Struggling

[Simon241]

Hello, I am new to this forum but have been a type 1 diabetic for almost 30 years. For the last 3 years I have really started to struggle. I have non-proliferative retinopathy and some symptoms of neuropathy including areflexia and nerve pain in my hands particularly but am finding it very hard to get any clear advice. I have lost a bit of faith in my treatment. My HbA1c levels have been good for many years but it seems to have made no difference and I feel very dispirited. It think it has affected my mental health. I have spoken to some counsellors but of course they don't know much about diabetes. I have a young family and really just have to get on with things, but it is increasingly difficult to face. Apologies for the extended moan, but I am somewhat at the end of my tether and am trying to find a helpful forum of ideas to try and move forward. Thank you

 

[everydayupsanddowns]

Welcome to the forum @Simon241

Sorry to hear what a tough time you are having with your T1.

It was a similar ‘burnt out’ ‘what am I doing’ feeling that brought me to forums many years ago. And comparing notes with others who lived with diabetes day to day made such a huge difference to my life with T1.

Diabetes burnout and diabetes distress are increasingly recognised. So you aren’t alone. Many, many members here have been where you are, and have made progress towards a new phase with their diabetes.

 

[Simon241]

Thanks for taking the time to reply. Much appreciated.

 

[Sunnyside3049]

Hello, I am new to this forum but have been a type 1 diabetic for almost 30 years. For the last 3 years I have really started to struggle. I have non-proliferative retinopathy and some symptoms of neuropathy including areflexia and nerve pain in my hands particularly but am finding it very hard to get any clear advice. I have lost a bit of faith in my treatment. My HbA1c levels have been good for many years but it seems to have made no difference and I feel very dispirited. It think it has affected my mental health. I have spoken to some counsellors but of course they don't know much about diabetes. I have a young family and really just have to get on with things, but it is increasingly difficult to face. Apologies for the extended moan, but I am somewhat at the end of my tether and am trying to find a helpful forum of ideas to try and move forward. Thank you

Welcome Simon, I am newly diagnosed T2, please try not to feel disheartened, I am struggling,but I have to face up to this life changing situation…you are brilliant at having coped for 30yrs…you are not moaning,that’s what this forum is all about,to help and offer advice.chin up my friend, upwards and onwards Sue x

 

[trophywench]

Err, surely the thing to wish PWD generally is 'onwards and downwards!' (with the unspoken acknowledgement of 'whilst avoiding hypos' 😉 naturally)

 

[Simon241]

Welcome Simon, I am newly diagnosed T2, please try not to feel disheartened, I am struggling,but I have to face up to this life changing situation…you are brilliant at having coped for 30yrs…you are not moaning,that’s what this forum is all about,to help and offer advice.chin up my friend, upwards and onwards Sue x

Thank you Sue, it is very kind of you to respond so positively.