I've had 4 horrible anxiety filled days of just waiting... I spent 2.5 hours on hold trying to request an earlier appointment or to even just speak to someone from the diabetes team at the surgery but no joy, 111 tried their best to get someone from the surgery to call me, but again no joy.
I haven't had an HbA1c for a good while now, a combination of lockdown, getting booted out of the GP I'd been going to all my life because I moved less than a mile away and admittedly a lack of urgency on my part to arrange for one at my new GP (2.5 hours on hold to make an appointment doesn't help when you work 9-5). I also had a brain tumour removed in 2019 which causes me to poop my proverbial pants whenever I get a certain type of 'back of the head' headache, which has taken more of my more recent focus. I have however been having retinal exams every year, and have had a letter in the past saying 'you have background retinography', but my most recent ones have come back fine.
I've mostly managed my diabetes myself, mainly because I've never had much help from anyone. However I've never been one of those people who just ignored my BG levels and drank/smoked etc, I've always tried my best to keep on target, if I test and it's high I always adjust etc, but again admittedly my BG levels haven't been great for a few months now, probably an average of about 10, plus my diet has been poor and activity sedentary.
Since Monday I have been super careful with my BG levels, pretty much nothing under 10 and averaging between 6 and 8. I have been eating better and less portion size which I'm already seeing is requiring me to inject less insulin for meals. I'm walking/exercise biking for about 30 mins everyday to try and improve circulation. Naturally there's no improvement because it's only been 4 days, but it would be reassuring to know that there might be a slither of hope for me if I continue these improvements.
Also if anyone could suggest things I should ask at my appointment tomorrow it would be hugely appreciated, I would really like to get either a flash or preferably a CGM so I can really keep an eye on my levels.
Many thanks
I've been type 1 for 17 years and suddenly started getting a tingling/numbing feeling in my feet (occasionally shins), both hands but mostly up my left arm almost up to the elbow. I haven't felt any issues previously, can it really just go from 0-100 like that? I don't have any loss of sensation anywhere on both feet and no real 'pain' so to speak but it's obvious that something's going on.
Weirdly I already had an appointment to have my feet assessed which is tomorrow but I've had 4 horrible anxiety filled days of just waiting... I spent 2.5 hours on hold trying to request an earlier appointment or to even just speak to someone from the diabetes team at the surgery but no joy, 111 tried their best to get someone from the surgery to call me, but again no joy.
I haven't had an HbA1c for a good while now, a combination of lockdown, getting booted out of the GP I'd been going to all my life because I moved less than a mile away and admittedly a lack of urgency on my part to arrange for one at my new GP (2.5 hours on hold to make an appointment doesn't help when you work 9-5). I also had a brain tumour removed in 2019 which causes me to poop my proverbial pants whenever I get a certain type of 'back of the head' headache, which has taken more of my more recent focus. I have however been having retinal exams every year, and have had a letter in the past saying 'you have background retinography', but my most recent ones have come back fine.
I've mostly managed my diabetes myself, mainly because I've never had much help from anyone. However I've never been one of those people who just ignored my BG levels and drank/smoked etc, I've always tried my best to keep on target, if I test and it's high I always adjust etc, but again admittedly my BG levels haven't been great for a few months now, probably an average of about 10, plus my diet has been poor and activity sedentary.
Since Monday I have been super careful with my BG levels, pretty much nothing under 10 and averaging between 6 and 8. I have been eating better and less portion size which I'm already seeing is requiring me to inject less insulin for meals. I'm walking/exercise biking for about 30 mins everyday to try and improve circulation. Naturally there's no improvement because it's only been 4 days, but it would be reassuring to know that there might be a slither of hope for me if I continue these improvements.
Also if anyone could suggest things I should ask at my appointment tomorrow it would be hugely appreciated, I would really like to get either a flash or preferably a CGM so I can really keep an eye on my levels.
Many thanks
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